I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 23, 2024, 06:55:07 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Should I get involved
0 Members and 3 Guests are viewing this topic. « previous next »
Pages: 1 [2] 3 4 Go Down Print
Author Topic: Should I get involved  (Read 20009 times)
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #25 on: October 04, 2007, 08:47:05 AM »

I don't post much, but I have to say.... I really hope I sit next to one of you when I have to start dialysis!!!! You're all awesome!
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859


« Reply #26 on: October 04, 2007, 10:03:01 AM »

Keefer, what a hero you are to that man!  It is so easy to keep to ourselves and not reach out.  Thankfully for him, you reached out and helped.  :bow;
Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3777

« Reply #27 on: October 04, 2007, 03:14:42 PM »

A story like Keefers shows you can make a difference.
Logged
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #28 on: October 15, 2007, 04:49:32 PM »

Well Stuart I think is heading south. Last Friday he showed up but then decided to leave right away. He was here today I said hi but he was waiting to leave again. I asked the nurse and she said we are trying everything to get him to stay but he left again with out going on. Man that is 5 days straight without dialysis on top of all the short days before that...
Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
angela515
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3385


i am awesome.

« Reply #29 on: October 15, 2007, 05:25:02 PM »

Least you tried.

Sounds like he didn't want to do dialysis to begin with, but also didn't want to just quit..  I pray he has a painless end.
Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Black
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1243


« Reply #30 on: October 15, 2007, 05:49:12 PM »

Well Stuart I think is heading south. Last Friday he showed up but then decided to leave right away. He was here today I said hi but he was waiting to leave again. I asked the nurse and she said we are trying everything to get him to stay but he left again with out going on. Man that is 5 days straight without dialysis on top of all the short days before that...
Boxman

At least you tried; you have a kind heart.   :cuddle;

Has the SW not tried to talk to him or anyone in his family?  It's not fair to you that you are trying to do their job.

Let's pray that he still has some residual function which will hold him until he comes to terms with dialysis.
Logged

Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
lola
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2167


I can fly!!!

« Reply #31 on: October 15, 2007, 05:53:38 PM »

Boxman at least you tried but he's made up his mind. K-man you are so awsome and I love you and miss you in chat!!!!! :cuddle;
Logged

boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #32 on: November 13, 2007, 05:47:04 PM »

Well Stuart is still up to his leaving early. He now says hi to me by name though. I learned that his speech problem was caused by a stroke he had awhile back. When he was trying to leave early again Monday, the nurse asked him if he wanted to die, Stuart didn't answer right at first, she then said "yes-no- maybe" Stuarts answer finally was "maybe" Sitting next to him and watching and listening to him create a scene until they take him off early every time is driving me nuts. Honestly I don't know how he lasts with hardly a hour or so of dialysis each time...Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
MyssAnne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1776


« Reply #33 on: November 13, 2007, 06:00:21 PM »

It makes you wonder if the stroke caused damage to his facility to reason and to think as wel. SURELY he has a caregiver? There is NO way he could be living on hs own!!  Boxman, and Keefer, I give you guys kudos for reaching out. Good for you guys.
Logged
angela515
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3385


i am awesome.

« Reply #34 on: November 14, 2007, 06:47:19 AM »

It makes you wonder if the stroke caused damage to his facility to reason and to think as wel.

Doesn't make me wonder one bit.... I can totally understand someone not wanting to do dialysis at all, or anymore... I just dont get why bother coming in for an hour to just leave... makes me think he's truly unsure, and hence why he said "maybe", as he don't know for sure yet, which is why he comes and does at least some of the session.
Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #35 on: November 14, 2007, 01:02:24 PM »

I totally agree with Angela.   Why does he go through all the trouble to go and then just leave? Maybe he's being sent there by a higher power  and you're supposed to intervein.   ???    Give him the flier - lay your hand on his shoulder - hopefully he'll respond.  Good Luck!   :thumbup;
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #36 on: November 14, 2007, 04:33:53 PM »

Today they hooked him up at 1:10pm (I overheard the nurse say they needed to remove 4.2 kilos) and he was trying to stand up and leave by 2:00pm Both me and another patient, Kristine who sits on the other side of Stuart tried to convince him to stay longer but, he does not listen to anybody. He even tries to stand while his cath is still hooked to the machine. He is very determined when he wants to leave....Boxman

PS There is a social worker that sits with him while he has dialysis but, she can't get him to stay either, she just makes sure he gets on the right transport bus.
« Last Edit: November 14, 2007, 04:36:36 PM by boxman55 » Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
goofynina
Member for Life
******
Offline Offline

Gender: Female
Posts: 6429


He is the love of my life......

« Reply #37 on: November 14, 2007, 04:41:07 PM »

I dont get it, why do they allow him to continue to come in?  I am sure there is someone who wants or needs that chair and is serious enough about their lives that they would take advantage of the 3 or 4 hours they can dialyze.  It is obvious that he does not and i think they should give him a wake up call and tell him that with no treatment he will be dead in so long and if that they are considering dropping him for being so non compliant,  (to me THAT is what noncompliant is) sheeesh  :twocents; 
Logged

....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
Member for Life
******
Offline Offline

Gender: Male
Posts: 43869


« Reply #38 on: November 14, 2007, 06:41:26 PM »

Just let him kill himself.   no (JK) I would talk to him once and try to explain to him he is upsetting others. If he gets crappy with you than ask him why he comes at all. If he still gets crappy then just let him kill himself. But then again thats just lil ole me Mr Insensitive.


:bump;
Logged
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #39 on: November 16, 2007, 04:26:31 PM »

Stuart was gone by 2pm again today.  (one hour on the machine) I found out from a tech today that for some reason he didn't know why, the Doctor reduced some meds Stuart was taking to keep him more or less sedated so he wouldn't get so nervous and want to leave early. I also found out that they crank the machine up to get as much fluid off of him in a hours time knowing that he will want to leave early. That doesn't seem like the right approach but who am I to diagnose...Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859


« Reply #40 on: November 16, 2007, 04:33:16 PM »

I feel sad for Stuart.  One day he just won't be there anymore and you, Boxman, may be the only one who cares.  What a kind person you are.
Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
Member for Life
******
Offline Offline

Gender: Male
Posts: 43869


« Reply #41 on: November 16, 2007, 04:34:48 PM »

Stuart was gone by 2pm again today.  (one hour on the machine) I found out from a tech today that for some reason he didn't know why, the Doctor reduced some meds Stuart was taking to keep him more or less sedated so he wouldn't get so nervous and want to leave early. I also found out that they crank the machine up to get as much fluid off of him in a hours time knowing that he will want to leave early. That doesn't seem like the right approach but who am I to diagnose...Boxman


I'm surprised they gave you that information but a little relieved that they are taking somewhat corrective action to deal with this individual.
Logged
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #42 on: November 19, 2007, 10:45:14 PM »

I wanted to update on Stuart today (Monday) but, I was told by a tech that he came in, they started soaking his cath and before they could hook him up, he wanted to go and did. Never saw  him today. Retaining fluid all weekend and then no treatment on Monday man I don't know how he can do it...Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
paddbear0000
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2384


Dogs & IHDer's are always glad to see you!

WWW
« Reply #43 on: November 20, 2007, 08:49:10 AM »

I would think that with all those toxins building up, his mind isn't quite right (more so than before). I'd be prepared not to see him much, if at all, anymore!   :(
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #44 on: November 27, 2007, 10:05:00 AM »

Any update on Stuart?
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #45 on: November 27, 2007, 01:39:26 PM »

Yes as a matter of fact, I found out that Stuart's caregiver is his brother and I was told that he is forcing Stuart to go to dialysis. Stuart has said a few times that he doesn't want to be there. Both Friday the 23rd and Monday (yesterday) he was in his chair for just over a hour and then started acting up, I have been told that he has come close to pulling his cath out (once or twice) while he is trying to get out of his chair. Now me only sitting 5' from him with just a half wall between us, that could get a little messy. He looks the same but he was coughing a lot yesterday. Like I said before because they run him as fast as they can while he is on they still can not get all his blood clean or all his fluid removed. It will catch up to him soon I've been told. All the techs (at least the ones I have talked too) have opinions and concerns...Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Wattle
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2306


« Reply #46 on: November 27, 2007, 02:01:11 PM »



:cuddle;  Boxman I am sorry you are on the same shift as Stuart. It seems as if everyone has tried to help but he just doesn't want to help himself. We all know dialysis is not for sissies (thanks to KT0930 hubby) and we all have to take responsibility for our treatment. It will catch up with him and I really hope he is not sitting next to you when it does. I realize he has problems but I think he is incredibly selfish to put the rest of the clinic through his drama. Maybe he needs to be admitted to hospital to be properly assessed mentally and have some descent dialysis. He may then feel a little better and be more able to think clearly.

You have done what you can and what ever the outcome, you will always know you tried to help him.   :grouphug;
Logged

PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Lori1851
Full Member
***
Offline Offline

Posts: 363


This is me Lori , Dustin's mom

« Reply #47 on: November 27, 2007, 02:03:51 PM »

Boxman,
Maybe a nice magazine handed to this guy may give him something to due. LOL Not a dirty one either lol lol just kidding.
Anyways, you are at doing your part by acknowledging him.

Lori/Indiana mom to Dustin 22 fsgs/dialysis
Logged
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #48 on: November 27, 2007, 03:23:27 PM »

Thanks for your thoughts Wattle and Lori, I'd like to knock him out then at least he would sleep through his treatment...Boxman
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Lori1851
Full Member
***
Offline Offline

Posts: 363


This is me Lori , Dustin's mom

« Reply #49 on: November 27, 2007, 03:38:13 PM »

Boxman,
Sounds like Sturat needs an antidepressant did wonders for my son. Poor guy. I will pray for him. I pray for all of you's anyways ;) Hey whats one more! God knows I need it!
Lori/Indiana
Logged
Pages: 1 [2] 3 4 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!