|
kidney4traci
|
 |
« on: February 28, 2008, 04:51:12 PM » |
|
I had a friend from church call me today and say that she and her husband both want to be tested to see if they could donate to me. Although I have already had 6 people try without a match, I still get a little hopeful that this may be the one... I have a high antibody count (PRA???) of 98%. There are several of you on the board who are much more familiar with the lingo than me. Anyway, just wanted to share the news and maybe have some of you pray that it might work out. Thanks.
|
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
tamara
|
|
« Reply #1 on: February 28, 2008, 04:58:01 PM » |
|
|
|
|
|
|
Logged
|
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
|
|
|
|
mariannas
|
|
« Reply #2 on: February 28, 2008, 05:00:08 PM » |
|
Congratulations! I'm always (not that it happens everyday) so touched when someone who is not in my immediate family offers to donate. I also am sensitized (80% or so) so none of mine have panned out yet, either. Fingers crossed one of these folks is a match!!!
|
|
|
|
|
Logged
|
|
|
|
|
okarol
|
|
« Reply #3 on: February 28, 2008, 05:06:38 PM » |
|
Hey Traci,
This transplant stuff can be a real roller coaster, so hang in there. Thank God there are some really amazing donors in the world!
I am sorry if you've already covered this, but doesn't your transplant team offer plasmapheresis to lower your PRA?
Good luck!
|
|
|
|
|
Logged
|
|
|
|
|
willieandwinnie
|
|
« Reply #4 on: February 28, 2008, 05:14:43 PM » |
|
Good Luck kidney4traci.  I'll continue to say a prayer for you. |
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
|
kidney4traci
|
|
« Reply #5 on: February 28, 2008, 06:06:13 PM » |
|
Karol, I believe I did talk to them about it and they said they either don't do it or would consider it if they had a close enough match that my body wouldn't fight it.  Does that make any sense to you? |
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
kidney4traci
|
|
« Reply #6 on: February 28, 2008, 06:08:04 PM » |
|
Thanks everyone, I do get a bit de-sensitized from this and try not to get too anxious... and Tamara I got a big kick out of your icons!!  |
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
paris
|
|
« Reply #7 on: February 28, 2008, 06:19:46 PM » |
|
Traci, find out more information from your transplant co-ordinator about the PRA situation. If they don't have any protocols to help lower the PRA, start doing research on transplant centers in a 3 hour radius of your home. My first center doesn't do it and I had to make calls myself to find a center who will. If you have a good match, they will still need to lower your PRA for you body to accept the new kidney and not reject it. Jill D. and Vandie have had procedures to lower their PRA's. Jill had a living donor with plasmapheresis and Vandie had IVIG therapy and received a cadaver kidney. I am trying to get accepted in a new program at my first center with IVIG therapy. I have learned to ask question and then more questions and then find out the answers for myself. Thank goodness for the internet and for IHD!! I'll keep saying prayers for a match for you.
|
|
|
|
|
Logged
|
 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
|
Joe Paul
|
|
« Reply #8 on: February 28, 2008, 11:10:11 PM » |
|
Good luck Traci  |
|
|
|
|
Logged
|
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
|
|
|
|
angellady07
|
|
« Reply #9 on: February 29, 2008, 12:04:39 AM » |
|
Traci, I'm praying for you. Keep us posted. |
|
|
|
|
Logged
|
|
|
|
|
rose1999
|
|
« Reply #10 on: February 29, 2008, 04:12:32 AM » |
|
Good luck, hope it's good news this time. |
|
|
|
|
Logged
|
|
|
|
|
2_DallasCowboys
|
|
« Reply #11 on: February 29, 2008, 04:20:12 AM » |
|
Good Luck To You!!!!  Anne |
|
|
|
|
Logged
|
|
|
|
|
KT0930
|
|
« Reply #12 on: February 29, 2008, 06:26:36 PM » |
|
Good luck, traci! It always feels so humbling when someone offers to get tested. It amazed me how generous people are.
I also was highly sensitized (93%), but was able to get 6 out of 6 from the list. Before you get completely discouraged, ask your coordinator about your antigen profile. I got two calls within a month of each other, and got the kidney the second time. I asked about that, since with such a high PRA, I wouldn't have expected two calls so close together. Apparently some antigen profiles are more common than others, and that can make your wait much shorter than you might expect, if you have a common one. Just something to keep in mind. Best of luck to you!!
|
|
|
|
|
Logged
|
"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
|
|
|
|
kidney4traci
|
|
« Reply #13 on: March 05, 2008, 08:24:26 PM » |
|
We go in tomorrow to give our blood. As my friend put it to her son, let's hope our blood "plays nice together"! Thanks for your support. We had a really great prayer night about it at church. Just to pray about it felt good. What ever - it is in God's hands and His timing of it all. |
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
kellyt
|
|
« Reply #14 on: March 05, 2008, 08:42:10 PM » |
|
|
|
|
|
|
Logged
|
1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
|
|
|
paris
|
|
« Reply #15 on: March 05, 2008, 09:48:45 PM » |
|
Maybe this will be the perfect one! I'll keep you in my prayers |
|
|
|
|
Logged
|
It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
|
rose1999
|
|
« Reply #16 on: March 05, 2008, 10:28:58 PM » |
|
Good luck, I too will pray for you. |
|
|
|
|
Logged
|
|
|
|
|
jbeany
|
|
« Reply #17 on: March 05, 2008, 10:48:49 PM » |
|
|
|
|
|
|
Logged
|
"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
|
|
|
Joe Paul
|
|
« Reply #18 on: March 05, 2008, 11:17:06 PM » |
|
I hope this is your kidney, good luck |
|
|
|
|
Logged
|
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
|
|
|
|
willieandwinnie
|
|
« Reply #19 on: March 06, 2008, 04:17:19 AM » |
|
kidney4traci. Saying a prayer that this is the one.
|
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
|
kidney4traci
|
|
« Reply #20 on: March 06, 2008, 06:24:23 AM » |
|
THanks guys - I checked this morning for this as I new I could count on some support - YOU GUYS ARE AWESOME!!!!!!   |
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
Beth36
|
|
« Reply #21 on: March 08, 2008, 06:01:00 PM » |
|
I just want to say good luck and I hope this is it for you!!!
Beth
|
|
|
|
|
Logged
|
Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
|
|
|
|
Wattle
|
|
« Reply #22 on: March 08, 2008, 10:41:48 PM » |
|
let's hope our blood "plays nice together"!
They have ways of making you behave  Good luck Traci |
|
|
|
|
Logged
|
PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
|
|
|
|
kidney4traci
|
|
« Reply #23 on: March 25, 2008, 05:58:54 PM » |
|
Well we got the call finally today and she is not a match. Apparently I fight too much with everyone! And I am such a mellow person!!! Anyway, I did ask her abot the plasmaphoresis and they did start doing that at this hospital about a year ago. She will review my file to see if any of the other potential donors would be an option for that. They only do it if they can find that I have like two or three of the antibodies already that don't fight. Will keep you posted...
|
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
okarol
|
|
« Reply #24 on: March 25, 2008, 06:03:52 PM » |
|
 Awww man, that sucks! You seem so easy to get along with! I hope they can work this out and find a solution for you traci!
|
|
|
|
|
Logged
|
|
|
|
|
I Hate Dialysis Message Board
Author
