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Author Topic: I'm just going to say it...  (Read 12523 times)
carson
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« on: December 16, 2007, 04:34:53 PM »

Sex.
It never enters my mind any more. I'm not happy about it. How can I fix it? Any women out there tried any of those "viagara" type things for women?
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
goofynina
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He is the love of my life......

« Reply #1 on: December 16, 2007, 04:45:51 PM »

Oh do i dare even go there?  This can be bad, verrrrry baaaaad, (but in all good ways) :)  :2thumbsup;
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stauffenberg
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« Reply #2 on: December 16, 2007, 04:56:09 PM »

Dialysis diminishes the body's level of sex hormones, and unless you want to get into all the complications of finding an endocrinologist who is willing to deal with the side-effects, dosing subtleties, and complications of hormone replacement therapy, that is the end of the story.  Unfortunately most dialysis patients are never offered any treatment for low sex hormone levels, no doubt because the nephrologists assume that these cases are already complicated enough.  Women are luckier than men, though, since 60% of men on dialysis not only lack libido but are also impotent.
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kellyt
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« Reply #3 on: December 16, 2007, 05:07:11 PM »

Once transplanted does your libido return in any amount - male or female?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #4 on: December 16, 2007, 05:18:43 PM »

After transplant it does to an extent, but some of the drugs kind of Zap it again.
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kellyt
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« Reply #5 on: December 16, 2007, 06:06:43 PM »

WTF???    My husband's not going to like that answer!!!   :-\
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
misschell78
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daniel waving to the people

« Reply #6 on: December 16, 2007, 09:48:49 PM »

does it all depend on age???? b/c my libido never waned? i started dialysis when i was 21
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angela515
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« Reply #7 on: December 16, 2007, 10:00:56 PM »

EXPLICIT CONTENT AHEAD[/i]


I'll be honest here. I don't really honestly know if I have ever had a sex drive. I got dx'd with Lupus at age 12, and was put on prednisone for 6 years straight (not to mention the 5 years after my first transplant) in that time period and I was told that prednisone has something in it, or releases something into the body that resembles something your body is supposed to naturally release to get you "horny", and your body don't since it thinks it already has. So, this was why I think I never got "horny", or had an even "cum" at ALL, in my sexual life. I still had sex, obviously I have 2 kids... I was a virgin until I was 19, since I didn't want it.. and I only really did it, because I didn't want to be left out or thought of as weird. When I did do it, I sometimes got "wet" a little and enjoyed it some, but for the most part I didn't enjoy it, maybe because there was no pleasure in it for me. Sometimes it was even painful for me, and I had to use LOTS of lubricant because I was always dry.

I only went on dialysis at age 20, so dialysis didn't have a role for me... but I was going through ESRD a few times starting at age 14. After my first transplant, I remained still not interested in sex but did it to please my significant other. Now that I have had my second transplant, and do not have a significant other, I have not had sex since 2005, and don't crave it, want it, or think I'll have it anytime in the next 10 years.

I am trying to find a doctor to see who will help me with this issue with the use of hormones as that has been okay'd by my transplant doctor. I wish anyone who deals with this good luck and if you find an answer, please share.
« Last Edit: December 16, 2007, 10:02:58 PM by angela515 » Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
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« Reply #8 on: December 16, 2007, 10:56:44 PM »

from: Journal of American Society of Nephrology
Sexual Dysfunction in Uremia
http://jasn.asnjournals.org/cgi/content/full/10/6/1381

In summary, sexual dysfunction is a common finding in both men and women with chronic renal failure. Common disturbances include erectile dysfunction in men, menstrual abnormalities in women, and decreased libido and fertility in both sexes. These abnormalities are primarily organic in nature and are related to uremia as well as the other comorbid conditions that frequently accompany the chronic renal failure patient. Fatigue and psychosocial factors related to the presence of a chronic disease are also contributory factors. Disturbances in the hypothalamic-pituitary-gonadal axis can be detected before the need for dialysis but continue to worsen once dialytic therapy is initiated. Impaired gonadal function is prominent in uremic men, whereas the disturbances in the hypothalamic-pituitary axis are more subtle. By contrast, central disturbances are more prominent in uremic women. Therapy is initially directed toward optimizing the delivery of dialysis, correcting anemia with recombinant erythropoietin, and controlling the degree of secondary hyperparathyroidism with vitamin D. For many practicing nephrologists, sildenafil has become the first-line therapy in the treatment of impotence. In the hypogonadal man whose only complaint is decreased libido, testosterone may be of benefit. Regular gynecologic follow-up is required in uremic women to guard against potential complications of unopposed estrogen effect. Uremic women should be advised against pregnancy while on dialysis. Successful transplantation is the most effective means of restoring normal sexual function in both men and women with chronic renal failure.

(follow link above for full article)

------------------------

from: Columbia University Medical Center
Life After Kidney Transplantation
http://www.columbiasurgery.org/pat/kidneypancreastx/life.html

Sexual Activity

Sexuality is an important part of who you are as a person. It is more than sexual intercourse. Sexuality involves how you feel about yourself as a man or woman, the giving and receiving of sensual (feeling) pleasure, the desire for closeness with another person, and the release of sexual tension.

A person's sexuality is affected when they have kidney failure. This is caused for a variety of reasons. Men may experience impotence (problems getting or maintaining an erection) and a decreased sexual drive (libido). Women's menstrual cycles may become irregular or stop completely.

Some patients take blood pressure medications that can interfere with sexual function. These medicines can cause drowsiness and fatigue, in addition to decreased sexual drive, menstrual cycle irregularities, and/or decreased vaginal lubrication. Sometimes, even though the body functions normally, the sexual experience is not enjoyable. Some patients have found talking to a counselor helpful and this can be arranged by the transplant team.

Kidney transplantation can improve some aspects of your sexual functioning. Chronic fatigue should diminish and make sexual life more enjoyable. Men will typically have fewer problems in gaining and maintaining an erection. A woman may resume her menstrual cycle and pregnancy is often possible.

After your kidney transplant, however, some things may not get better. You may still need blood pressure medicines and these may affect your sexual functioning. Talk with your doctor or nurse if you are concerned about your blood pressure medicines. Your physician may be able to change your medication to minimize or eliminate side effects that affect your sexual activity, while still controling your blood pressure.

Sexuality can also be affected by the medicines that you take to prevent rejection if they cause certain side effects. These might include developing a "moon face," acne, bruising, and/or increased body hair. If a person feels less attractive because of these changes, he or she may feel less interested in sex. Talking with your doctor or nurse about how to diminish the side effects can help.

It is common for transplant recipients to resume a more normal lifestyle, including sexual activity, as they recover. Sexual function may not have been an important part of your life before the transplant, but it may now be higher on your agenda. It is not unusual to worry about something that was unfamiliar in your recent past, but is now taking on new importance. You may also be concerned about the safety of your new kidney during intercourse.

Women using immunosuppressant medications can develop urinary tract infections with intercourse because they are more prone to infection, and because of the proximity of the vagina, urethra, and anus. To avoid infections, it is important to wash well after bowel movements and to wipe from the front to back. Urinating before and after intercourse and drinking a lot of water can help to prevent urinary tract infections. Symptoms of urinary tract infection are burning while you urinate, smelly or cloudy urine, a fever, or frequent urination. Contact your local doctor's office for proper diagnosis and treatment.

Even though you may not be having regular menstrual periods, it is still possible to become pregnant. It is important to use some type of birth control to avoid unwanted pregnancy. The recommended choices are a diaphragm, sponge, and/or condoms. Used correctly, with spermicidal jellies or creams, they are very effective. There is a higher risk for developing a urinary tract infection if a diaphragm is used. If you have questions or concerns about birth control, talk with the transplant team.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #9 on: December 17, 2007, 01:20:53 AM »

WTF???    My husband's not going to like that answer!!!   :-\

Ditto  :-\
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Amanda From OZ
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« Reply #10 on: December 17, 2007, 01:26:59 AM »

hope things turn out ok for ya...
« Last Edit: January 16, 2008, 01:45:30 AM by Amanda From OZ » Logged
angela515
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« Reply #11 on: December 17, 2007, 06:21:35 AM »

and decreased libido and fertility in both sexes.

(
hehe... never had the decreased fertility.  :lol; My kids are 11 1/2 months apart.  8)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
KICKSTART
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In da House.

« Reply #12 on: December 17, 2007, 06:54:30 AM »

I lost interest quite a while ago too .. but its all good because im single now!!! Now maybe if Prince Charming was to walk through the door i might be tempted !!!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
stauffenberg
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« Reply #13 on: December 17, 2007, 08:11:24 AM »

Gabriel Danovich, "Handbook of Kidney Transplantation" (Philadelphia: Lippincott, 2001) p. 215 notes that in 2/3 of men, libido is restored to normal after transplant, but in 1/3 it is not, and can even be diminished from dialysis levels. 
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Deanne
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« Reply #14 on: December 17, 2007, 08:38:05 AM »

What's sex? I tend to agree with Angela. I was diagnosed with kidney disease when I was 9. I'n not on dialysis yet, but I've never really had a sex drive.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
kellyt
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« Reply #15 on: December 17, 2007, 10:47:03 AM »

Women's menstrual cycles may become irregular or stop completely. <<<<----------- This was supposed to be a "quote".

I wish!!!!!!!!
   
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
angela515
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« Reply #16 on: December 17, 2007, 11:31:21 AM »

Women's menstrual cycles may become irregular or stop completely. <<<<----------- This was supposed to be a "quote".

I wish!!!!!!!!
   

Mine are very irregular... sometimes I don't have mine for 3-6 months at a time then sometimes I have them every month.  :lol;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
goofynina
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He is the love of my life......

« Reply #17 on: December 17, 2007, 01:21:53 PM »

I've been trying to keep my mouth shut about this BUT, :P  I wanna know what i have to take to slow my *ahem* libido down :P  I have been on dialysis for 4 years and so far, its still in overdrive  ::)  (not that Sam is complaining)  ;D BUT i am scared for it happening (stopping)  cuz of all the action he is getting now, i hate to tell him it will eventually stop  :-\  :'(
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Romona
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« Reply #18 on: December 17, 2007, 01:45:05 PM »

I lost interest quite a while ago too .. but its all good because I'm single now!!! Now maybe if Prince Charming was to walk through the door i might be tempted !!!

Prince Charming shares a bachelor pad with Easter Bunny.  :rofl; :rofl; :rofl;
Women's menstrual cycles may become irregular or stop completely. <<<<----------- This was supposed to be a "quote".

I wish!!!!!!!!
� �

I had the opposite happen. I had heavy bleeding for about 5 weeks. In one weekend I lost two units of bloods. I'm ok now I had an endometerial ablasion done.  :)


Seriously, things do get better after transplant.  :bandance;

Susie I just don't know what you've been drinking but pour me a double! :rofl;


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angela515
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« Reply #19 on: December 17, 2007, 06:21:56 PM »

I've been trying to keep my mouth shut about this BUT, :P  I wanna know what i have to take to slow my *ahem* libido down :P  I have been on dialysis for 4 years and so far, its still in overdrive  ::)  (not that Sam is complaining)  ;D BUT i am scared for it happening (stopping)  cuz of all the action he is getting now, i hate to tell him it will eventually stop  :-\  :'(

It may not eventually stop for you, as everyone reacts to dialysis different.. you could be one of the exceptions and some others are. You go girl!!! :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Razman
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« Reply #20 on: December 17, 2007, 06:39:32 PM »

Do you think that we could some how add  the word  sex ( or lack of )  with dialysis.  Maybe it would get more attention and people would have a better reason to be a donor.  Just thinking.   How about die-sexless instead of dialysis !!!
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kellyt
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« Reply #21 on: December 17, 2007, 06:42:59 PM »

 :rofl;  :rofl;  :rofl;    "Sorry I can't make it to your party.  I will be at die-sexless until noon."

I like the way that sounds.   ;D
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KR Cincy
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« Reply #22 on: December 18, 2007, 06:07:10 AM »

I envision a new TV commercial...
The picture of a beautiful woman comes up...(pick any of our IHD hotties)...
and the voice over says this...
"Hey...you...see this hottie? Would you like to tap that? Suuure you would...but you can't, because she's on dialysis, which translated from Latin means "die sexless." Without a new kidney, she's just not gonna want to knock boots with anyone.

But you can help...you have two good kidneys...give one up for the chance to play hide the salami with a hottie just like this."

Also do a beefcake male version...watch donors start lining up!!!

 :rofl;
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Not giving up...thanks to Susan.
goofynina
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He is the love of my life......

« Reply #23 on: December 18, 2007, 09:34:32 AM »

LMFFAO  :rofl; :rofl;  KR Cincy, i love the way your mind works, lol, your killin' me smalls, your killin meeee  :rofl; :rofl;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
thegrammalady
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« Reply #24 on: December 18, 2007, 10:01:45 AM »

 :rofl; you guys are too funny for words  :rofl;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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