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Author Topic: You guys ROCK!!  (Read 4819 times)
DavitaIsOK
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« on: May 28, 2008, 01:50:58 PM »
I don't have much experience with forums like this, but I can't imagine a more supportive group of people.  I have been reading for hours and I am touched by the compassion and empathy that I can actually feel in your posts.  I am grateful to bear witness to this type of kindness and openness.  You are a blessing and an inspiration.


Edited: Moved to proper section - okarol/admin
« Last Edit: May 28, 2008, 02:00:59 PM by okarol » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: May 28, 2008, 02:02:40 PM »

You're right, it's a very special group of people and I am proud to be part of this family!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lori1851
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This is me Lori , Dustin's mom
« Reply #2 on: May 28, 2008, 02:04:37 PM »
Ditto!!!!! Love you all!!!!
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KICKSTART
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In da House.
« Reply #3 on: May 28, 2008, 02:09:54 PM »
Without this group i wouldnt be here , no one could ever understand how much a group of people , most who have never met , can lift each others spirits.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
monrein
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Might as well smile
« Reply #4 on: May 28, 2008, 02:14:34 PM »
Yep, me too, I'm proud to be
An active member of IHD.

Glad you could join us too DIO.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
007
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« Reply #5 on: May 28, 2008, 06:28:19 PM »
I agree, after one time on this website (for a few hours of course!), I had to sign up!  I find it is a good way to keep me inspired.  It is good to see that some patients do really care about their lives and their health.  Not to mention they care for and support each other.  This website helps me to remember why I wanted to be a nurse in the first place-to help others!
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paris
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« Reply #6 on: May 28, 2008, 07:44:19 PM »
Three years ago, I would have never turned to the internet for support.  Now I have made some of the best friends I have ever had. We are a very close group and look to each other for answers and especially for support.  Love you guys! :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #7 on: May 30, 2008, 08:10:54 AM »
I agree this forum is unique and I am proud to be part of it.
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Ken
oleboy
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« Reply #8 on: May 30, 2008, 08:26:56 AM »
:grouphug; I came here and found the answers from people that knew what I was going through, they quickly became my family and for that I am truly Gratefull, Thanks everyone!



EDITED: Fixed icon error -  Bajanne, Moderator
« Last Edit: May 30, 2008, 11:09:46 AM by bajanne2000 » Logged
'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
rose1999
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« Reply #9 on: May 30, 2008, 08:43:09 AM »
I'm another who would never have joined an Internet group before finding IHD.  I tried Facebook and didn't like it.  Here I feel right amongst friends and family.  Comfortable, welcome and loved  :grouphug;
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Romona
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« Reply #10 on: May 30, 2008, 09:13:30 AM »
 :yahoo; I love all of you too! I love all the info and sharing!
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lola
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I can fly!!!
« Reply #11 on: May 30, 2008, 09:37:20 AM »
 :guitar: :-*xoxoxox love you ALL
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www.caringbridge.org/visit/ottomachado
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #12 on: May 30, 2008, 10:33:54 AM »
 :grouphug; :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kidney4traci
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« Reply #13 on: May 30, 2008, 11:03:53 AM »
ditto
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Earlinda
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« Reply #14 on: May 30, 2008, 11:10:07 AM »
Someone please pass a kleenex.   :'(  Sometimes I don't know what I would do if it weren't for everyone here at IHD.  Especially since I do home hemo now and do not have a lot of interaction with the outside world.  I feel like you all are family and will listen to whatever it is that is on my mind.  Thank you to all!!

Earlinda
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: May 30, 2008, 11:17:49 AM »
Thank so much for "getting it".  This has got to be one of the most special forums on the entire Internet, I am convinced. 
The level of caring and sharing us just awesome, and not just words.  In many wonderful and tangible ways.  A very special young man had a vision and he built this site and put many things into place to  ensure its longevity even after his death (we didn't think he would be gone from us that quickly) and we continue to move on and expand.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Robby712
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« Reply #16 on: May 31, 2008, 03:16:51 PM »
Yep.  I've only been around a week or so and I check in regularly...  I've already used info gathered from one or two posts at the Doc's office on one occasion.  :)
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G-Ma
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« Reply #17 on: July 28, 2008, 06:59:34 PM »
 :big hug:
Yes, what everyone said.  I am so grateful I found this site and you all.  I feel like even if I have an emergency (non immediate life threatening) of some kind at home I can get an immediate answer on here rather than trying to call a clinic and wait through all the hold messages as most everything someone has gone through and we can find out from each other what thinigs to question or watch for.  Thanks all.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #18 on: July 29, 2008, 07:50:56 AM »
Sorry everyone... I don't rock.... I'm more of a classical buff.....

 :shy;

But seriously... yes this is a great community! Epo's dream made reality.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
G-Ma
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« Reply #19 on: July 29, 2008, 08:03:20 AM »
So, does that mean you are a """Classy Rock"""???   :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #20 on: July 29, 2008, 08:07:49 AM »
I'm not too sure there's much class about me....

though I have been called a rock by some friends which is nice to hear... Well I assume they mean it as in stable and sure, rather than "thick as a..." sense :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
G-Ma
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« Reply #21 on: July 29, 2008, 08:11:01 AM »
R...........so just take the compliment and say TYVM.........so there.    :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #22 on: July 29, 2008, 08:20:45 AM »
Thank You very much....


(I'll just be over here in the corner blushing...)
 :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
G-Ma
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Posts: 2191
« Reply #23 on: July 29, 2008, 08:37:37 AM »
Be careful in the corner...don't sit on my dust bunnies..... :rofl;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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