bearman
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« Reply #175 on: October 21, 2010, 01:09:58 PM » |
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My kidneys were in too poor of shape to do a biopsy, but I believe that there were 4 contributing factors to my renal failure. 1- Diabetes type 2. 2- High blood pressure. 3- Working conditions (I worked at a chemical company for 22 years and had frequent, direct contact with many solvents. The Material Safety Data Sheets state that many of them can cause kidney disease by inhalation, especially if you are predisposed to it already). 4- NSAID drugs. I had something called Cluster headaches for about 3 months several years ago and I was taking NSAIDS (Motrin, Advil, Aleve, Excedrin, etc...) like candy day and night trying to relieve the pain (which was excruciating! The worst pain I ever had in my life. They can be 100 times worse than a migraine).
These were all before I knew the side effects or that I had any kidney problems. I was only diagnosed about 1 1/2 years ago.
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ACRViper
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« Reply #176 on: November 05, 2010, 06:15:21 AM » |
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Mine was caused Hydronephrosis. Which caused by my enlarged prostate blocking flow and having it back up into the bladder, then into the kidneys. (I guess) It was a very slow process. I never had the sensation of having to urinate but not being able to etc.
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On dialysis for two years now. I have been in the Philippines for the last year Only need dialysis 2x a week I am not on any kind of water restriction Overall, I am very healthy, not symptomatic etc 62yo
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khaliq282
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« Reply #177 on: November 09, 2010, 12:49:29 AM » |
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I have ESRD ,nd it coz of hypertension.
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khaliq
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flipperfun
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« Reply #178 on: November 09, 2010, 08:23:57 AM » |
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Hi, my kidneys failed due to Amyloidosis.
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-Lady Noir-
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Where's your will to be weird?
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« Reply #179 on: November 14, 2010, 04:54:19 PM » |
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I don't know why I have fsgs, either. The prevailing theory is that my pregancy in 1991 was the catalyst. My son feels bad because he thinks he caused it.
Strange, because had i not had my son, i wouldnt know i had kidney failure.
Amazing huh! Mike wouldn't have known he had kidney failure too, he had an alcohol related seizure when he was 19 or 20, and then when he was in hospital they scanned his liver passed the kidneys and woah, they originally thought he had PKD cause the dark spots looked like cysts. The dark spots were actually holes!! But the cause of the kidney failure was strep throat when he was 3 or 4 years old.
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free
..Nik..
Fiancee to Mike Mikes 'history'.... Born September 12 1983 Seizure July 2003 [Unrelated to kidney] Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis) Diagnosed with IgA Glomerulonephritis April 2004 On active transplant waiting list 2006 Hyperparathyroidism developed gradually Parathyroidectomy May 2009 (Affected kidney function) Hospitalized for hyperkalemia June 2009 Catheter inserted June 2009
Started CAPD June 2009 Stared APD September 2009
ABO Incompatible transplant 01 December 2010 Donor = Mikes father Greg
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statesidela
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« Reply #180 on: November 19, 2010, 07:13:16 PM » |
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Hay guys....apparently mine was caused by allergic reaction to an antibiotic (amoxicilin) not sure on the spelling on that....neph said it's a one in several million chance....sigh....oO(should have put a lottery ticket on that day)
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ulrika
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« Reply #181 on: November 20, 2010, 08:42:30 PM » |
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Reflux. Diagnosed and corrected when Sandra was six, but the scarring on her kidneys from repeated infections eventually caused her kidneys to fail...
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Trena
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« Reply #182 on: December 20, 2010, 10:32:28 AM » |
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For 13 years the diagnosis was glomerluonephritis of unknown origin but a lot of research on my part turned up something interesting, lithium causes kidney failue an I took lithum for about 4 years. Now I know exactly my kidneys failed.
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chatrbee2
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« Reply #183 on: January 06, 2011, 08:13:45 PM » |
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Dyes they used to look to see if my father had ulcers is what caused his kidney failure.
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debby
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« Reply #184 on: January 08, 2011, 09:32:59 PM » |
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My husbands was a kinked ureter since birth which caused the kidney to not drain and become a cyst (from what they say) that then caused high blood pressure and killed his other kidney.
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lillinny
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« Reply #185 on: January 18, 2011, 04:32:40 PM » |
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My husband was originally told FSGS and then later Bergers. I'm wondering if this was in anyway related to the time he spent in Vietnam and may have been subjected to Agent Orange. . . .
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TexanSummer
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« Reply #186 on: March 21, 2011, 11:36:31 AM » |
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Hubby's Neph's at the hospital were "puzzled & fasinated" by his ability to have walked through the ER door due to his cret. level being at almost 20! They finally figured (after a dye test) that he was "most likely born" with a defect in one (or both??) kidney valves (he's 33 & it's just now being noticed)....I'm still trying to decifer all the medical terms, so I'm not sure what it's called exactly. I do know that he has high blood pressure & has been taking meds for that along with shots to control his psoriasis....not sure if docs are right....they just didn't seem that convincing! lol
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Wife of Charles -- diagnosed with psoriasis in 2000? no diagnosed kidney issues until 3 weeks ago diagnosed with ESRD 2/24/11 found out birth defect of kidney valve was cause 2/28/11 started dialysis 3/1/11 I still have a level head....most of the time
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BillSharp
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rock 'n roll will never die
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« Reply #187 on: March 21, 2011, 09:04:06 PM » |
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Cystinuria, a very rare disease. It hit me when I was 14 years old, and I'm now 72.
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Started passing stones at age 14 (Cystinuria) Transplant in 1989 at age 50 Transplant failed in 2009 at age 70 Hemo and transplant list Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
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Willis
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« Reply #188 on: April 15, 2011, 03:10:17 PM » |
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I have IgA Nephropathy so I checked IgA glomerulonephritis which I think is the same thing even though I can't pronounce it. BTW, if I'm not mistaken Berger's Disease is also the same thing.
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phyl1215
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« Reply #189 on: April 21, 2011, 07:32:28 AM » |
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High blood pressure and dye used during 2 heart procedures.
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PD 3 yrs. TX list 4 yrs. Deceased donor PERFECT MATCH Kidney transplant July 8, 2012
Learning To Dance In The Rain
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johnsonbene
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« Reply #190 on: April 22, 2011, 07:05:30 PM » |
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Hello I don't know if I am doing this right but I am new to this site and I am trying to figure out how I post my opinions and views about my hating dialysis. Can someone help me please!
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okarol
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« Reply #191 on: April 23, 2011, 07:49:47 PM » |
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Hello I don't know if I am doing this right but I am new to this site and I am trying to figure out how I post my opinions and views about my hating dialysis. Can someone help me please!
I will send you a PM - private message - okarol/admin
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shepres
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« Reply #192 on: April 25, 2011, 08:00:26 PM » |
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I'm diagnosed with Membrano Proliferative Glomureli Nephritis (MPGN) Type III.
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HouseOfDialysis
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« Reply #193 on: May 12, 2011, 07:09:57 PM » |
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Alport Syndrome, confirmed by kidney biopsy in 2004. Hot nurses in Nephrology. Overnight stay was worth it.
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Diagnosed with Alport Syndrome in 2004. AV fistula surgery June 9th, 2010. PD Catheter surgery February 7th, 2011. Began CAPD on February 21st, 2011. Began CCPD on April 29th, 2011. On Transplant List since June 2010.
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bluesgirl
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« Reply #194 on: May 21, 2011, 06:37:39 AM » |
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mesangiocapillary glomerolunephritis, I think it's what they call typ 1, but not sure as no one has told me there were several kinds and I have reseacched it myself.
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Darth Mike
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« Reply #195 on: June 07, 2011, 10:38:03 AM » |
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I might get banned for this, so if you are intrested copy quickly.
26 year old Honduran male healthy never had a drink in my life non smoker O+ blood type and willing to barter away one of my kidnies for a bargain price.
Very serious about this, dont spend more time and $ on dialysis living donor RIHGHT HERE!
Name deleted Edited: It is illegal in the United States to buy or sell organs - BANNED - okarol/admin
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« Last Edit: June 07, 2011, 02:39:45 PM by okarol »
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pagandialysis
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« Reply #196 on: July 12, 2011, 09:19:45 AM » |
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I am a little confused. My doctor tells me that IgA Nephropathy is not the same as Bergers Disease but when I look it up all the medical websites say they are the same thing. I think I am going to ask a different doctor. I voted Bergers Disease just encase he is wrong.
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Dining on Dialysis - www.diningondialysis.com------------------------------------------------------------- Kidney Transplant (December 31, 2014), Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014), AV Fistula #2 (This one is a Basilic Transposition), CKD (IgA Nephropathy) Stage 5, Hypertension (Under Control)
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pagandialysis
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« Reply #197 on: July 14, 2011, 07:57:29 AM » |
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I just talked to my doctor and he cleared up the confusion. I was confusing Berger's Disease with Buerger's Disease. I was just mispronouncing the disease the whole time. So yes, Berger's disease is IgA Nephropathy.
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Dining on Dialysis - www.diningondialysis.com------------------------------------------------------------- Kidney Transplant (December 31, 2014), Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014), AV Fistula #2 (This one is a Basilic Transposition), CKD (IgA Nephropathy) Stage 5, Hypertension (Under Control)
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malaka
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« Reply #198 on: July 14, 2011, 11:19:16 AM » |
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idiopathic membranous nephritis causing nephrotic syndrome. Ruled out were secondary to tumor and diabetic causes.A second opinion doc, Dr. Sherlock Holmes, did even more detective work and ruled out tropical diseases and TB infection. Idiopathic = that old bumper sticker: "S*** HAPPENS"
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CebuShan
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« Reply #199 on: September 07, 2011, 07:41:43 AM » |
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The drs. have never come to a firm conclusion why my kidneys are failing. ( One does not work at all and has shrivelled up, the other works at 15-20%) I may have been something I was born with; an injury as a child (both undiagnosed until now); it could be because of the high blood pressure that developed out of the blue. They aren't even sure if the BP caused the kidney failure or the kidney failure caused the high BP! I have my own suspicion that the drs. say is also a possibility: I think it was caused by taking Bextra. I had a torn rotator cuff in my right shoulder and was taking Bextra for several months by the time they pulled it off of the shelves. If you want a really good site for medication info: http://www.mediguard.orgIt's a free medication monitoring system. Every month they will send a report about the meds you are taking and any interactions plus any recent news about all medications. That's how I found out about the Bextra. I had just refilled my prescription, came home & got on the computer and there was an email about it. I printed it out and took it back to the pharmacy. They hadn't even been notified yet!
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Think GOD doesn't have a sense of humor? HE created marriage and children. Think about it! LOL!
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