Got my Labs done

[devon]

I got my labs done yesterday and the creatinine is just not cooperating!  It was 6.7 this time.  Last time I was tested (back in April) it was 6.0.  I hoped it would be down. Dang.  As I see it, I'll probably be in dialysis by the end of the summer. 

It's a mixed set of feelings for me.  On the one hand, it's a defeat because I've been fighting against dialysis for several years.  On the other hand, I'm optimistic I will feel better and more energized once I start dialysis.  The lethargy really gets me down emotionally.  I don't like feeling so tired all the time.

Also, lately I have been getting that "metallic" taste in my mouth and the "ammonia" sensation that's been described here.  It was very strange the first time I got it.  But thanks to IHD I knew what it was and that was somewhat comforting.

My next appointment is June 16 with the neph.  We'll see what he says.

-Devon

[rose1999]

Aw Devon, sorry to hear this, but I think you are right to look on the bright side and not see it as defeat but as a way to feel better.  Fingers crossed that it might be better news on 16 June. 

[monrein]

Hang in Devon.  I'll be thinking of you as you prepare for the next step, whenever that comes.  I kept trying to put it off too but now it's here for me so I'm working on trying to keep a good attitude and my spirits up.  The fatigue is overwhelming and the metal/ammonia breath is yucky so I hope relief comes soon for you.

[flip]

If your creatinine is 6.7, you will feel much better on dialysis. I have seen people who felt pretty good with levels that high but, for most of us, it's severe uremia. Good luck.

[Romona]

Devon, I'll be thinking of you. 

[Deanne]

  I'm sorry Devon!

[paris]

I'm sorry, Devon.  I wish the number would go down, too.   I, also, have the metallic taste and food tastes weird.  We'll all be thinking of you on the