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Author Topic: Tell me something good  (Read 26577 times)
MooseMom
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« on: October 17, 2007, 09:15:27 AM »
As my kidney function deteriorates, I find I am becoming increasingly anxious and depressed.  I suppose that is only normal.  I am really struggling to find ways to pull myself out of my funk.  I need some good news.

So give me some good news about yourself and your health.

Did you have a good dialysis day today?

Did you get some good lab results?

Did you get a good night's sleep?

Did you get an encouraging word from your neph or from a nurse?

Are you draining and dwelling without discomfort?

Did your PD training go well today?

Are you happy today?

Are you looking forward to tomorrow?

Thanks, and be happy.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Patton
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« Reply #1 on: October 17, 2007, 11:03:17 AM »
MooseMom it sounds like you need to treat yourself to something good. I don't know what to say to cheer you up...and I don't really understand, nor could I, because I'm not on dialysis. I don't even have diabetes. But I wish you the best and hope something I say or someone else says will cheer you up. We're here to help, so voice your thoughts and views.   :grouphug; :wine;
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glitter
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« Reply #2 on: October 17, 2007, 12:03:44 PM »
my husband is leaving for dialysis soon- he's smiling and happy- even though it was hard at first- he has ALOT more good days then tough ones all the time now!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Rerun
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Going through life tied to a chair!
« Reply #3 on: October 17, 2007, 12:13:29 PM »
It makes me happy to get off the machine and go home. 

                       :yahoo;
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KICKSTART
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« Reply #4 on: October 17, 2007, 01:02:46 PM »
I'm alive .. im happy !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
KT0930
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« Reply #5 on: October 17, 2007, 01:58:46 PM »
My son's 9th birthday is Sunday, and dialysis keeps me alive and healthy enough to be able to celebrate it with him!  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
angela515
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i am awesome.
« Reply #6 on: October 17, 2007, 02:09:47 PM »
My transplant is still working 100% no trouble at all...  :yahoo;

My ex has court today... it *should* go in my favor..  :yahoo;

Tomorrow I am going to lunch and a movie with my new boyfriend...  :2thumbsup;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
vandie
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« Reply #7 on: October 17, 2007, 02:46:06 PM »
Quote from: angela515 on October 17, 2007, 02:09:47 PM
My transplant is still working 100% no trouble at all...  :yahoo;

My ex has court today... it *should* go in my favor..  :yahoo;

Tomorrow I am going to lunch and a movie with my new boyfriend...  :2thumbsup;
Those are all good things, Ang.  New boyfriend. . . woo hoo.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Stacy Without An E
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« Reply #8 on: October 17, 2007, 03:36:32 PM »
What I would suggest from my own personal experience starting Dialysis 3 1/2 years ago, make sure you remember that balance is the most important aspect of your life to achieve.  At first, it will feel like Dialysis affects everything in your life.  After a while, I hope you reach a place where Dialysis just happens to be something you have to do every week, not something that defines or controls your entire life.  It took me at least a year to get to that point, but once you do you'll find you appreciate the finer points of life much more.

As for the good things in my life now:

--- I'm able to work full time at my radio job (I've wanted to be in radio since I was twelve years old)
--- I work out three times a week (bye bye 30-something belly)
--- I'm up for a promotion at work (when Dialysis started I thought my radio career was over)
--- I laugh a lot more than I used to (Dialysis hates it when I laugh)
--- I haven't been in the hospital in nearly two years (they used to know me by name)
--- I'll finally pay off my student loan next year (it's been tied to my wallet for years)

I agree with others above.  When things look their worst when you first start Dialysis, do something nice for yourself.  Even if I couldn't find anyone to go, I would treat myself to a movie with the works (large popcorn, giant soda) and just lose myself.

And you might want to start a diary or blog about your experiences.  It's amazing how writing can release a lot of the misery and pain you're feeling.

Here's to a brighter future for you.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
goofynina
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He is the love of my life......
« Reply #9 on: October 17, 2007, 03:49:14 PM »
No matter how bad i feel i try and make myself as happy as possible, whether it be being a smart ass or playing a prank on my mom or hubby, i just try to find something that i can say "now that is worth a memory"  :clap;

As for how my pd is going, i am hoping it is going well, at least i think it is going well, and i hope it keeps on going and going and going (if ya know what i mean) :P  I do not worry about my labs, i worry about how i feel,  i usually feel great UNTIL i get the results from my labs then they make me feel as if i am sick, so that i am getting used to already, lol, my dwells and my drains have been good and clear and most importantly quiet (no alarms)  :thumbup; 
I have been sleeping better these days, a little harder in fact (hmm, now i wonder if that is better or not) lol, but hey, i will take heavy sleeping over no sleep any ol' day thats for sure.
And as for look forward to tomorrow, you bet i am,  :waving;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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« Reply #10 on: October 17, 2007, 05:53:39 PM »
The 3 years of Jenna's dialysis seemed to move so slowly. Yesterday we celebrated 9 months since her transplant, and it's gone by in the blink of an eye.

I hate the Pollyanna "things could be worse" speeches - but I just want to say that a dear friend of ours has been told that the chemo and radiation didn't change the cancer, and there's nothing else that can be done.

Thank God there are options for kidney patients.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #11 on: October 17, 2007, 05:57:50 PM »
Quote from: angela515 on October 17, 2007, 02:09:47 PM
My transplant is still working 100% no trouble at all...  :yahoo;

My ex has court today... it *should* go in my favor..  :yahoo;

Tomorrow I am going to lunch and a movie with my new boyfriend...  :2thumbsup;

Now THAT would make me happy too!  Happy, Happy, Happy FEET!
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donnia
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me and my donor Joyce
« Reply #12 on: October 17, 2007, 07:14:40 PM »
Yes Karol... we are lucky that dialysis is an option.

I had dialysis today, and surprisingly laughed for about 3 hours strait!  My techs and nurses are honestly very cool.  I mentioned in another thread about a benefit dinner and auction that I am having on Nov. 10th.  Well my lead nurse told me to bring a flyer to the clinic to hang up.  I did today, and every nurse and tech made it a point to come to me personally to tell me that they will be there.  I thought that was very nice... and it made me smile.  My clinic makes me not dread going to dialysis.... and that makes me smile too   :2thumbsup;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Zach
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« Reply #13 on: October 17, 2007, 07:36:12 PM »
Quote from: okarol on October 17, 2007, 05:53:39 PM


Thank God there are options for kidney patients.



I'll drink to that!
 :beer1;

 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
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My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

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poohkari
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« Reply #14 on: October 17, 2007, 09:03:42 PM »
Wade was supposed to get his heart shocked back to a normal heart rate today, (he was at 170ish and needed to be around 110) and we were both scared. Well, someone is looking out, because the second they slapped the sensor things on him - whoop! down to 108 and it stayed there!

I seriously need to thank SOMEONE for that ...
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Girlfriend of Wade, on dialysis since 5/11/07 and NxStage since 8/20/07. We're hoping for a transplant as soon as his "FGP" is gone!
kitkatz
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« Reply #15 on: October 17, 2007, 09:06:31 PM »
Okay...I gave the district language arts test today to the 6th graders.  I had a good dialysis run today.  Dinner was carne asada tacos and beans and rice.  Going to go to bed soon. A good day for me!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rimbo74
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« Reply #16 on: October 17, 2007, 11:06:48 PM »
I'm not on dialysis anymore but b/c of dialysis (doing it at night).  I had the day free to myself to be normal (with a tube hanging from my belly).  Almost 3 months past my transplant and I have felt this great in about 10 years!!

If the anxiety gets you too much, I took Lexapro 10mg.  It works in a couple of weeks and I still take it today b/c it works so well.  Well, and Dr orders too.  Haha :bandance;
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
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angellady07
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« Reply #17 on: October 18, 2007, 05:29:10 AM »
I'm decorating for halloween. It's so much fun. I think I'm really about 6. (not 6 x 7) Fall is in the air. Life is good.
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KT0930
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« Reply #18 on: October 18, 2007, 05:56:12 AM »
Quote from: angellady07 on October 18, 2007, 05:29:10 AM
I'm decorating for halloween. It's so much fun. I think I'm really about 6. (not 6 x 7) Fall is in the air. Life is good.

Halloween is my favorite holiday!! (Good thing it's hubby's too!)
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
KR Cincy
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« Reply #19 on: October 18, 2007, 06:15:24 AM »
LOTS of good things...
Yesterday was my day off dialysis...always a good day!
I'm married to the most amazing woman EVER!
I have a wonderful 8 year old (step)daughter!
Though I'm kidney-free, I'm also currently cancer free!
I work fulltime, went to a comedy club last night, going to the theatre tonight, all normal stuff in the midst of a truly abnormal situation!
I'm blessed with great friends and a loving, supporting family!
I've found this place to share all this craziness with...thanks all!
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Not giving up...thanks to Susan.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #20 on: October 18, 2007, 06:48:11 AM »
Quote from: donnia on October 17, 2007, 07:14:40 PM
Yes Karol... we are lucky that dialysis is an option.

I had dialysis today, and surprisingly laughed for about 3 hours strait!  My techs and nurses are honestly very cool.  I mentioned in another thread about a benefit dinner and auction that I am having on Nov. 10th.  Well my lead nurse told me to bring a flyer to the clinic to hang up.  I did today, and every nurse and tech made it a point to come to me personally to tell me that they will be there.  I thought that was very nice... and it made me smile.  My clinic makes me not dread going to dialysis.... and that makes me smile too   :2thumbsup;

That is such a heartwarming story. I read a lot on this forum about uncaring techs at dialysis centres so it really is refreshing to hear this.
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Ken
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Dogs & IHDer's are always glad to see you!

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« Reply #21 on: October 18, 2007, 11:02:48 AM »
I'm pet sitting a friend's dog, so now we have 3 in the house!
I finished my screen printing project for class today!
I actually feel fine today (except for the pesky, itchy mosquito bite I just got)!
I'm not cold!
I'm going to Buffalo on the 3rd for a Bengals/Bills game with my husband, Mom and my Mom's boyfriend!
I get to go visit my family for Christmas (after 3 years of Christmas with the hubby's family)! Yeah!
I have a 3.85 GPA at school!
I'm addicted to IHD!
My husband is AWESOME (and so are my dogs!

 :bandance;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MooseMom
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« Reply #22 on: October 18, 2007, 03:43:11 PM »
These are all great things!  Life goes on despite kidney disease and dialysis, though sometimes it is hard to remember that.  It is good to be reminded.

So, keep the stories coming!  Let's hear more good news!  Tell us all about the happy things that are happening to you today!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Amanda From OZ
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« Reply #23 on: October 20, 2007, 01:04:18 AM »
My dog learnt how to roll over for the first time in 13 years...  ;D
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Aldente
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« Reply #24 on: October 20, 2007, 09:52:30 AM »
Yesterday I had my schnauzer Ilsa groomed and she looked so good I took her to the home training unit of my dialysis center.  It was not an exceptionally good day for the staff but when they came out to look at her they had  big smiles on their faces.

When I do home hemo, Ilsa goes to another room while I do my hookup and then comes back and lies on the floor while I do my treatment.  Unlike testy in-center neighbors she never complains about my stories, my singing, my selection of TV programs or my occasional snoring.

Life is good...
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