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Dialysis: Traveling Tips and Stories
Onward to the Grand Canyon...
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Topic: Onward to the Grand Canyon... (Read 7451 times)
aharris2
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Volcan Pacaya, Guatemala
Onward to the Grand Canyon...
«
on:
February 09, 2008, 04:26:28 PM »
Chapter One - After meeting with kitkatz, okarol, and livecam in LA, Rolando and I headed back to Las Vegas for Thursday and Friday dialysis and then, onto the Grand Canyon ... or so we thought. Thursday was uneventful. We arrived in LV late morning Thursday after a very enjoyable drive through the Mojave Desert. Rolando went to dialysis and then we went to a show that night.
Friday, we were going to dialysis and then on to the Grand Canyon. The first problem was our schedule - instead of the usual late morning dialysis, they scheduled us for 2:30pm. With a 4 1/2 hour run, that would put us on the road to the Grand Canyon at 7 pm - a 5 hr drive. Well, we sucked it up and planned an overnight stay at the halfway point with an early morning Saturday arrival at the Grand Canyon instead.
It seemed that fate would have nothing to do with that! Instead, 45 minutes before the end of dialysis, Rolando's catheter pulled most of the way out of his chest and one of the cap ends fell off. Friday evening! Any other day, we could simply have had it dealt with at an outpatient facility the next day. The dialysis unit took it quite lightly and suggested waiting until Monday morning to get it taken care of. We called the home unit here in Tampa. They strongly recommended going to the ER because of the loss of the cap end. We went back and forth for a while, wanting to see the Grand Canyon, but decided instead to delay it and go to the ER Friday night. They dressed it, prescribed antibiotics, and told us to come back the next morning to get the catheter replaced, which we did. We were finally on our way to the Grand Canyon at 4:30 Saturday afternoon.
«
Last Edit: March 03, 2008, 06:43:54 PM by aharris2
»
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
aharris2
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Volcan Pacaya, Guatemala
Re: Onward to the Grand Canyon...
«
Reply #1 on:
February 09, 2008, 04:28:52 PM »
Chapter Two - We arrive at the Grand Canyon Saturday night. It was cold, but the ride was uneventful. we had a room in Maswik lodge inside the park - nice, comfortable. The next morning, Superbowl Sunday morning, I got up and looked out the window. It was pure white. Snowing. Blizzard conditions. A 4 foot snow drift outside of our window. I called the front desk and they tell me that those conditions will continue until midday Monday. The first problem was food. Getting from the room to the car to the lodge in a wheelchair in the fresh snow is quite an experience, but we did it, even though I haven't had to drive in the snow in 20 years. The next problem was seeing the Grand Canyon in blizzard conditions - you can't. We tried, but it is just like looking at a white wall - no canyon. Well, we had thought we would have to miss the Superbowl because of sightseeing in the Grand Canyon, but no. Watching the Superbowl was our only option. We got pizza, chicken, and beer and enjoyed a good game.
Monday came our real problem. Rolando needed dialysis back in Las Vegas - 5 hours away, but we were still snowed in. We scrambled. We got the Las Vegas unit to delay his dialysis until 2:30 pm, but that was still threatened. I had called DaVita Guest Services on Sunday to see if there were any units close to the Grand Canyon. There aren't!!! There was one in a remote location called Tuba City, 2hrs away, and a Fresenius unit in Flagstaff, 1 1/2 hrs away, but there was nothing more to do on Sunday. We called both units on Monday morning and found that all roads to Tuba City were closed so that left either Las Vegas or Fresenius in Flagstaff. Happily, the Fresenius unit went out of their way to accommodate us and scheduled us for afternoon dialysis 3 1/2 hrs instead of 4 1/2 hrs but better than nothing. The plows reached us at about 10:30 so we went to breakfast. While we were eating, we got a call inviting us in earlier for a full 4 1/2 hr session. Super! The roads were snowy, slushy, and then icy, but we got there. Thank God we had taken care of the catheter issue before going to the Grand Canyon - very lucky for Rolando (Yes, Rolando got lucky in Las Vegas
)
Best of all, because we were able to dialyze in Flagstaff, we were able to return to the Grand Canyon and try again to see it the next day, Tuesday. If we had had to go to Las Vegas for dialysis we would not have seen it. Tuesday was a beautiful day. although we had to fight the piles of snow and the snowy walkways with the wheelchair, we had some great views of the Grand Canyon. Happy and satisfied, and a bit wore out we headed back to Las Vegas at 5 pm to see a show at 10 pm and then to fly home the next day. It was quite an adventure!
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Last Edit: March 04, 2008, 06:08:55 PM by aharris2
»
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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Re: Onward to the Grand Canyon... Chapter One
«
Reply #2 on:
February 09, 2008, 04:29:26 PM »
Sorry for your troubles but I do
hope you
wish you would have enjoyed the Grand Canyon. What a turn of events that was. (reading your second post now)
«
Last Edit: February 09, 2008, 04:35:25 PM by Sluff
»
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kitkatz
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Re: Onward to the Grand Canyon... Chapter One
«
Reply #3 on:
February 09, 2008, 04:32:30 PM »
You guys and your trips! Exciting to say the least. It must have been amazing to have all of this happen to you just going to the Grand Canyon! I am glad you got to see it finally!
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Onward to the Grand Canyon... Chapter One
«
Reply #4 on:
February 09, 2008, 04:38:36 PM »
Wow that's a great description of your trip - Alene you are an amazing woman to do all that driving! I am glad everything worked out - that's a trip you won't soon forget!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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Re: Onward to the Grand Canyon... Chapter One
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Reply #5 on:
February 10, 2008, 10:52:25 AM »
My goodness, what a trip! Glad you got to see the Grand Canyon. Sorry you had such problems with dialysis and the weather not cooperating, though!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Joe Paul
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Re: Onward to the Grand Canyon... Chapter One
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Reply #6 on:
February 10, 2008, 02:41:33 PM »
What a trip!! Glad it all worked out though
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
lola
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I can fly!!!
Re: Onward to the Grand Canyon... Chapter One
«
Reply #7 on:
February 10, 2008, 02:55:09 PM »
Glad everything worked out for you guys. RICO I miss ya in chat
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aharris2
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Volcan Pacaya, Guatemala
Re: Onward to the Grand Canyon...
«
Reply #8 on:
March 04, 2008, 06:41:32 PM »
Chapter Three A - The Pics - "Wildlife"
1. Fox? Coyote? - What is that white stuff?
2. The Burros - No Rides Today.
3. The Deer - What white stuff? No matter...
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Onward to the Grand Canyon...
«
Reply #9 on:
March 04, 2008, 06:51:01 PM »
GREAT photos!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
aharris2
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Volcan Pacaya, Guatemala
Re: Onward to the Grand Canyon...
«
Reply #10 on:
March 04, 2008, 07:14:32 PM »
Chapter 3 B - More Pics - "Pretty (what?) in White"
1. Bench at Desert View
2. View from the Watchtower at Desert View (A)
3. View from the Watchtower at Desert View (B) UFO???
4. View from the Watchtower at Desert View (C)
5. Further west
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
aharris2
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Volcan Pacaya, Guatemala
Re: Onward to the Grand Canyon...
«
Reply #11 on:
March 04, 2008, 07:25:17 PM »
Chapter 3 C - And More Pics - "Sunset at El Tovar"
1. Going...
2. Going...
3. Going...
4. Going...
5. Yes, we're going. Gone..until next time!
Logged
Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
charee
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Re: Onward to the Grand Canyon...
«
Reply #12 on:
March 04, 2008, 07:33:17 PM »
beautiful pics , thanks for sharing
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
kitkatz
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Re: Onward to the Grand Canyon...
«
Reply #13 on:
March 04, 2008, 08:45:09 PM »
Wow! What pictures and memories you have!
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
CW
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Yeah .............That's me!
Re: Onward to the Grand Canyon...
«
Reply #14 on:
March 04, 2008, 09:45:59 PM »
Wow what an adventure! you guys did a fabulous job working around the unexpected issues. I am so jealous. You also took some wonderful shots of your adventure. You are both real troopers, bravo!
.
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*Common Sense is an uncommon thing
20 years navigating ESRD
Had a transplant but it rejected
To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night. I miss you like hell. ~Edna St Vincent Millay
Joe Paul
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Re: Onward to the Grand Canyon...
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Reply #15 on:
March 04, 2008, 10:05:54 PM »
Awsome pictures
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
rose1999
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Re: Onward to the Grand Canyon...
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Reply #16 on:
March 04, 2008, 10:49:28 PM »
Wow these are fantastic. Thanks for sharing them
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Wattle
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Re: Onward to the Grand Canyon...
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Reply #17 on:
March 05, 2008, 02:17:50 AM »
Beautiful Pictures.
Grand Canyon is now on my list!
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
KT0930
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Re: Onward to the Grand Canyon...
«
Reply #18 on:
March 05, 2008, 09:36:57 AM »
I used to live in Arizona, so have seen the Grand Canyon several times, but never in the snow. Beautiful! Thanks for sharing!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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