I'm very upset right now

[stauffenberg]

In the course of my many medical examinations for the transplant I had after 8 years of using a permcath, there was found to be NO narrowing of the arteries around the heart.

[paddbear0000]

Adam, I just read this for the first time! I'm so sorry to hear about your troubles. I hope things get better soon!   

[Adam_W]

I'm scheduled for fistulagram number three tomorrow morning. There is so much concern over my access right now that my doctor personally called me about it, which is pretty rare. Usually it's the dr's medical assistant that makes calls. Depending on what is found tomorrow, they said that I may have to go back to my vascular surgeon who put the graft in, and he may have to go back in there and make a revision. That doesn't sound fun, but I'll do whatever is necessary to save this access. Sometimes I just want to find the biggest hole to curl up into.

Adam

[paddbear0000]

Hopefully they get it right this time! 

[Joe Paul]

That sucks Adam, but I hope whatever they do works and isn't painful

[kitkatz]

You will probably find me down in the hole when you get there!

[Adam_W]

You will probably find me down in the hole when you get there!

Cool, we can have a "hole ho-down".

[Rerun]

Try and keep your HCT around 33 and not more even though they will try to push more EPO on you for financial purposes.  Also, ask your surgeon or Neph if is would help taking a baby aspirin (81mg) once or twice a week to keep your vein cleaned out. 

I would have quit dialysis if it had happened to me a week later.  Seriously, one fistula revision EVER is too much for me.

Good Luck and hang in there. 

Again,..... there is a "doctor" who dialyzes in my center with a catheter and no intentions of getting a fistula.  What does that tell us?

[Redbomb]

Again,..... there is a "doctor" who dialyzes in my center with a catheter and no intentions of getting a fistula.  What does that tell us?

What that tells me is that 1) He doesn't like to swim.  2) He doesn't S.C.U.B.A Dive, 3) If he has to follow the same rules I do he's not taken a shower since it was put in.

I want to do all of those things again, so I can't wait to get this DAMN thing out of my chest!

[skyedogrocks]

Hope the fistula gram goes well Adam.  Rob knows your annoyance all too well as he has issues with his fistula too.  Good Luck!

[KT0930]

Thinking of you, Adam. Hope it went/goes well today.

[Adam_W]

Well, I just had the fistulagram, and they found NO stenosis. That's a good thing, but it still doesn't explain why I'm having these problems. I know an infection can cause the whistling sound that I'm having, but I have no other symptoms of infection. The thrill is still kind of going in and out. Sometimes it will be nice and strong, and sometimes I can't feel it at all. They didn't want to give me a catheter yet, because they are still sure these problems can be resolved. I wish I had the same confidence, and I'm probably going to talk directly to my doctor himself, and demand a catheter until we can find this mysterious problem with my graft. It's either that, or not dialyze, and I'm definitely not going to stop dialyzing any time soon. I'm waiting to hear back from my nurse who is getting all my records from the kidney institute. I am nervous about doing my dialysis today, but I didn't dialyze yesterday so I don't really have a choice. I am going to at least wait to get on the machine until after I talk to my nurse, and I may see if I can go into the centre so she can actually see for herself what's going on when I cannulate and do my treatment. I don't know when this is going to end. 

Adam

[paddbear0000]

Could your BP be fluctuating a lot? My BP can go from super high to super low and back again in a matter of hours or minutes. That might explain the fluctuations of thrill and excessive bleeding.

[Laurie]

Adam, I hope they get it figured out soon 

[kellyt]

Good Luck.  I hope they figure it all out SOON!   

[lamillinger913]

Adam, I'm sorry to hear about your graft problems, and I hope they can get it repaired.

It seems like it's always SOMETHING, doesn't it??

I had been having problems with excessive bleeding and a spot on my fistula where it looks like the skin is getting kind of thin. I had a fistulagram and fistula-plasty (sp??) last week (it had been 6 months since my last one) and it seems to be working better now. There was one area of stenosis that was cleared out.

But they want me to go back to the vascular surgeon and see what he thinks about a revision or new fistula. So I am kind of pissed. Aren't fistulas supposed to last longer than 2 years? And did I do something wrong that this one has to be revised or replaced so soon?

[donnia]

   Hope everything goes well at dialysis!!!  Saying a prayer for you Adam.

[Black]

...  I may see if I can go into the centre so she can actually see for herself what's going on when I cannulate and do my treatment. I don't know when this is going to end. 

Adam

How did it go?  What did the doc say?  Did the nurse get to watch?