Missing Dialysis

[rose1999]

Hi, I wonder if anyone can tell me how long someone could go without dialysis before becoming ill?  The reason I ask is that Dad (recently started HD in Kidderminster, UK, about 25 miles away from home) lives "out in the wilds" and is concerned that, come winter, he may be snowed in.  Hopefully this would only be for a matter of a few days, but he's worried.  I've told him to ask at the unit, but he's 78 and forgets to ask.  He could obviously move nearer the unit, but then he'd be further away from me and I can't move because of my job.  If I could tell him that a week wouldn't harm him too much (or that it would - if it will!) then I could hopefully set his mind at rest.
Thanks everyone, I feel as if I'm always asking questions and never answering them - sorry 

[EMMA]

Rose...

I really think you father's dr. should answer this question.  I think going for a week (or even a few days) with out dialysis would be detremental to your father..the fluid build-up alone could cause heart failure...

This is a really tough situation.  Is he capable of perhaps doing a home program?  That would give him more independance and you could always check in...

hope this helps.

Em

[okarol]

This is part of the info available from: Preparing for Emergencies: A Guide for People on Dialysis cms.hhs.gov/MLNProducts/downloads/10150.pdf

Prepare an Emergency Stock of Supplies, Medicines/Medical Supplies, and Food

Keep your emergency supplies together. You may want to
designate a box or some shelves for your emergency supply.
Check and restock every 6 months.

Emergency Supply List
__ measuring cups, teaspoons and tablespoons, dropper
__ plastic knives, spoons, forks
__ pack of napkins and paper plates
__ pack of plastic or styrofoam bowls
__ paper towels
__ pack of plastic cups
__ candles
__ matches
__ can opener (manual)
__ baby wipes
__ sharp knife
__ flashlight & batteries
__ scissors
__ garbage bags
__ plastic jug for storing water
__ 1 small bottle of household chlorine bleach
__ piece of cloth, cheese cloth, or handkerchief
__ strainer
__ extra pair of eye glasses (in case first pair breaks)
__ radio & batteries
 
Emergency Medication/Medical Supply List
__ first aid kit
__ 5-7 day supply of all your medicine(s)
__ 5-day supply of antibiotics (if you use peritoneal dialysis
and recommended by your doctor)
__ Diuretics (fluid pills), sorbitol, and Kayexalate for
potassium control (if recommended by your doctor)
Also, if you are diabetic:
__ 5-7 day supply of syringes
__ 5-7 day supply of insulin (Keep cool but do not freeze.
Best kept refrigerated, but will keep at room
temperature for up to one month.)
__ 5-7 day supply of glucose monitoring supplies like lancets
and alcohol wipes.
__ If you use a glucose meter, have spare batteries and   
test strips.
If you have heart disease:
__ 5-7 day supply of all blood pressure, heart, or anti-     
clotting medications.
NOTE: If you use a mail service pharmacy, have them send
your medicines a week before you run out. Allow extra time
for processing and mailing back to you.
Also, keep a supply of medicine at your work place or any place
you spend a great deal of time, like a family member’s home.
 
Emergency Food List (See Emergency Diet Plan below)

This list provides a 6 day supply of canned foods and water.
Use fresh foods as long as they are available.
__ 3 packages of dry milk OR 4 – 8 ounce (oz.) cans
evaporated milk
__ 1 or 2 gallons of distilled or bottle water
__ 2 packages powdered fruit-flavored drink mix OR 1
container fruit-flavored drink (pre-mixed)
__ 1-2 cans or bottles of soft drink
__ 6-pack of 4 oz. cans or boxes of fruit juice (cranberry,
apple, or grape)
__ 6 boxes of single-serving cereal (No Raisin Bran)
__ small box white sugar (or box of sugar packets)
__ 12 – 4 oz. cans or “fruit bowls” of fruit (pears, peaches,
oranges, mixed fruit, applesauce, or pineapple. NO raisins)
__ 6 – 8 oz. cans of low sodium vegetables (carrots, green
beans, peas, corn, or wax beans)
__ 6 – 3 oz. or 4 oz. cans of low sodium meat (tuna, crab,
chicken, salmon, or turkey)
__ 1 jar peanut butter
__ 1 small jar jelly or honey
__ 3 small jars mayonnaise (or 8-12 single-serve foil
wrapped packs)
__ 1 loaf regular bread* (not salt-free, with NO preservatives)
__ 1 box vanilla wafers OR graham crackers
__ 5 packages of candy (sourballs, hard candy, jelly beans,
or mints)
__ 1 package marshmallows
__ 1 jumbo pack of chewing gum
*Bread can be kept frozen for 3 months.

Know What Emergency Diet to Follow if Your Dialysis Might be Delayed

Dialysis takes the waste from your blood. Wastes and fluid
build up between dialysis treatments. Normally this build
up is small and does not cause a problem between regular
dialysis treatments. If your dialysis must be delayed, these
wastes and fluids can add up and cause problems. To keep
the build-up of protein wastes (BUN), potassium, and fluid
as small as possible, you need to follow a special strict diet.
This diet plan is not a substitute for dialysis.

The 3-Day Emergency Diet Plan (developed by the Northern
California Council on Renal Nutrition) limits your protein
(meat, fish, poultry, and egg), your potassium (fruits and
vegetables), salt, and fluid intake more strictly than your
regular renal diet. This diet provides about 40 grams of
protein, 1,500 milligrams (mg) of sodium, and 1,500 mg of
potassium per day.
If you can’t get dialysis, your life can depend on limiting the
amount of waste that builds up in your blood by changing
your diet. Look at this diet plan with your renal dietician to
see if it will work for you, or to see if it needs to be modified
to fit your special health needs. This gives you a chance to
ask questions before an emergency occurs. If you are on
CAPD and can’t get to your supplies to do your exchanges,
this emergency diet may also apply to you. You should
make every attempt to get dialysis within 3 days. But
if it takes longer, be sure to continue the 3-Day
Emergency Diet Plan until you can get your dialysis
treatment.
The meals can be stored and prepared with little or no
refrigeration. If your refrigerator is still working, use fresh
milk, meat, and poultry in the amounts listed in the diet.
Your food may stay fresh for a few days if your refrigerator
is not working if you limit the times you open its door. Use
the fresh food first, before you start to use the canned food.
One egg or 1 ounce of meat that has been kept at a safe
temperature can be switched for 2 tablespoons (tbsp.) of
peanut butter or 1 oz. of low-sodium canned meat.

3-Day Emergency Diet Plan
 
DAY ONE(Add 4 oz. of water to take medicine)

Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup 
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 can (2 oz.) canned peaches (drained)
 
Morning Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Sourballs (10)

Lunch
Peanut butter and jelly sandwich :
2 slices of bread
2 tbsp. peanut butter
2 tbsp. jelly
1/2 cup canned pears (drained)
4 oz. (1/2 cup) pre-made powdered fruit drink

Afternoon Snack
Marshmallows (10)
1/2 cup canned applesauce

Dinner
Chicken sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium chicken*
2 tbsp. mayonnaise*
1/2 cup canned low sodium carrots (drained)
1/2 cup cranberry juice

Evening Snack
Jelly beans (10)
Vanilla wafers (5) or graham crackers (1 1/2 squares)

*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.
If you are diabetic, avoid the sweets in this diet plan.
However, have some high sugar content foods like hard
candies in case you go “low” with too little sugar in
your body.

DAY TWO (Add 4 oz. of water to take medicine)
 
Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 can (2 oz.) canned pear (drained)

Morning Snack
1/2 cup canned applesauce
Jelly beans (10)

Lunch
Chicken sandwich:
2 slices of bread
1/4 cup (1 oz.) canned low sodium chicken
1 tbsp. mayonnaise*
1/2 cup pineapple (drained)
4 oz. (1/2 cup) pre-made powdered fruit drink

Afternoon Snack
Mints (10)
1/2 cup canned applesauce

Dinner
Tuna sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium tuna*
1-2 tbsp. mayonnaise*
1/2 cup canned low sodium peas drained
1/2 cup cranberry juice

Evening Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Sourballs (10)
*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.

DAY THREE(Add 4 oz. of water to take medicine)
 
Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 cup cherries (drained)

Morning Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Hard candies (10)

Lunch
Peanut butter and jelly/honey sandwich:
2 slices of bread
2 tbsp. peanut butter*
2 tbsp. jelly or honey
1/2 cup canned peaches (drained)
4 oz. (1/2 cup) cranberry juice

Afternoon Snack
1/2 cup canned applesauce
Jelly beans (10)

Dinner
Salmon sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium salmon*
1-2 tbsp. mayonnaise*
1/2 cup canned low sodium green beans drained
1/2 cup soft drink

Evening Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Marshmallows (10)
*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.

How to Disinfect Water
Keep distilled or bottled water on hand for drinking. If you
run out of stored water, you may disinfect available water
for drinking, brushing your teeth, or for other uses.  Do not
use disinfected water for dialysis.
1. Strain water through a clean cloth or handkerchief to
remove any sediment, floating matter, or glass.
2. Use 5.25% sodium hypochlorite solution (household
chlorine bleach). Do notuse bleach that has active
ingredients other than hypochlorite.
If the water is clear, use:
Water Bleach
One quart  2 drops 
One gallon  8 drops   
5 gallons  1/2 teaspoon 
If the water is cloudy, use:
Water Bleach
One quart 4 drops
One gallon 16 drops
5 gallons 1 teaspoon

Mix the water and bleach together thoroughly by stirring or
shaking them in a container. Let the mix stand for 30
minutes before using it. The water should have a slight
chlorine odor. If it does not, add the same amount of bleach
again, mix thoroughly, and let it stand for an additional 15
minutes before using it.
NOTE:You may also purify water with rapid boiling for 10
minutes.
Do not use water from a swimming pool or spa
because of the chemicals used to treat the water.

[BigSky]

Missing dialysis and feeling ill depends all on the person.  The less toxins that result the better they feel.

Some people build up toxins faster and will feel ill faster than others.  It breaks down to how much fluid they drink and what they eat and what they do.

While one can miss a treatment it is best not to miss them if they can. 

There is the emergency protocol that Okarol listed.   If you dad thinks he may get into a situation where he may have to miss a treatment because of the weather than it might be best for him to follow that protocol during the times the weather gets tough.


On the other hand if it is only occasionally that he might get snowed it, might it not be possible to arrange for him to stay close to the unit on occasion when the weather reports show that he may get snowed it.  Maybe stay with a friend for a few days around the time of bad weather??

[paris]

K.arol, thanks for the list. That is a good thing for all of us have on hand. The menu was especially helpful

[rose1999]

Hi Everyone
Thanks for the speedy and helpful replies, particularly Okarol for the trouble you've gone to.  Staying near the unit is an idea to think about, thanks for the suggestion BigSky, although he doesn't know anyone who actually lives in Kidderminster yet (he only began dialysis in April and is only just getting well enough to start to chat to people) but he could always book into a hotel for a few nights.  I agree that it's a question for his Doctor - if only he ever saw one!! He's been going there since he was discharged from hospital in April and is seeing the Doc for the first time since then at the end of this month.  I don't think we get the same level of care in this part of the UK as you seem to in the USA - although I appreciate it IS free here.  I will make sure we ask, but I wanted to know if any of you had any ideas, perhaps having gone through something similar yourselves.
Thanks again for all your friendly help.
Rose

[stauffenberg]

Missing any dialysis treatments will cause some unpleasant symptoms, but as has been pointed out above, it all depends on the person, especially what the pre-dialysis creatinine and potassium levels are, and how large the intradialytic weight gain is.  When patients ultimately get fed up with dialysis and are taken off the machine, it usually takes about 10 days for them to die.  If missing one or two treatments cannot be avoided in an emergency, it is best to minimize fluid as well as food consumption to keep toxins low.  Unfotunately, if the body begins to catabolize its own tissues for energy because the patient is not eating anything, the potassium level will rise quickly.  Extreme fluid excess and potassium excess are the two factors which are most able to kill the patient who skips dialysis, while excess creatinine will induce a coma and cause death more gradually.  Public authorities will regard a dialysis patient missing treatments because of the weather as an emergency requiring their intervention, so you could call the police or ambulance service to have your father taken to dialysis if normal transportation was impossible.

[goofynina]

Karol, that was an awesome post, thank you so much for that list, now i need to get to WalMart and load up on some supplies

[del]

We lived over an hrs drive away from the dialysis unit and had to travel in snow and bad weather.  There were a few times we went the night before and stayed with friends.  Especially if the forecast was for over 20 cm of snow.  During Easter one year we were over 5 hrs trying to get to the unit.  If oyu miss a treatment you need to be done a ssoon as possible after I think to avoid getting sick!!  Don't have to worry about the weather now with a machine at home!!

[KICKSTART]

I'm in the UK , and would think YOU need to bring this up with the clinic , if your dad's forgetful. We have ambulances here and i would think there is a strong possibility that they would try and send one out for him ? If the situation became critical , they would possibly air- lift him in and keep  him in hospital for the duration . I would check with his unit as you cant be the only one faced with this problem ?

[jbeany]

Just be careful with that menu for diabetics - it is not blood sugar friendly!  (Marshmallows for a snack - honestly, might as well just eat powdered sugar with a spoon!)

[okarol]

 

And some more info:

Emergency preparedness for people with kidney disease

An emergency can strike at any time. It may be widespread like a natural disaster or terrorist act; or it could happen on an individual basis, like a car accident. Regardless of its nature, an emergency can have a direct impact on you and your ability to receive dialysis. There are several steps you can take to make sure that in an emergency situation, you can receive the treatment you need, or at the very least, lessen the impact of missing a dialysis session.
The basic emergency kit for kidney disease patients

In a widespread emergency, power may be interrupted for several minutes or several days. Clean drinking water may be difficult to obtain. Your emergency kit should provide you and your family with the basic necessities. A basic home emergency kit should contain enough water and food for each person for at least three days, paper and plastic ware, a manual can and bottle opener, first aid supplies, a flashlight and a battery-powered radio. This kit should be stored in one place such as a lidded plastic trashcan or duffle bag, and should be easily accessible. The American Red Cross (http://www.redcross.org) has excellent and comprehensive disaster preparedness information. They have compiled a list of items that should be in your emergency kit at http://www.redcross.org/prepare/buildakit.html.

Kidney patients on dialysis should add several items to their emergency kit that will help meet their needs if an emergency happens. The kit should include the following:

    *      Emergency phone numbers for your doctors and dialysis center, as well as another nearby dialysis center
    *      At least three day’s worth of any medicines you are taking as well as a list of medicines and the dosage amount
    *      If you are on peritoneal dialysis, a week’s worth of dialysate and any supplies to help you do your exchange (waterless hand cleaner, etc.)
    *      If you are diabetic, a week’s worth of supplies (syringes, insulin, alcohol wipes, glucose monitoring strips)
    *      Food for the 3-day emergency diet and a copy of the diet (see above)

Place these items in a container or bag that can be carried easily if you need to be evacuated or moved from your home. Rotate the stock of your emergency kit to make sure supplies are not past their expiration dates.

For patients who rely on Cycler-Assisted Peritoneal Dialysis (CAPD), they can perform manual exchanges until power is restored.

When a widespread emergency occurs

If you are at home and uninjured, you should stay home unless instructed by emergency personnel. Watch television or listen to the radio for any news about your area. For weather related emergencies, you may have some time before the worst hits. Be aware of any weather watches in your area.

If you are on Continuous Ambulatory Peritoneal Dialysis (CAPD), continue to do your exchanges. PD patients who depend on a cycler can do manual exchanges. If power is unavailable and you do not know how to do a manual exchange, you should start the 3-day emergency diet. Hemodialysis patients should start the 3-day diet immediately.

Phone service may be interrupted or you may be instructed to leave the phone lines open for emergency calls. Once phone service becomes available, contact your dialysis center. You should also have your current address and phone number on file at the center so they can contact you and arrange a dialysis session as soon as possible.
Evacuating to a shelter

Sometimes an emergency will require you to leave your home and evacuate to a shelter on short notice. Remember to take your emergency diet items and your necessary medicines, which should be stored in a bag or tote that can be easily carried. Once at the shelter, alert the personnel about your medical needs.
An emergency at the hemodialysis center

Dialysis centers have comprehensive emergency guidelines to keep you safe. When you begin dialysis at your dialysis center, the Facility Administrator or other health care team member will explain what to do if an emergency situation occurs. If you would like a reminder, ask a member of your health care team what emergency procedures are in place.

If an emergency occurs, wait for instructions from health care team members. Your safety is their concern. In the rare and unlikely event health care team members are unable to provide instructions and you must disconnect your access yourself, there is an emergency disconnect pack attached to the side of your dialysis machine that should be within your reach. It contains the needed items to get off dialysis. Disconnecting your access improperly can be extremely dangerous. Ask your renal nurse to show you what to do if you must disconnect your access yourself.
Individual emergencies

Although individual emergencies are smaller in scale, they can still be as dangerous to your health. Medical-alert bracelets show emergency personnel that you have a special health condition. This is very important if you are unconscious or unable to speak.

If you are being treated for injuries, remember to protect your access. Do not allow anyone to inject medication into your access or place anything on it.
More information

    * The American Red Cross (http://www.redcross.org). The site also has downloadable information specific for patients with disabilities at http://www.redcross.org/pubs/dspubs/genprep.html
    * The Renal Network: An Emergency Preparedness Guide for Dialysis and Transplant Patients, a downloadable PDF (http://www.therenalnetwork.org/images/PatientEmergencyBook.pdf)
    * MedicAlert bracelets (http://www.medicalert.org

[twirl]

well darn it
Wed we got a chart with the information on our visits, our early releases and times we have missed and how that would influence in the likelihood of a dialysis related death
and as usual, I can not find it
will get another copy Monday and give you the info
I did not make 100%---kitkata put your stick away and give me a chance to explain
a couple of times I had to leave 20 -30 minutes early to make it to another doc's appointment
I did not make up a story or look for any reason to leave early
(I did that before I knew Queen Ruth and all my IHD friends)
I have missed but I reschedule
the info was interesting
and will get back with you
I have to force my butt to read it during the 4th hour-----that is the longest hour

[G-Ma]

Great suggestions all and I just wanted to add...depending on the size of the unit etc, many times different employees offer a bedroom to someone who needs an emergency stay.  This happened a few times in the unit I went to in ND, so be sure to talk to the dialysis center as well as the Dr for ideas in addition to IHD which is wonderful.
Ann

[okarol]

 

[Riki]

after I was infiltrated today, the head nurse wanted me to go home and come back Wednesday. There was no friggin way I was doing that. I wasn't about to go 4 days without dialysis.  I made them set up another machine to do single needle, as I wasn't letting them poke me a 3rd time either

[MooseMom]

after I was infiltrated today, the head nurse wanted me to go home and come back Wednesday. There was no friggin way I was doing that. I wasn't about to go 4 days without dialysis.  I made them set up another machine to do single needle, as I wasn't letting them poke me a 3rd time either

How does "single needle" work?  I've seen several references to that, but I have no idea what it means.

I can't believe they'd let you go 4 days without dialysis.  Well, yeah, maybe I CAN believe it.

I must be really tired because when I saw the title of this thread, "Missing Dialysis", I thought it was a thread about nostalgic feelings about D.

[Riki]

Not all machines are able to do single needle setups, from what I understand.  My unit uses Gambro machines, and there is a setting in it for this.

What they do is connect a Y adapter to a regular needle.  The Y has an artery side and a vein side.  Then there are 2 chambers (they call them balls, which makes for a lot of funny banter if the right nurses are on. *G*).  From what I understand, blood is pulled from you, and goes into the upper chamber, then goes through the dialyzer, and into the lower chamber.  It'll sit in the lower chamber until the upper chamber is full, then go back into you.  It's not the best dialysis, but it'll work if you can only get one needle

[Stoday]

I've had a single needle session a couple of times.

They don't like to do it because they throw away the normal dialyser and set of tubes and replace the lot with a single needle set.

[Riki]

I've only seen them do that if there is blood in the lines already.  If they haven't connected the patient yet, my nurses just connect the balls to the dialyizer.. it's like an adapter kit

[Sonarman2]

after I was infiltrated today, the head nurse wanted me to go home and come back Wednesday. There was no friggin way I was doing that. I wasn't about to go 4 days without dialysis.  I made them set up another machine to do single needle, as I wasn't letting them poke me a 3rd time either

How does "single needle" work?  I've seen several references to that, but I have no idea what it means.

I can't believe they'd let you go 4 days without dialysis.  Well, yeah, maybe I CAN believe it.

I must be really tired because when I saw the title of this thread, "Missing Dialysis", I thought it was a thread about nostalgic feelings about D.

"I thought it was a thread about nostalgic feelings about D."

VERY funny, RIKI!

[Riki]

It wasn't me that said it.. it was MooseMom.. *G*

[texasstyle]

it's important to add in if you have other health factors and if you are doing the renal diet. If that Potassium goes up......life threatning. The other toxins will make you ill also.

[D. Lund]

This is part of the info available from: Preparing for Emergencies: A Guide for People on Dialysis cms.hhs.gov/MLNProducts/downloads/10150.pdf

Prepare an Emergency Stock of Supplies, Medicines/Medical Supplies, and Food

Keep your emergency supplies together. You may want to
designate a box or some shelves for your emergency supply.
Check and restock every 6 months.

Emergency Supply List
__ measuring cups, teaspoons and tablespoons, dropper
__ plastic knives, spoons, forks
__ pack of napkins and paper plates
__ pack of plastic or styrofoam bowls
__ paper towels
__ pack of plastic cups
__ candles
__ matches
__ can opener (manual)
__ baby wipes
__ sharp knife
__ flashlight & batteries
__ scissors
__ garbage bags
__ plastic jug for storing water
__ 1 small bottle of household chlorine bleach
__ piece of cloth, cheese cloth, or handkerchief
__ strainer
__ extra pair of eye glasses (in case first pair breaks)
__ radio & batteries
 
Emergency Medication/Medical Supply List
__ first aid kit
__ 5-7 day supply of all your medicine(s)
__ 5-day supply of antibiotics (if you use peritoneal dialysis
and recommended by your doctor)
__ Diuretics (fluid pills), sorbitol, and Kayexalate for
potassium control (if recommended by your doctor)
Also, if you are diabetic:
__ 5-7 day supply of syringes
__ 5-7 day supply of insulin (Keep cool but do not freeze.
Best kept refrigerated, but will keep at room
temperature for up to one month.)
__ 5-7 day supply of glucose monitoring supplies like lancets
and alcohol wipes.
__ If you use a glucose meter, have spare batteries and   
test strips.
If you have heart disease:
__ 5-7 day supply of all blood pressure, heart, or anti-     
clotting medications.
NOTE: If you use a mail service pharmacy, have them send
your medicines a week before you run out. Allow extra time
for processing and mailing back to you.
Also, keep a supply of medicine at your work place or any place
you spend a great deal of time, like a family member’s home.
 
Emergency Food List (See Emergency Diet Plan below)

This list provides a 6 day supply of canned foods and water.
Use fresh foods as long as they are available.
__ 3 packages of dry milk OR 4 – 8 ounce (oz.) cans
evaporated milk
__ 1 or 2 gallons of distilled or bottle water
__ 2 packages powdered fruit-flavored drink mix OR 1
container fruit-flavored drink (pre-mixed)
__ 1-2 cans or bottles of soft drink
__ 6-pack of 4 oz. cans or boxes of fruit juice (cranberry,
apple, or grape)
__ 6 boxes of single-serving cereal (No Raisin Bran)
__ small box white sugar (or box of sugar packets)
__ 12 – 4 oz. cans or “fruit bowls” of fruit (pears, peaches,
oranges, mixed fruit, applesauce, or pineapple. NO raisins)
__ 6 – 8 oz. cans of low sodium vegetables (carrots, green
beans, peas, corn, or wax beans)
__ 6 – 3 oz. or 4 oz. cans of low sodium meat (tuna, crab,
chicken, salmon, or turkey)
__ 1 jar peanut butter
__ 1 small jar jelly or honey
__ 3 small jars mayonnaise (or 8-12 single-serve foil
wrapped packs)
__ 1 loaf regular bread* (not salt-free, with NO preservatives)
__ 1 box vanilla wafers OR graham crackers
__ 5 packages of candy (sourballs, hard candy, jelly beans,
or mints)
__ 1 package marshmallows
__ 1 jumbo pack of chewing gum
*Bread can be kept frozen for 3 months.

Know What Emergency Diet to Follow if Your Dialysis Might be Delayed

Dialysis takes the waste from your blood. Wastes and fluid
build up between dialysis treatments. Normally this build
up is small and does not cause a problem between regular
dialysis treatments. If your dialysis must be delayed, these
wastes and fluids can add up and cause problems. To keep
the build-up of protein wastes (BUN), potassium, and fluid
as small as possible, you need to follow a special strict diet.
This diet plan is not a substitute for dialysis.

The 3-Day Emergency Diet Plan (developed by the Northern
California Council on Renal Nutrition) limits your protein
(meat, fish, poultry, and egg), your potassium (fruits and
vegetables), salt, and fluid intake more strictly than your
regular renal diet. This diet provides about 40 grams of
protein, 1,500 milligrams (mg) of sodium, and 1,500 mg of
potassium per day.
If you can’t get dialysis, your life can depend on limiting the
amount of waste that builds up in your blood by changing
your diet. Look at this diet plan with your renal dietician to
see if it will work for you, or to see if it needs to be modified
to fit your special health needs. This gives you a chance to
ask questions before an emergency occurs. If you are on
CAPD and can’t get to your supplies to do your exchanges,
this emergency diet may also apply to you. You should
make every attempt to get dialysis within 3 days. But
if it takes longer, be sure to continue the 3-Day
Emergency Diet Plan until you can get your dialysis
treatment.
The meals can be stored and prepared with little or no
refrigeration. If your refrigerator is still working, use fresh
milk, meat, and poultry in the amounts listed in the diet.
Your food may stay fresh for a few days if your refrigerator
is not working if you limit the times you open its door. Use
the fresh food first, before you start to use the canned food.
One egg or 1 ounce of meat that has been kept at a safe
temperature can be switched for 2 tablespoons (tbsp.) of
peanut butter or 1 oz. of low-sodium canned meat.

3-Day Emergency Diet Plan
 
DAY ONE(Add 4 oz. of water to take medicine)

Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup 
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 can (2 oz.) canned peaches (drained)
 
Morning Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Sourballs (10)

Lunch
Peanut butter and jelly sandwich :
2 slices of bread
2 tbsp. peanut butter
2 tbsp. jelly
1/2 cup canned pears (drained)
4 oz. (1/2 cup) pre-made powdered fruit drink

Afternoon Snack
Marshmallows (10)
1/2 cup canned applesauce

Dinner
Chicken sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium chicken*
2 tbsp. mayonnaise*
1/2 cup canned low sodium carrots (drained)
1/2 cup cranberry juice

Evening Snack
Jelly beans (10)
Vanilla wafers (5) or graham crackers (1 1/2 squares)

*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.
If you are diabetic, avoid the sweets in this diet plan.
However, have some high sugar content foods like hard
candies in case you go “low” with too little sugar in
your body.

DAY TWO (Add 4 oz. of water to take medicine)
 
Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 can (2 oz.) canned pear (drained)

Morning Snack
1/2 cup canned applesauce
Jelly beans (10)

Lunch
Chicken sandwich:
2 slices of bread
1/4 cup (1 oz.) canned low sodium chicken
1 tbsp. mayonnaise*
1/2 cup pineapple (drained)
4 oz. (1/2 cup) pre-made powdered fruit drink

Afternoon Snack
Mints (10)
1/2 cup canned applesauce

Dinner
Tuna sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium tuna*
1-2 tbsp. mayonnaise*
1/2 cup canned low sodium peas drained
1/2 cup cranberry juice

Evening Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Sourballs (10)
*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.

DAY THREE(Add 4 oz. of water to take medicine)
 
Breakfast
Cereal and fruit:
1/2 cup milk or mix 1/4 cup evaporated milk with 1/4 cup
distilled water from sealed containers or disinfected water
1 box of cereal (single-serving) (No Raisin Bran)
1 tbsp. sugar
1/2 cup cherries (drained)

Morning Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Hard candies (10)

Lunch
Peanut butter and jelly/honey sandwich:
2 slices of bread
2 tbsp. peanut butter*
2 tbsp. jelly or honey
1/2 cup canned peaches (drained)
4 oz. (1/2 cup) cranberry juice

Afternoon Snack
1/2 cup canned applesauce
Jelly beans (10)

Dinner
Salmon sandwich:
2 slices of bread
1/2 can (2 oz.) canned low sodium salmon*
1-2 tbsp. mayonnaise*
1/2 cup canned low sodium green beans drained
1/2 cup soft drink

Evening Snack
Vanilla wafers (5) or graham crackers (1 1/2 squares)
Marshmallows (10)
*Perishable item: Throw away unused food in open
containers if not refrigerated or used within 4 hours.

How to Disinfect Water
Keep distilled or bottled water on hand for drinking. If you
run out of stored water, you may disinfect available water
for drinking, brushing your teeth, or for other uses.  Do not
use disinfected water for dialysis.
1. Strain water through a clean cloth or handkerchief to
remove any sediment, floating matter, or glass.
2. Use 5.25% sodium hypochlorite solution (household
chlorine bleach). Do notuse bleach that has active
ingredients other than hypochlorite.
If the water is clear, use:
Water Bleach
One quart  2 drops 
One gallon  8 drops   
5 gallons  1/2 teaspoon 
If the water is cloudy, use:
Water Bleach
One quart 4 drops
One gallon 16 drops
5 gallons 1 teaspoon

Mix the water and bleach together thoroughly by stirring or
shaking them in a container. Let the mix stand for 30
minutes before using it. The water should have a slight
chlorine odor. If it does not, add the same amount of bleach
again, mix thoroughly, and let it stand for an additional 15
minutes before using it.
NOTE:You may also purify water with rapid boiling for 10
minutes.
Do not use water from a swimming pool or spa
because of the chemicals used to treat the water.

it is always good to have a emergency stock. I love to hike and i always take my stuff as well as some emergency things with me.. You never when the odds r not in you favor......

[bevvy5]

I know this is an old post but that is a much better list of emergency food and diet that our unit gave us.  I have it on my list to do to go to Walmart and replace our emergency food - it gets outdated after a bit.  Will use this list and diet.

Thanks so much.

Any way to  maybe make that list a sticky?  It would be useful information.