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Author Topic: What should I do?  (Read 3100 times)
donnia
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me and my donor Joyce

« on: January 24, 2008, 09:58:05 AM »

Okay, I met with the surgeon at Covenant Hospital in Lubbock, Tx.  He said I don't have to do any other test cause they got all my test results from Baylor Medical Center.  I have decided to go through Covenant for my live donors because they don't take their time in getting tests done. 

Anyways.......  I went to my gynecologist 2 weeks ago and he found a mass in my abdomen.  He thought maybe it was just bile buildup... so he had me drink some nasty stuff to clean me out and then i went back to the Dr the next day to see if it was gone.... nope, not so lucky.  So I did an abdominal catscan today to see what it is.  My problem is, I didn't tell the
Dr. in Lubbock..... you know..... the ole...never offer up too much information.....  Now I am nervous..... should I have told him about it????
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
LightLizard
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« Reply #1 on: January 24, 2008, 10:37:40 AM »

it would probably help him give you the best of his attention if he had that information.

and, you don't know what kind of complications that may cause if you don't.

better safe than sorry.
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oswald
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« Reply #2 on: January 24, 2008, 10:48:45 AM »

when it comes to your health you should tell the drs. something important like that.  good luck.
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
2_DallasCowboys
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« Reply #3 on: January 24, 2008, 12:11:13 PM »

Hi, Donnia,

Well, I think you should tell this Dr-
even tho I can get the vibe why you
didn't.  I don't think it would be
wise to hold anything back.  I am
sure as you think it thru, you will probably
agree with us that he should be told

Anne
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donnia
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me and my donor Joyce

« Reply #4 on: January 24, 2008, 12:24:47 PM »

okay, we get the results from the catscan tomorrow.  If it is not just bile buildup.... then I will call him and tell him about it.   AAAGGHHH....  I just didn't know what to do.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
oswald
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« Reply #5 on: January 24, 2008, 12:33:21 PM »

 :grouphug;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
okarol
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« Reply #6 on: January 24, 2008, 01:05:23 PM »

I would wait until you've got a diagnosis and treatment plan with the GYN. Otherwise you would be saying "something's happening but I don't know what yet."  :twocents;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #7 on: January 24, 2008, 02:30:44 PM »

I would wait until you've got a diagnosis and treatment plan with the GYN. Otherwise you would be saying "something's happening but I don't know what yet."  :twocents;
I agree with Karol  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
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willieandwinnie
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« Reply #8 on: January 24, 2008, 02:51:24 PM »

I second okarol's opinion.  :thumbup; Wait until you know something.
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KT0930
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« Reply #9 on: January 24, 2008, 03:40:41 PM »

I would tell the surgeon, because you don't want him to decide that because you weren't completely honest with him he's not going to do the transplant for you. As long as you let him know that it's being taken care of, then he knows you're proactive when it comes to your health, and that can only help you in this case.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
donnia
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me and my donor Joyce

« Reply #10 on: January 30, 2008, 11:52:11 AM »

Well, I heard back from my doctor, and it was nothing.  Nothing to worry about so I am not going to say anything to my transplant doctor. :2thumbsup;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #11 on: January 30, 2008, 11:59:55 AM »

donnia, Glad it turned out to be nothing. :clap;
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lola
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« Reply #12 on: January 30, 2008, 12:04:31 PM »

glad everything is OK
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2_DallasCowboys
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« Reply #13 on: January 30, 2008, 12:10:13 PM »

Great News!!! :clap; :clap; :clap; :clap;
So, so happy for ya.

Anne
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stauffenberg
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« Reply #14 on: January 30, 2008, 03:52:19 PM »

You really have to mention all your medical details, because in the transplant work-up everything clinically significant is going to be discovered anyway.  Since the new kidney is sited in the abdomen and there are a number of different strategies of connection of the new kidney to the circulation which can be tried, the surgeon will insist on knowing every detail about where and what things there are in your abdomen which may favor one connection or the other.
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donnia
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me and my donor Joyce

« Reply #15 on: January 30, 2008, 06:47:48 PM »

Okay... that does make sense stauffenberg.  I will call my coordinator tomorrow.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: January 30, 2008, 07:29:23 PM »

Now that you have something to report, it makes sense to fill them in. Thankfully it is most likely a non-issue now.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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