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Author Topic: discontinuing kidney dialysis  (Read 6552 times)
okarol
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« on: March 03, 2008, 09:16:40 PM »
I came across this on the internet, thought it was interesting:

discontinuing kidney dialysis
by Patsy23, Dec 05, 2007 12:00AM
My 78-yr old mother, a Type 1 diabetic for 62 years, decided to quit her kidney dialysis after much consideration.  After a heart attack, her kidneys finally failed, and she was on dialysis for approx 2 years before she decided to quit.  She never felt any better after the dialysis treatments, in fact she felt worse on those days, and she also gained other symptoms such as sharp body pains and fainting spells.  It has been 13 months now since her last dialysis treatment, her creatinine remains around 3.3, and she has many of the symptoms of end stage renal failure, but she keeps on going!  Everything we read on the Internet says most people pass away within weeks/months of discontinuing dialysis, so we don't know what to expect.  She doesn't want to continue feeling lousy all the time, and her doctors keep increasing her medications - to help with nausea, tiredness, recent drastic vision loss, etc.  Do you know of many cases where someone lives for over a year with minimal kidney function?  Her doctors aren't any help explaining what's happening to her, and I live 6 states away!

http://www.medhelp.org/perl6/diabetes/messages/1883.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #1 on: March 04, 2008, 01:06:40 AM »
Now that would be miserable!
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boxman55
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« Reply #2 on: March 04, 2008, 05:53:17 AM »
I guess with her creatinine at 3.3 she has some kidney function but didn't she stop treatment for a reason? that reason being to pass. Instead she is going through hell...don't get it...Boxman
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okarol
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« Reply #3 on: March 04, 2008, 10:42:22 AM »
Reminded me of Art Buchwald, he quit dialysis and was in hospice care, but lasted a lot longer than anyone expected. http://ihatedialysis.com/forum/index.php?topic=2044.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
stauffenberg
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« Reply #4 on: March 04, 2008, 11:00:30 AM »
Although of course they cannot admit to this practice openly, most hospices will give the patient a bolus of morphine, ostensibly for 'pain control,' to end the misery in cases such as this. 

Failing that, you can always take the patient to Switzerland, where the physicians who work for the organization 'Dignitas' will help her die quickly and painlessly.  This service, which costs only a nominal fee, is available to any patient in endstage misery regardless of nationality, and is perfectly legal in an enlightened country like Switzerland.  Dignitas has an internet site where you can contact them, explain the situation, and arrange for the service, which unfortunately can only be performed in Switzerland.
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boxman55
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« Reply #5 on: March 04, 2008, 01:36:11 PM »
Can you do a little sight seeing first.  ;D ...Boxman
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« Reply #6 on: March 04, 2008, 01:40:33 PM »
Quote from: boxman55 on March 04, 2008, 01:36:11 PM
Can you do a little sight seeing first. ;D ...Boxman


 :rofl; :rofl; :rofl;  Would skiing be an option, too, before the "procedure"?  (Well, heck, it would have to be "before" the procedure, now wouldn't it?  That was a dumb thing for me to say.  :banghead;)
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stauffenberg
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« Reply #7 on: March 04, 2008, 07:34:26 PM »
The way I ski, I wouldn't need the procedure afterward.
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rose1999
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« Reply #8 on: March 04, 2008, 10:50:28 PM »
Quote from: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.

 :rofl; :rofl; :rofl;
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« Reply #9 on: March 05, 2008, 12:23:02 AM »
Quote from: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.

 :rofl; :rofl;  Good one, Stauffenberg!
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KT0930
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« Reply #10 on: March 05, 2008, 09:31:38 AM »
Quote from: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.

OMG!! Stauffenberg has a sense of humor?? Who knew?  :o
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« Reply #11 on: March 05, 2008, 10:31:18 AM »
Quote from: KT0930 on March 05, 2008, 09:31:38 AM
Quote from: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.

OMG!! Stauffenberg has a sense of humor?? Who knew? :o

KT -- when I read that post, I had to look twice -- no, three times -- until it finally sunk in that it really was from Stauffenberg.  He does have a sense of humor!!  :bandance;

Stauffenberg -- that's a side of you I've never seen here, but, I like it -- oh, I like it!!!  :thumbup;   How about showing that side of yourself more often?  It's quite becoming on you.
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kidney4traci
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« Reply #12 on: March 05, 2008, 11:04:25 AM »
A post from you Stauffenberg that aatually made me laugh!  Wow, who knew you had it in ya!  Want to go skiing???   :rofl;jk!  Good to see another side of you!
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« Reply #13 on: March 05, 2008, 11:44:56 AM »
See Stauffenberg make us ladies laugh and we're putty in your hands. :2thumbsup;
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BigSteve
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« Reply #14 on: March 05, 2008, 12:52:58 PM »
C'mon now,  take it easy on Stauffenberg or he will never be humorous again!
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« Reply #15 on: March 05, 2008, 01:00:25 PM »
Wow, that is something, Stauffenberg made me laugh too. 
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« Reply #16 on: March 05, 2008, 02:00:06 PM »
We love you, Stauffenberg!!   :grouphug;
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BobT1939
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« Reply #17 on: March 08, 2008, 11:02:58 AM »
Stauffy, the most erudite poster on IHD, possessed of the blackest life attitude has a sense of humor? An amazing turn of events. Perhaps a posting Pulitzer is in the offing?/bobt
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« Reply #18 on: March 14, 2008, 08:44:14 AM »
Having seen this humurous post from Staufenberg I *KNOW* my transplant call is right around the corner!! There's nothing else left in life to see so it HAS to be now!!! :D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

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« Reply #19 on: March 14, 2008, 12:04:20 PM »
Oh i am so glad it isnt only me that thought stauffenberg was a serious person  and just gave us the  factual stuff !!
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« Reply #20 on: March 14, 2008, 12:39:38 PM »
Quote from: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.

A tree, ooops a tree!
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #21 on: March 14, 2008, 03:42:57 PM »
C'mon Stauph where are you on this, you've shown your human side, now respond further.  Stauph Stauph  Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph

Actually it was Stauphenburg that turned the 'Any More Brits out There on Dialysis' thread into the Kingdom thread that it became when because he had spent some of his life in Britain he asked if he could become an honorary Brit. The rest as they say is history. Check it out on page one.
« Last Edit: March 14, 2008, 03:52:31 PM by Ken Shelmerdine » Logged
Ken
okarol
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« Reply #22 on: March 14, 2008, 04:49:32 PM »
Ha! The brits got a "Stauf Infection" Hehehehe  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kidney4traci
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« Reply #23 on: March 14, 2008, 07:58:56 PM »
Ah, good one Karol! :rofl;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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« Reply #24 on: March 15, 2008, 02:49:16 PM »
Quote from: okarol on March 14, 2008, 04:49:32 PM
Ha! The brits got a "Stauf Infection" Hehehehe  :rofl;

 :rofl; :rofl; :rofl; :rofl;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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