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Author Topic: I know best , im in housing , you ONLY have kidney failure  (Read 7803 times)
bolta72
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my best friend
« Reply #25 on: February 05, 2008, 10:51:25 AM »
 :thumbup; :thumbup; :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Adam_W
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Me with Baron von Fresenius
« Reply #26 on: February 05, 2008, 11:26:28 AM »
That's great news!  :bandance;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
KT0930
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« Reply #27 on: February 05, 2008, 11:33:11 AM »
Absolutely wonderful news, KickStart!!  :bandance;  :bandance;  :bandance; So glad to hear it!!!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
KICKSTART
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In da House.
« Reply #28 on: February 05, 2008, 12:48:14 PM »
Thanks everyone ..now who is for a decorating party when i get moved ? :rofl; :wine; :wine; :wine; :wine; :wine; :wine;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MyssAnne
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« Reply #29 on: February 05, 2008, 01:01:53 PM »
Just tell us when and where!!!! We'll be there!!! :beer1; :beer1; :beer1; :wine;
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Psim
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« Reply #30 on: February 05, 2008, 02:29:12 PM »
Decorating party? I'll be there. Maybe we should fix your bedroom up with some nice wallpaper... hmmm, let's see, something that really says "I Hate Dialysis"....

 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
 :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;  :banghead;
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #31 on: February 05, 2008, 02:30:21 PM »
 :rofl;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
KT0930
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« Reply #32 on: February 05, 2008, 02:34:37 PM »
Decorating party? I see bags and tubing EVERYWHERE!! (Ok, maybe just in the second bedroom).  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Sunny
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Sunny
« Reply #33 on: February 05, 2008, 02:36:58 PM »
Good for you Kickstart. You've got to stick up for yourself and your needs. Hopefully an apartment will come up soon for you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
George Jung
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« Reply #34 on: February 05, 2008, 04:00:42 PM »
:yahoo;  I'm glad you got everything worked out and now have something to look forward to.  I would just like to note that showing compassion toward our enemies doesn't mean not standing up for yourself.  You are right however in saying that it is "bloody hard to do".  It IS very difficult to to always show compassion, I have to practice every day and I still mess up from time to time.  I never insinuated that that standing up for yourself makes you a bad person and again, being compassionate doesn't mean being pushed around, it actually is quite the opposite but I think few here truly understand what that means.  Again,  :yahoo;  Well done, I am happy for you.


Quote from: KICKSTART on February 05, 2008, 03:14:27 AM
George easy to say , but bloody hard to do. It wasnt a case of 'attitude' Its a case of someone with no renal knowledge whatsoever telling me what is best for me!! You wouldnt let a car showroom receptionist tell you what you required to do your dialysis would you ? well this is only the same. I think sometimes you need to get angry ,if only to stand up for yourself and stop people walking all over you. I have tried the nice approach in the past and it doesnt get you anywhere. Im sick of being bullied and a doormat because of this illness. Just because i wont be pushed around doesnt make me a bad person, i am a better person , just one that stands up for herself !
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rose1999
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« Reply #35 on: February 05, 2008, 11:18:10 PM »
:yahoo; Great result, WELL DONE for standing up for yourself. But it's awful that you had to and many a one would have been too frightened to speak up.  Hopefully you've made it easier for the next renal patient who has to deal with that housing association. 

Now, I'm OK at painting, but my wallpapering ............ well you really wouldn't want my help!! ;D

Hope you will soon be allocated somewhere - keep us posted.
 :thumbup;
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #36 on: February 06, 2008, 10:23:49 AM »
 :2thumbsup; I hope you get a new home soon!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
The Wife
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« Reply #37 on: February 06, 2008, 11:54:42 AM »
This is awesome news!  Way to go.  Holding a vision of you moving into your new home soon!
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #38 on: February 06, 2008, 02:25:47 PM »
Quote from: Joe Paul on February 05, 2008, 04:01:27 AM
I just had a thought, why not tell her there ARE 2 of you. You and Dia-lysis. Its is true, I mean you have to live with Dia-lysis until you either get a transplant, or get relief permenant - like, the "D" word. Let them know Dialysis IS your " care giver", without it (her) you would not live. Also let her know you need 2 separate rooms, as you Hate Dia-lysis but as I said, you cant live without it (her). Let her know too - Dia-lysis has lots of box's and 1 room is just not enough , your life is crowded enough with Dia-lysis as it is.

( I hope you get a chuckle from this, maybe its just my bad humor)  :grouphug;
:rofl; Joe that's very good and very funny trouble is I doubt whether the receptionist has either the intellect or the sense of humour to get it.
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Ken
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #39 on: February 06, 2008, 02:30:37 PM »
Kickstart I'm so glad for you. Now you can look forward to getting away from your pond life neighbours. :2thumbsup; :thumbup; :thumbup;
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Ken
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« Reply #40 on: February 07, 2008, 04:48:40 PM »
Kickstart - glad you got something resolved.  Still, why do we all have to go through these kind of aggravations.  What is your favorite color?  I think decorating committee is being formed.

Take care
sandyb
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kitkatz
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« Reply #41 on: February 07, 2008, 06:55:43 PM »
I think the dialysis storage room should be pea green!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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Cattitude
« Reply #42 on: February 07, 2008, 08:32:23 PM »
Pea green?  Well, that's better than blood red. . .
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
angellady07
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« Reply #43 on: February 07, 2008, 08:38:45 PM »
Good for you. I'm so glad persistance paid off and you'll soon have your two bedroom.  :thumbup;
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MyssAnne
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« Reply #44 on: February 08, 2008, 10:27:07 AM »
I was thinking pee yellow....
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KT0930
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« Reply #45 on: February 08, 2008, 10:56:45 AM »
Quote from: MyssAnne on February 08, 2008, 10:27:07 AM
I was thinking pee yellow....

I agree...that's kind of the color of the fluid that comes out in PD.  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
KICKSTART
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In da House.
« Reply #46 on: February 08, 2008, 11:01:38 AM »
Ahem ..maybe a decorating party was a bad idea  :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MyssAnne
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« Reply #47 on: February 08, 2008, 11:55:46 AM »
Awwww!!! KS!!!! We could have SO much fun, with these WONDERFUL, WONDERFUL color schemes!!!!

Pea green.....Blood red......and Pee Yellow!!!

And WHAT is wrong with these colors???????

Hmmm????? ??? ???
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Falkenbach
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« Reply #48 on: February 08, 2008, 12:26:50 PM »
Quote from: KICKSTART on February 05, 2008, 07:49:24 AM
RESULT ..RESULT ..RESULT !!

Fantastic outcome KS. Good on you.

You have every right to have been upset, and it would be impossible not to get hurt, at least for a while. But George also made a very valid point about using the experience to develop ourselves as better people - we can get stronger from our experiences!

I'm glad you stood up for yourself.

BTW, I rofl'd at the decorating discussion.....  :rofl; :rofl; :rofl;
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KICKSTART
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In da House.
« Reply #49 on: February 08, 2008, 01:04:19 PM »
I wont be able to look at the colours green,red and yellow without thinking of the above comments  :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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