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Author Topic: Ignorant things people have said to you  (Read 469711 times)
Stoday
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« Reply #850 on: September 16, 2009, 12:41:18 PM »
Haveing experienced a camera up and down, I can assure you that having a camera stuffed up your ... is much to be preferred to having one stuck down your throat.

Not the same one, of course...

 :rofl;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Chris
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« Reply #851 on: September 16, 2009, 02:00:35 PM »
First time they did that post tx, they tell me to relax! Yeah Right! Me relaxed while something going where something shouldn't and your telling me to relax? Get on the table and you be the patient! They finally put me to sleep for that and on each one ever since on both ends.
« Last Edit: September 17, 2009, 01:11:33 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008
« Reply #852 on: September 17, 2009, 10:47:19 AM »
Must be nice not to have to work!!

Um. no.
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
KT0930
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« Reply #853 on: September 22, 2009, 06:54:08 PM »
Some of you may remember my rant about my husband's uncle who brined the turkey the T-giving I was on dialysis. Well, his (uncle's) mother is now on dialysis. The day of her 100th session, they "celebrated" with balloons and party hats at dialysis (his idea, I feel certain) and dinner out. His mother is a very bright, alive, "with it" woman, who I can't ever see wearing a party hat!

Now he's bragging (on Facebook) about her "normal" labs. I wonder if he realizes that's a relative term??

Then he told everyone what a great guy he was by taking cheesecake to dialysis for all the patients - made with splenda so the diabetic patients could have it too.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
TynyWonder
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Calvin
« Reply #854 on: September 22, 2009, 08:27:47 PM »
Quote from: dwcrawford on September 15, 2009, 08:21:01 PM
I couldn't believe what they did with that little camera up my veins.  Reminds me what they stuck  up my... in my... oh, forget it.

I know what you mean..............I just had that same procedure done twice in the last 2 months and it hurt like H***!!!! 
Logged
Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
lucyskid18
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« Reply #855 on: September 22, 2009, 10:26:18 PM »
Normal people, just plain SUCK!!!!!!! How bout the #1 Question???? How do you feel????? Well lets seeee how do you think i feel I take meds everyday feel nauseas every morning I wake up and have a tube aka Catheter sticking out of my body!!!!!! What do you think??? I FEEEL FANTASTIC JUST ECSTATIC!!!!!!
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Love,
   Lucy's Kidneys
Chris
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« Reply #856 on: September 22, 2009, 10:29:50 PM »
Quote from: lucyskid18 on September 22, 2009, 10:26:18 PM
Normal people, just plain SUCK!!!!!!! How bout the #1 Question???? How do you feel????? Well lets seeee how do you think i feel I take meds everyday feel nauseas every morning I wake up and have a tube aka Catheter sticking out of my body!!!!!! What do you think??? I FEEEL FANTASTIC JUST ECSTATIC!!!!!!

I would have thrown in a Fricken Fantastic as a good measure  :rofl; ;D

I hate that question to and the thing is they really don't care or want to hear about it. In their head they are going how to I make a quick exit because I really don't want to hear.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #857 on: September 22, 2009, 10:35:27 PM »
Quote from: Chris on September 22, 2009, 10:29:50 PM
Quote from: lucyskid18 on September 22, 2009, 10:26:18 PM
Normal people, just plain SUCK!!!!!!! How bout the #1 Question???? How do you feel????? Well lets seeee how do you think i feel I take meds everyday feel nauseas every morning I wake up and have a tube aka Catheter sticking out of my body!!!!!! What do you think??? I FEEEL FANTASTIC JUST ECSTATIC!!!!!!

I would have thrown in a Fricken Fantastic as a good measure  :rofl; ;D

I hate that question to and the thing is they really don't care or want to hear about it. In their head they are going how to I make a quick exit because I really don't want to hear.

If you really want to know...On a good day I feel like crap.  Today is not a good day.
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Restorer
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« Reply #858 on: September 22, 2009, 10:55:00 PM »
What do I do when they ask? I actually tell them. There's no worse punishment for having asked that question without meaning it, than being told all the messy details about what's wrong with your life.

"Hi Matt."
"Hi."
"How are you doing?"
"Oh, not bad, I'm constipated again so I've been taking laxatives. And you should see what parts of me have been swelling up the past week. And the nonstop itching, all over. I'd go on, but my blood pressure's low and I need to sit down."
"... Nice to see you again"
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Jean
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« Reply #859 on: September 22, 2009, 11:59:11 PM »
Good one Restorer.  :thumbup;
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One day at a time, thats all I can do.
billybags
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« Reply #860 on: September 23, 2009, 12:20:33 AM »
Restorer, I loved that post, I bet when you had finished saying all that, they said "so you are ok then". I love it. :clap;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #861 on: September 28, 2009, 11:50:15 PM »
The terrible thing about this thread is that I keep racking my brains because I'm pretty sure I've been the person saying some of these things before I got sick....oh dear!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Zach
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"Still crazy after all these years."
« Reply #862 on: September 29, 2009, 12:40:37 PM »
Quote from: Hanify on September 28, 2009, 11:50:15 PM

The terrible thing about this thread is that I keep racking my brains because I'm pretty sure I've been the person saying some of these things before I got sick....oh dear!


I think it's safe to say that most of us have been that person, too, before we became ill.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
glitter
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« Reply #863 on: September 29, 2009, 05:27:00 PM »
hmmm...so you don't like it when a 'normal' person asks how you feel? But I do ask, and I do care. I don't ask people I dont give a shit about........I give a shit about you guys..... >:D >:D >:D
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Chris
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« Reply #864 on: September 29, 2009, 09:15:29 PM »
Glitter, please don't give a shit, it's getting smelly over hear. Not sure if it's beter than not giving a rat's  :sir ken; though.  :rofl; :rofl; :rofl;


I don't have an ignorant thing someone said, but sure do have something ignorant thing someone did during oral surgery today, and it wasn't me. Nurse kept sneezing into her arm as I was being worked on, no mask on, just gloves and she knew I was immunesuppressed. Now waiting to get sick from that. Might be hard to tell right now though due to pain
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #865 on: September 29, 2009, 11:07:34 PM »
My friend told her husband that she wants a divorce.  In a scramble to keep her he told me "I'd give you a kidney if you were dying".........

WTF?           :Kit n Stik;
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kamalshah20
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« Reply #866 on: September 30, 2009, 07:26:34 AM »
Most people can't stop staring at my fistula which is on my left upper arm and hard to miss when I'm wearing a  T shirt. Some people however ask me, "What happened to your arm?" I usually respond with a "Nothing happened. A surgery was performed here to connect the vein with the artery to help with my dialysis."

When I'm in a devilish mood however, I look at the fistula and scream, "Oh my god, get an ambulance, quick!"

Also, people often ask me how often I dialyse. When I say every night, they ask, "Every night! Why do you need to dialyse every night?" I then get into the "Kidneys work 24X7. So, dialysis which is replacing kidney function, must also be done (ideally atleast) 24X7. But I just do it six nights a week, 7 hours each night!

Kamal
http://kamaldshah.com
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Kamal
http://kamaldshah.com
dwcrawford
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Getting the heck out of town.
« Reply #867 on: September 30, 2009, 10:00:00 AM »
kamalshah20,  excellent.  you are explaining to people.  i've always said they are not ignorant but unedcucated on the subject.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Jess21
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« Reply #868 on: October 27, 2009, 12:44:35 PM »
"So when do you get to stop taking the meds"
"So when will you be considered "cured?"
"Oh, so when you stop taking the meds your immune system will come back, right?"
Or my favorite right now...I went to get my yearly echo...the PA saw my list of meds and commented on it.  I replied I got a transplant at the beginning of July.  Her response "oh, if you don't mind me asking, which one?" "Pardon?"  "Which side?  Which kidney?"  The PA didn't know they put them in front...and normally leave the old ones in....oi vey!
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
YLGuy
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« Reply #869 on: October 27, 2009, 05:54:57 PM »
Quote from: Rerun on September 29, 2009, 11:07:34 PM
My friend told her husband that she wants a divorce.  In a scramble to keep her he told me "I'd give you a kidney if you were dying".........

WTF?           :Kit n Stik;

WTF?

More like: WTF?
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YLGuy
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« Reply #870 on: October 27, 2009, 05:57:45 PM »
Quote from: kamalshah20 on September 30, 2009, 07:26:34 AM


When I'm in a devilish mood however, I look at the fistula and scream, "Oh my god, get an ambulance, quick!"

Kamal
http://kamaldshah.com

I love your sense of humor!  :rofl;

I have told people that the thrill in my fistula was the new cell phone implant I have and the ringer is on vibrate.  I then touch my ear and say hello?. Uh, must have hung up!
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Chris
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« Reply #871 on: October 27, 2009, 10:04:11 PM »
Had wisdom teeth taken out Monday and head surgeon was asking about my transplant. He asked if I got a partial pancreas? WTF They stopped that experiment years ago due to high failure rate and risk to donor.

Then he goes on and ask me what my blood sugar was. So I say 86 and he say's that's to low  :o ??? WTF, to low for whom with a working pancreas? So I wasn't in the mood and had to tell him what I thought after all, I have had this transplant for 9 years moron!. He finally left and let the other doctor begin the procedure, which was better. She was better to look at  :shy;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lizabee
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« Reply #872 on: October 28, 2009, 01:04:46 PM »
You don't look sick, so it's not that bad
Are you pregnant/when are you due? (I'm sorry but unless you know someone is prego you don't ask, but I love the look I get when I say "No, it's just my kidney")
You look good today (I looked like crap before?)
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Melissa
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« Reply #873 on: October 28, 2009, 05:52:53 PM »
During a conversation with my friend about her pregnancy:  "I'm so tired...now I know how you feel"
This is the same friend who mistakenly, still after 3 years, asks how my "chemo, oops I mean dialysis", went....
Insulting to dialysis patients, chemo patients and pregnant women everywhere!
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sico
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wheres my bike gone?
« Reply #874 on: October 28, 2009, 06:21:26 PM »
Quote from: YLGuy on October 27, 2009, 05:57:45 PM
I have told people that the thrill in my fistula was the new cell phone implant I have and the ringer is on vibrate.  I then touch my ear and say hello?. Uh, must have hung up!
:rofl; :rofl; :rofl; :rofl;
I hate it when I go out and people that know I'm on fluid restrictions ask me if I want another beer.
Especially if I came off heavy in the morning, some of my mates still don't understand how hard it is not to drink too much.
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
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