7piglets
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« on: June 18, 2008, 07:03:40 PM » |
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Ok so I just recently started dialsyis and havent had a beer in months but so would love one sitting on the deck hanging out with friends. Do any of you still drink?? I am not looking to get drunk so have a beer. I got my bloodwork back today and everything was perfect other than my iron and anemia levels (which I have always had problems with and they they up'ed my meds) I am not on a restricted diet I just need to watch of course my potassium and take binder for phosphorus.. they said whatever I do must be working because all my levels are on target.. just curous.. thanks for info .
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kimcanada
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« Reply #1 on: June 18, 2008, 07:14:56 PM » |
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I don't drink at all any more, I save every ounce for water
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Ang
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« Reply #2 on: June 18, 2008, 08:06:34 PM » |
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7 piglets if you wish to have a beer thats fine,are you still going to the toilet,?,if so you need to measure urine output every couple of weeks, then your daily allowance + urine output is your daily allowance. beware urine output will eventually cease,enjoy it while you can. it comes down to where / when wil i drink(try and stay within your limits) stack the freezer with ice blocks,they tend to help if your having trouble with fluid. good luck with it all.
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live life to the full and you won't die wondering
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twirl
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« Reply #3 on: June 18, 2008, 08:17:18 PM » |
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I hope Flip reads this and comments on the post. I will drink a few swallows of a beer but that is all. I will sometimes have a glass of wine. It does not seem to hurt. I still pee some. A nurse at dialysis told me to drink liquor instead of beer, but I don't. I don't think one would hurt you, drink less of other fluids that day and stay away from salt and see how it goes--- trial and error I did drink on my anniversary last year - 3 little 8 ounce bottles of cheap wine-- I got a little drunk because I hardly ever drink--- It was fun.... did not feel awful the next day....ate oysters and shrimp too------- good luck and please take care
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Zach
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« Reply #4 on: June 18, 2008, 08:34:53 PM » |
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There's nothing like an ice cold beer on a hot day! If you've been working outside when it's hot, you've probably lost enough fluid to have 12 onces. If you're really concerned about the fluid volume, then have a Jack Daniels on the rocks. It's all about moderation in food and drink ... and the 48 hours between hemodialysis treatments.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment. I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology."
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7piglets
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« Reply #5 on: June 18, 2008, 08:38:43 PM » |
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thanks everyone ..see my concern is I have been told no fluid or food restrictions. just moderation.. What does ice blocks mean?? Yes I am still urinating..how long until that stops ? I am trying to get pd working (has been in since Feb but since o/r table have not been able to get working) but was told if I do pd I will continue to urinate..I hate that they are not giving me all the info but am so so happy I found this site. ..thanks
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Ang
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« Reply #6 on: June 18, 2008, 08:44:05 PM » |
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ice blocks is water put in a tray with 12-15 tiny compartments then placed in your freezer for a couple of hours then you just suck on a few to quench your thirst,you have to work out what works best for you. ask questions, information is power,cause you can't always rely on dialysis staff to always do the right think by you.
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live life to the full and you won't die wondering
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Ang
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« Reply #7 on: June 18, 2008, 08:46:57 PM » |
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when you stop urinating is anyones guess, its an individual thing i lasted about 6 months,
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live life to the full and you won't die wondering
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Robby712
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« Reply #8 on: June 18, 2008, 08:59:45 PM » |
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Eh, I don't booze at all anymore. One doesn't do anything for me and more than that and I feel like garbage the next day... I do miss it quite a bit though. Not so much the "getting a buzz" part...but just the social aspects more than anything. If you've ever gone out with a group of friends whom are drinking and you're the only sober one it's can get kinda miserbale...although they have had a reliable designated driver for some time now.
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flip
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« Reply #9 on: June 18, 2008, 09:10:22 PM » |
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I still drink in moderation with no harmful effects but you also should consider that: (a) I'm not diabetic and don't have any liver problems (b) I'm on no meds other than vitamins and (c) I still have good urine output.
I guess if fluid ever gets to be a problem, I'll have my bourbon straight.
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That which does not kill me only makes me stronger - Neitzsche
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keith
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« Reply #11 on: June 18, 2008, 09:36:57 PM » |
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dat is ur call just b mindful of wat u drink here to u
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Life ain't Life wit out Me!!! U Heard Me Transplanted on 12-6-2007 on dialysis7+yrs Started Dover dialysis support group. A group for patients, familyand friends. NOW RUN-Tel-Dat
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KICKSTART
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« Reply #12 on: June 19, 2008, 02:52:34 AM » |
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Fluid is fluid no matter what form , just as long as you count that beer as part of your intake although i was told 'shorts' are better than a beer if your going to drink (because its purer) As for urine output well im still going after 7 years!!!! As long as you do it in moderation but remember it takes longer to get it out of your system now , so be carefull say like if your going to drive !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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lola
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« Reply #13 on: June 19, 2008, 06:34:18 AM » |
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Otto still will have a beer or 2 now and then BUT his Dr said enjoy fluid while you can. He still pee's so
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KR Cincy
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Home hemodialysis since May 07
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« Reply #14 on: June 19, 2008, 07:34:23 AM » |
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If you can, you should! I've been told not to...having no kidneys means easy drunk, nasty hangover when the machine pulls the alcohol out. My neph just thinks I really won't enjoy the feeling...but I miiss it, oh BOY do I miss it. And it's like Robby said...I don't want to get drunk, but the social aspect of wine with dinner with friends, or holding a bottle of beer at the bar while watching a game is something I miss terribly. The plastic glass of Sprite just isn't the same.
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Not giving up...thanks to Susan.
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skyedogrocks
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Rob showing off his pot of gold!
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« Reply #15 on: June 19, 2008, 08:46:34 AM » |
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I say go for it, just don't overdo it. Rob has a beer every now and then along with some binders. He also has a cheeseburger now and then too (again with his binders). His levels are fine and he's feeling great. Then again, he does home hemo, so he's dialyzing a lot more than in center.
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
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angela515
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« Reply #16 on: June 19, 2008, 09:47:55 AM » |
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My doctor explained it like this: Enjoy life.. having *a* beer isn't going to hurt you, count it as your fluids, and just like when you enjoy foods you shouldn't have/have lots of, don't over do it, and take your binders. As for how long peeing will last... everyone is different, and some people will always urinate a little, and other's will lose it completely. I personally think if you are keeping your labs in good range, maybe it will last longer and have some control over it... but then again, some people lose urination no matter how good labs are. Just watch your weight gain from the fluids in between dialysis treatments and you will be fine. Good luck and enjoy life.
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Live Donor Transplant From My Mom 12/14/1999 Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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pelagia
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« Reply #17 on: June 19, 2008, 09:50:33 AM » |
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My husband's nephrologist told us a story about a dialysis patient who would go out beer drinking on occasion. Apparently he would challenge an unsuspecting bar mate to a contest to see who could drink the most beer without peeing. That's one way to win a bet, I guess. I wonder how his dialysis center felt about him when he went in the next time! I think I remember reading that some of the dark beers are higher in phosphorus.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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IUNurse
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« Reply #18 on: June 19, 2008, 05:59:41 PM » |
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7 piglets: I don't think an occasional drink will hurt either.
I wanted to help answer your question about when the peeing will stop. As Angela said everyone is different. However, Hemo patients tend to lose whatever little kidney function (peeing) they have faster than PD patients do. It is linked to dehydration. So do your best to not let the hemo staff take too much weight off of you and make you crash.
By the way, how is your PD catheter working?
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It is not what you say to a patient that he will remember, it is how you made him feel.
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kidney4traci
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« Reply #19 on: June 19, 2008, 06:08:53 PM » |
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I have a drink every now and then - like they said, you just have to watch your fluids. I agree - enjoy life!
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Married - three children. Alports female, diagnosed ESRD 10/04 11/04 Hemo in clinic 6/07 hemo at HOME! 2/3/09 - Transplant from an angel of a friend!!!
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flip
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« Reply #20 on: June 19, 2008, 06:39:34 PM » |
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I had dialysis this afternoon and I'm having a drink right now. I must confess that I feel pretty damn good.
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That which does not kill me only makes me stronger - Neitzsche
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7piglets
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« Reply #21 on: June 19, 2008, 07:09:02 PM » |
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thanks everyone. .. I must say one thing is I have not been told to 'watch' fluids or calculate anything so for those who say count it as your fluid.. I dont really know what that means. I think tomorrow I am going to tell hubby I am going to go out with some friends to tiki bar site outside and have an ice cold draft beer I cant wait .. As for my pd (for who asked ) still not working..It has been in since Feb and I am having NO luck finding a dr fix it. However, now that I started at dialysis center someone over heard me talking about how I so wish it worked (given hubby works second shift and we have the little ones it would make my life somewhat normal) and she said she knows of a dr who is suppose to be a specialist with the pd..so I go to him next Thurs.. (fingers and toes crossed he can get it to work) but anyway thanks for asking.. To everyone else ..cheers to you
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RichardMEL
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« Reply #22 on: June 20, 2008, 12:53:50 AM » |
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7piglets - YES!! Have a couple of beers!! Right now you are one of the lucky ones (must come with the looks ) not having any fluid restrictions... you can be assured (alas) at some point they will kick in... so I say drink and enjoy while you can. Not heaps.. but just enjoy yourself without going overboard. One tip with the fluids since you're not on any restrictions yet - you'll know if you've had too much if you find breathing hard - this is an indication that you could be overloading on fluid.. also watch your ankles for fluid retention.. if you find that you're retaining fluid best to go minimal and talk to the neph or dialysis staff. I have a friend (also amazingly good looking) who has been on hemo for 8 months or so and goes out almost every weekend... she has no fluid restrictions and if I didn't lust after her I'd be insanely jealous!!! As it is I'm just envious Anyway, yes enjoy some beers... and have one for me please! (Incidently while I AM on fluid restrictions I have a beer every so often...the most I'll have though is 2 - not so much for the labs or anything like that but simply for the amount of flud - 2 beers=over 600ml! )... it's easy to rack up the fluids when you're not thinking about it).
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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KICKSTART
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« Reply #23 on: June 20, 2008, 08:16:51 AM » |
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« Last Edit: June 20, 2008, 08:55:01 PM by kitkatz »
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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boxman55
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« Reply #24 on: June 20, 2008, 09:47:33 AM » |
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There's nothing like an ice cold beer on a hot day!
If you've been working outside when it's hot, you've probably lost enough fluid to have 12 onces.
If you're really concerned about the fluid volume, then have a Jack Daniels on the rocks. It's all about moderation in food and drink ... and the 48 hours between hemodialysis treatments.
Amen on the jack and moderation...Boxman
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008
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