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Author Topic: FREE FOR PATIENTS AND ONE GUEST - Patient Meetings  (Read 3499 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 28, 2008, 12:43:56 PM »
The Renal Support Network presents the 2008 Regional Patient Lifestyle Meetings
For People with Kidney Disease -- Health, Happiness & Hope!

REGISTER EARLY  -  FREE FOR PATIENTS AND ONE GUEST  -  BRUNCH INCLUDED

West Chester, OH
Sunday, June 8, 2008
11:00 am - 5:00 pm
Savannah Center, 5533 Chappell Crossing Blvd., West Chester, OH  45069
REGISTER BY MAY 30! Register online at RSNhope.org

Houston, TX
3rd Annual Meeting
Sunday, June 22, 2008
10:30 am - 3:30 pm
Marriott Westchase, 2900 Briarpark Drive, Houston, TX  77042
REGISTER BY JUNE 13!  Register online at RSNhope.org

Denver, CO
3rd Annual Meeting
Sunday, July 13, 2008
11:00 am - 5:00 pm
Renaissance Denver Hotel, 3801 Quebec Street, Denver, CO  80207
REGISTER BY JUNE 27! Register online at RSNhope.org

Upcoming 2008 PLM Meetings--Locations and Dates
8/10/08 Tulsa OK
8/17/08 Seattle, WA
8/24/08 Torrance, CA
9/14/08 Pittsburgh, PA
9/14/08 Las Vegas, NV
9/20/08 Indianapolis, IN
10/5/08 Boston, MA
11/2/08 Albany, NY
and more to come...
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Neo
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Dont let dialysis stop you...
« Reply #1 on: May 28, 2008, 01:05:50 PM »
Anything in florida??
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: May 28, 2008, 01:08:01 PM »
Quote from: Neo on May 28, 2008, 01:05:50 PM
Anything in florida??

Not in the next couple of months, from what I can tell, but you can call them to find out: Contact RSN 866-903-1728 (toll free) for more information.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KICKSTART
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In da House.
« Reply #3 on: May 28, 2008, 02:18:04 PM »
Er ..just a little bit too far for me !  ;D
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paddbear0000
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« Reply #4 on: May 30, 2008, 06:31:08 PM »
Hey! West Chester is right near us! That's where my husband grew up. Too bad I have finals the next day.  :P
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: June 24, 2008, 07:50:54 PM »


I have been to 2 of these meetings and they were both great. Plus they give you lunch AND free stuff too.
I will be in Denver this weekend - too bad it's 2 weeks too early!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Adam_W
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Me with Baron von Fresenius
« Reply #6 on: June 24, 2008, 08:15:49 PM »
I'll have to mark my calender for 9/20 for the one in Indy.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
flip
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« Reply #7 on: June 24, 2008, 08:20:35 PM »
I'll probably do the one in Indy since I have tickets for the Colts game the next day. What a weekend !
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lruffner
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« Reply #8 on: June 30, 2008, 08:20:57 PM »
Quote from: flip on June 24, 2008, 08:20:35 PM
I'll probably do the one in Indy since I have tickets for the Colts game the next day. What a weekend !

So Flip, who are ya doing to get Colts tickets...hehe  :sarcasm; I am just joking....or jealous...which is it? hmmmmm? lol

I will sign up for the one in Indy too, since I am up there so much anyway. Keep me posted, will ya?
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

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st789
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« Reply #9 on: June 30, 2008, 08:30:13 PM »
Yeah, Torrance here I come in August.
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flip
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« Reply #10 on: June 30, 2008, 09:11:44 PM »
got lots of family in Indy
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That which does not kill me only makes me stronger - Neitzsche
rsood2004
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Me and my baby Kyle
« Reply #11 on: July 06, 2008, 03:43:35 PM »
Any near Ohio? Michigan? I'm from Rossford Ohio (near Toledo) would love to go to one of these meetings. I enjoy meeting other people in my situation and learing more about dialysis and reanal issues. Thanks in advance.
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Laurie
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“There is nothing wrong with being afraid---but there is nothing more wrong than allowing that to be your master.”
“What we do for ourselves dies with us. What we do for others and the world remains and is immortal.”-Joan of Arc
flip
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« Reply #12 on: July 06, 2008, 04:11:25 PM »
Don't forget the IHD meeting in Chicago. It should be both informative and entertaining.
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That which does not kill me only makes me stronger - Neitzsche
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: July 26, 2008, 01:14:47 AM »
Quote from: rsood2004 on July 06, 2008, 03:43:35 PM
Any near Ohio? Michigan? I'm from Rossford Ohio (near Toledo) would love to go to one of these meetings. I enjoy meeting other people in my situation and learing more about dialysis and reanal issues. Thanks in advance.


The meeting in Ohio was in June, but they will have another I'm sure.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: July 26, 2008, 01:26:40 AM »
Upcoming Meetings:

Tulsa, OK
Sunday, August 10, 2008
11:00 am - 5:00 pm
Marriott Tulsa Southern Hills, 1902 East 71st St., Tulsa, OK  74136
REGISTER BY AUG 1! Register online at RSNhope.org

Seattle, WA (Oh boy! Meet Bill Peckham!)
Sunday, August 17, 2008
10:00 am - 4:00 pm
Red Lion Hotel Bellevue, 11211 Main St., Bellevue, WA  98004
REGISTER BY AUG 8! Register online at RSNhope.org

Torrance, CA
Saturday, August 24, 2008
2nd Annual Meeting
11:00 am - 4:30 pm
Doubletree Hotel Torrance/South Bay, 21333 Hawthorne Blvd., Torrance, CA 90503
REGISTER BY AUG. 15! Register online at RSNhope.org

Indianapolis, IN
Saturday, September 20, 2008
10:00 am - 4:30 pm
Hilton Indianapolis North, 8181 North Shadeland Ave., Indianapolis, IN 46250
REGISTER BY SEPT 12! Register online at RSNhope.org
« Last Edit: August 07, 2008, 12:38:44 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
peleroja
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« Reply #15 on: July 26, 2008, 06:39:19 AM »
I went to one a couple of years ago and even won a $25 Shell gas card (which would buy about 1/2 a gallon of gas today).  I'll be at the one in Torrance on 8/24.
« Last Edit: July 26, 2008, 12:10:00 PM by peleroja » Logged
Meinuk
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« Reply #16 on: July 26, 2008, 11:42:17 AM »
The Seattle Meetings is being co-hosted by our own Bill Peckham.

Here is a the agenda:

http://www.billpeckham.com/from_the_sharp_end_of_the/2008/07/seattle-august.html


Seattle Patient Lifestyle Meeting

Agenda

        10:00        Registration, Brunch, Visit the Exhibits

         11:00        Introduction, RSN Overview       
                              Sharon Pahlka, CLC, kidney patient
                              Bill Peckham,  dialyzor

        11:15        Protecting Your Kidneys - Living Longer and Healthier in the Face of Kidney Disease
                             Suhail Ahmad, MD

        12:15    Home Dialysis: Back to the Future
                             Sandra Glenn, RN, BA, CNN

        12:45    Kidney Survivor: Lessons Learned from Experience
                             Sharon Pahlka, CLC, kidney patient

        1:30          Break, Raffle

        1:45    Kidney Research—Today and Tomorrow
                    Jonathan Himmelfarb, MD

        2:30    Disaster Preparedness
                    Sharon A. Badger, RN
                    Aaron Herold, LICSW

        3:00    Living Well and Long—Patient Panel
                    Moderator: Sharon Pahlka, CLC, kidney patient

        3:45    Raffle, Evaluations, Adjourn

It will be a fun and informative meeting, be sure to REGISTER BY AUG 8!

Registration online is quick and simple or download the flyer  http://www.billpeckham.com/from_the_sharp_end_of_the/files/PLM_Seattle_Flyer.pdf.

 
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #17 on: August 07, 2008, 12:40:45 AM »
Quote from: peleroja on July 26, 2008, 06:39:19 AM
I went to one a couple of years ago and even won a $25 Shell gas card (which would buy about 1/2 a gallon of gas today).  I'll be at the one in Torrance on 8/24.

I am also planning to attend the August 24th meeting in Torrance. If anyone else is near Southern California - I hope you can come too!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
frankenarm
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« Reply #18 on: August 10, 2008, 11:27:18 PM »
Im actually going to the Seattle one... Which, in reality is in Bellevue. But it should be interesting, and my mom is going with me. so im excited.
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"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
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