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Author Topic: Are you about to start dialysis? Ask any questions come here and get the truth.  (Read 110997 times)
BRANDY
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« Reply #50 on: April 03, 2009, 12:30:48 PM »

Yes but I tend to not do it alll the time.  Zach  you would be a good one to ask I think    what is my fistula  to look like and how long  and how hard . ??????
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
Zach
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"Still crazy after all these years."

« Reply #51 on: April 03, 2009, 01:50:13 PM »


Yes but I tend to not do it alll the time.  Zach  you would be a good one to ask I think    what is my fistula  to look like and how long  and how hard . ??????


Not sure what you mean (how long  and how hard)?

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MandaMe1986
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« Reply #52 on: April 03, 2009, 02:18:31 PM »

(how long and how hard?) :rofl;
sorry guess i have a bit if a dirty mind
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
dwcrawford
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Getting the heck out of town.

« Reply #53 on: April 03, 2009, 05:02:22 PM »

I thought the fistala went into your arm!
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
David13
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A meow massages the heart.

« Reply #54 on: April 03, 2009, 05:07:04 PM »

 :rofl;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
MandaMe1986
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« Reply #55 on: April 03, 2009, 05:31:20 PM »

 :rofl; :rofl;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paris
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« Reply #56 on: April 03, 2009, 06:11:19 PM »

I am cracking up  :rofl;  Wait until RichardMel reads this one!   Someone please answer the question seriously---maybe not MandaMa---we know where her mind is!   :rofl;   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.

« Reply #57 on: April 03, 2009, 06:14:56 PM »

And what was the question?  Oh, please don't joke about the fistala tonight.  I have to decide by Tuesday if that's what I'm going to do.   
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
paris
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« Reply #58 on: April 03, 2009, 06:24:14 PM »

You can do this DW!  You have learned so much in the past few weeks.  Fistula is a good idea.  You have lots of support here.   :grouphug;

Brandy, how is the fistula doing?  Keep exercising it!   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MandaMe1986
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« Reply #59 on: April 03, 2009, 06:28:02 PM »

Dan seriously, my thoughts are with you.  This is a really big step for you.  But I am gonna add my  :twocents; in.  I like talking to you in the chat, I would like to see you there for a long time...  But here is a  :grouphug; for you. 
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
dwcrawford
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Getting the heck out of town.

« Reply #60 on: April 03, 2009, 06:29:56 PM »

I was joking about not joking... go for it.

Look at the little say under my ass... I'm getting there fast.
Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
MandaMe1986
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« Reply #61 on: April 03, 2009, 06:47:58 PM »

wont you look at me I joke on a serious question and I am serious on a joke... :clap;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
BRANDY
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« Reply #62 on: April 03, 2009, 09:27:18 PM »

Alright Manday I first had wrote totally wrong as to it really sounded dirty   SOooooo I inserted fistula so it woulnt sound quiet so bad ....... But seriously now  I had my fistula surgery Feb 12  now my vein is getting bigger it is puffy and sounds strong and have a nice thrill.  How big and hard does it get   My Vein I guess is what I am talking about .  Now get your mind out of gutter please.I really want to know .  I would have ask neph but I didnt think to ask.
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
circleNthedrain
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« Reply #63 on: April 03, 2009, 11:04:57 PM »

Adam to Eve..."Stand back, I don't know how big this thing gets!"  But seriously Brandy, all fistulas are different.  The most important thing is to exercise it in the early days.  As long as its pumping and the thrill is good, your in good shape. 
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
dwcrawford
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Getting the heck out of town.

« Reply #64 on: April 04, 2009, 04:48:01 AM »

I want to know about the thrill???  Is it loud?  Can you feel and/or hear it all the time?  Will people hear it and know you  are coming?
Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Zach
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"Still crazy after all these years."

« Reply #65 on: April 04, 2009, 04:51:40 AM »


Adam to Eve..."Stand back, I don't know how big this thing gets!"  But seriously Brandy, all fistulas are different.
 

 :rofl; :rofl; :rofl; :rofl; :rofl;
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MandaMe1986
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Posts: 2464


« Reply #66 on: April 04, 2009, 09:35:10 AM »

Okay my mind is out of the gutter...  :2thumbsup; 

But no it sounds like it is doing what you want it to do. I don't have one but if everyone around here says so then it must be ture.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
BRANDY
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« Reply #67 on: April 04, 2009, 07:34:23 PM »

Thanks  I guess I cant ask anything else about it   I got the thrill and pulse going on  so I guess Im in good shape .   I was around some people today and they were looking at my arm  and was really freaked out at what it looks like   ???   I thought it looked pretty goood.  :bandance; Of course to them I look deformed.   I thought My  pulsating fistula looked awful goood.  They didnt know what it is supposed to look like .      Thanks for your time
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
circleNthedrain
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Posts: 211


« Reply #68 on: April 04, 2009, 11:09:27 PM »

Hi DWC...No, people will not hear you coming....unless you've been eating beans!  Mine buzzes, but I can only hear it if I put it near my head when it's on the pillow.  I can only feel it if I touch it with my other hand, then WOW. 
Logged

1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
RichardMEL
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« Reply #69 on: April 05, 2009, 07:30:10 AM »

yes well.. interesting reading here.. and I best not comment on Manda's dirty mind... I'll just send her some PM's on that subject  :rofl;

As others have said fistulas are different.. and indeed mine sometimes gets better and smaller (hmm must be based on if I see a pretty girl or not!!!  :rofl;) and everyone's are different. They're not all the same at all.

As for hearing it. no... it doesn't sound like you've got a vibrator in your pocket or something!! :) You can only "hear it" when you feel it through a pillow or something like circ says. I mean it is just blood rushing through there that creates it. I remember when someone asked me if I had batteries stuck in there that made the buzz...  :rofl;

Just remember.. if the thrill stops.. get to an ER ASAP!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MandaMe1986
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« Reply #70 on: April 05, 2009, 09:51:01 AM »

Me a dirty mind? Never!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
MandaMe1986
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Posts: 2464


« Reply #71 on: April 23, 2009, 02:44:36 PM »

acspears happy to have you, welcome to IHD.  This is a wonderful site to help with lots of questions.  If you wouldn't mind going to the Introduce your self and let everyone know who you are and whats going on I am sure tons of people will have answers for you.

I understand being scared, its scary stuff. But it is going to be oaky.  You will find out all the good and bad about dialysis.  The vomiting, dizzyness, blurry vision is pretty normal.  Once he starts dialysis he will start feeling better.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
vcarmody
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WWW
« Reply #72 on: September 23, 2009, 04:59:27 PM »

My husband was supposed to start dialysis today.  Unfortunately they infiltrated him.  His fistula was done on April 14, he has also had two prior angioplasty (one on 08-28 and one on 09-11) to try and get it to mature.  They say his fistula is ready (although the Dr that did the angioplasty said it was not ready) so they want to try again on Friday. I am really concerned because I am afraid they are going to damage his fistula so it can not be used. I basically rely  on this site and the people here to give us advice being that we know nothing about this whole dialysis thing.  Can anyone give me suggestion, should we try again or suggest they give his fistula more time?  His Kidney function is down to 12% and he has been feeling really bad lately.   :thx;
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Caregiver to husband Chris, NxStage 11-2009
Zach
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"Still crazy after all these years."

« Reply #73 on: September 23, 2009, 05:20:04 PM »


His fistula was done on April 14, he has also had two prior angioplasty (one on 08-28 and one on 09-11) to try and get it to mature.


Has he been exercising it?

8)
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
vcarmody
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Posts: 177

WWW
« Reply #74 on: September 23, 2009, 06:02:22 PM »

Yes, he squeezes his kidney that they gave him daily.  The one doctor says there is a vein that is taking some of the blood flow away from the fistula he suggested that his vascular surgeon do another surgery and block off that vein, but his neph felt this was not necessary.   
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Caregiver to husband Chris, NxStage 11-2009
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