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Author Topic: I've been liberated  (Read 3962 times)
Adam_W
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Me with Baron von Fresenius

« on: July 16, 2007, 06:21:04 AM »

I'm no longer a slave to the permacath! I had it taken out today. It hurts a little right now because the lidocain is startingto wear off, but it feels SOOOOOO good to have that thing out.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Hawkeye
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« Reply #1 on: July 16, 2007, 07:28:33 AM »

 :yahoo; :yahoo; :yahoo; :yahoo;
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It's not easy being green.
AlasdairUK
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« Reply #2 on: July 16, 2007, 07:41:29 AM »

I know the feeling. I was so happy to have the piece of plastic removed from my chest.I know I now have a large vein in my arm as a replacement to the plastic tube, but at least it is all me. It really helped me to feel normal again.
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
stauffenberg
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« Reply #3 on: July 16, 2007, 11:44:58 AM »

The debate between the permcath and the fistula will go on forever, it seems.  I never had any other dialysis access than a permcath, and I was quite happy with that situation.  Advantages of the permcath over a fistula include: 1) you may have an aritificial tube in your body, but your body is not itself disfigured; 2) the permcath allows free motion of both your arms during dialysis; 3) there is absolutely no pain on being connected to and disconnected from the dialysis machine; 4) my permcath had to be replaced only three times over nine years of dialysis because of infections, and there was no worry about fistulas gradually wearing out or malfunctioning from the start; 5) there was no recirculation problem possible; 6) I never had to endure the pain of a fistulagram; 7) I never had to endure the pain and inconvenience of surgery to build, repair, or reconstruct a fistula; 8) there was no waiting time between establishing and being able to use the type of access I had; 9) my pump speed was uniformly excellent from start to finish, at 450 rpm, with no changes such as are common with fistuals.
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jbeany
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Cattitude

« Reply #4 on: July 16, 2007, 11:49:21 AM »

Good for you, Adam!
 :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: July 16, 2007, 12:07:17 PM »

Yahoo!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #6 on: July 16, 2007, 01:20:43 PM »

Ohhhh i remember the day they took mine out and i was able shower again  :bow;  I can just imagine how great you must feel,  I'm so happy for you  :clap;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
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« Reply #7 on: July 16, 2007, 01:30:22 PM »

 :thumbup; I'm happy for you Adam.
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kitkatz
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« Reply #8 on: July 16, 2007, 02:13:35 PM »

I must have stood in the shower for an hour when I got mine out!  I hope your access works well for years!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
BigSky
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« Reply #9 on: July 16, 2007, 03:14:16 PM »

Good for you :2thumbsup;




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LightLizard
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« Reply #10 on: July 16, 2007, 04:06:04 PM »

yeah, congrats. it is a relief to get that thing out, finally.
actually, all of the methods of dialysis have their advantages and disadvantages, really.
the permcath takes some getting used to, and it does have it's limitations.
my belly tube keeps me from going swimming, which isn't a real big deal for me, but it is summer now, and i would enjoy a dip in the local pool.
i was quite surprised when my permcath came out. the doc almost had to put his feet on my chest to get it to let go. if i had have known it was that stable, i could have swung from a trapeze with it. but i was so cautious when i had it in. it makes you feel real vulnerable.
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Adam_W
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Me with Baron von Fresenius

« Reply #11 on: July 16, 2007, 05:09:14 PM »

i was quite surprised when my permcath came out. the doc almost had to put his feet on my chest to get it to let go. if i had have known it was that stable, i could have swung from a trapeze with it. but i was so cautious when i had it in. it makes you feel real vulnerable.
Yeah, mine was stuck in there pretty tight. My suture had started to come loose, and I was being VERY cautious so it wouldn't fall out, but the cuff was holding it in so tight it felt like I could have hung an engine block off of it.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
keefer51
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« Reply #12 on: July 16, 2007, 07:52:56 PM »

Yes Adam that is the best feeling. Mine was hell coming out too they had to cut allot of skin that grew around it. But now i can swim!!!!!!!!
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Joe Paul
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« Reply #13 on: July 17, 2007, 11:43:10 PM »

Congratulations! Now you can go swimming if you like  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
KT0930
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« Reply #14 on: July 18, 2007, 08:12:17 AM »

 :yahoo; I've been through it twice, so I know exactly how you feel! The second time I got it out was also the day they released me to take showers after getting my PD cath. I must have taken 3 showers in the first 24 hours!!!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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