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Bajanne
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« on: March 22, 2006, 05:13:27 PM » |
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I was just wondering how you guys found this board. I was trying to find all I could about dialysis, and went on a board at nephron.com. Some guy with a weird name Epoman had a post about a board named 'ihatedialysis.com', where he said you would get straight up answers and be able to vent without being censored.
I have not regretted one moment finding this website, as I see it as one of my major tools in dealing with this 'challenge'.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family!  |
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Sara
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« Reply #1 on: March 22, 2006, 05:54:18 PM » |
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I think I typed in "dialysis support" in Google, but I can't remember for sure.
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Sara, wife to Joe (he's the one on dialysis)
Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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kitkatz
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« Reply #2 on: March 22, 2006, 08:48:38 PM » |
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I was floating through the internet and ended up finding the site accidently.
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Rerun
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« Reply #3 on: March 22, 2006, 09:47:36 PM » |
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My favorate search engine is Dogpile.com and I typed in "People who hate dialysis" and I found my home!  |
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babi68
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« Reply #4 on: March 23, 2006, 12:08:55 AM » |
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I just typed into google -hate dialysis- and here I am  Liz |
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Bear
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« Reply #5 on: March 23, 2006, 03:59:17 PM » |
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I was pointed to the KPG Bulletin Board by the senior nurse at the Home Haemo unit. Then saw a refernce to this one. So use both about =ly. Went out down to "Sufferers' Parasites" to meet some Welsh friends up from Sydney for a conference @ Holiday Inn. Looking around for them in the foyer & got a call from the bar up on the balcony....2 good flights of stairs to get to it & I bounded up em 2 @ a time!!! My God, I thought, you wouldn't be able to pick me from a 'normal human' !  ....I couldn't have done it a year ago!  |
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waves...Bear
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Epoman
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« Reply #6 on: March 23, 2006, 04:14:19 PM » |
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I was pointed to the KPG Bulletin Board by the senior nurse at the Home Haemo unit.
Then saw a refernce to this one. So use both about =ly.
Went out down to "Sufferers' Parasites" to meet some Welsh friends up from Sydney
for a conference @ Holiday Inn. Looking around for them in the foyer & got a call
from the bar up on the balcony....2 good flights of stairs to get to it & I bounded
up em 2 @ a time!!! My God, I thought, you wouldn't be able to pick me from a
'normal human' ! ....I couldn't have done it a year ago!
Bear I noticed you have not replied to this thread: http://ihatedialysis.com/forum/index.php?topic=411.0 which is evident by your post here. Please read and reply now to that thread and start having more pride in your posts. I hope you understand why I am doing this. - Epoman |
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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Bear
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« Reply #7 on: March 23, 2006, 06:19:02 PM » |
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I did...but I just got timed out &
( O.K. _and_ )
lost it.
Maybe l8r...oops make that later
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waves...Bear
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okarol
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« Reply #8 on: June 18, 2007, 06:17:47 PM » |
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Searched in Yahoo for "dailysis support" - thought it was a joke because of the name so didn't look at the site for awhile. Got curious.
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keefer51
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« Reply #9 on: June 19, 2007, 07:41:06 PM » |
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A very dear friend who lives in Arizona called one night all excited about a article she found in, are you ready for this? The National Enquirer!! It was about someone who got a kidney transplant on a site called www.matchingdonor.com. From there i was hooked up to this wonderful site! |
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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st789
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« Reply #10 on: June 19, 2007, 08:11:40 PM » |
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Through search engine of google about dialysis and kidney transplant.
But I believe the Force of all the members here guide me here.
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thegrammalady
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« Reply #11 on: June 20, 2007, 01:58:15 PM » |
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i was reading posts on another board (don't ask which one couldn't remember if my life depended on it) anyway one of the posts was from someone who posts here and the web site was listed in their signature line. being the very nosy person that i am i came looking. haven't been back to that other site since.
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Meinuk
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« Reply #12 on: June 22, 2007, 12:32:28 PM » |
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I was googling Dialysis, stumbled accross the T-shirts, LOVED THEM! (miss you EPOMAN) and then found the boards....
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Ang
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« Reply #13 on: June 22, 2007, 08:02:29 PM » |
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live life to the full and you won't die wondering
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okarol
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« Reply #14 on: May 07, 2008, 06:46:11 PM » |
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Romona
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« Reply #15 on: May 07, 2008, 06:56:35 PM » |
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I think Sluff and Okarol referenced it on a NKF message board. I wanted to talk to people and couldn't get on that board so here I am.  |
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KT0930
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« Reply #16 on: May 07, 2008, 08:21:48 PM » |
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I was trying to find a local face-to-face group, so googled for dialysis support in Atlanta. I never did find a local group...oh well, you guys are better!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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flip
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« Reply #17 on: May 07, 2008, 09:01:29 PM » |
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Actually Okarol posted the link on another kidney site. Thanks, dear.
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That which does not kill me only makes me stronger - Neitzsche
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jbeany
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« Reply #18 on: May 07, 2008, 10:25:57 PM » |
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I was serching for more info on NxStage, found Epo's site about his and followed the link from there to here. That was almost two years ago - now I'm home with my own NxStage, and here all the time!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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alrightstill
Full Member
 Offline
Gender: 
Posts: 124
BAH!
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« Reply #19 on: May 07, 2008, 10:31:55 PM » |
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I think I did a google search too and found it. A few years back I did a search for dialsyis and came across a few yahoo groups. One you had to send in personal information to join (no offense - but no thanks) and another I actually did join, but was highly criticized for still having a permacath so I was completely turned off from any online discussion groups about dialysis. Something told me a few months later to try one more time and I did another search and came across this site..... and wasnt judged!!  So glad I found this place and I have learned sooo much!  |
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1992 @ age 12 i was suddenly diagnosed with ESRD.
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present: Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
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KidneyBoGo
Newbie
Offline
Gender: 
Posts: 3
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« Reply #20 on: May 08, 2008, 12:37:05 AM » |
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I believe I typed in "living with dialysis" on Yahoo search. And since I'm not looking forward to dialysis and I just hate the thought of it, I just had to check it out. What a pleasant surprise it was!  |
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celtic warrior
Jr. Member
Offline
Gender:
Posts: 57
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« Reply #21 on: May 08, 2008, 01:14:21 AM » |
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I found this board whilst looking for all the information I could get on ESRF. And from what I have read, THIS is the best place to come.
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monrein
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« Reply #22 on: May 08, 2008, 07:46:23 AM » |
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When I was told that my long lived transplant was now failing, I came home upset and did a Google search of...."i hate dialysis" since that was how I felt. Lo and behold, so did all these fine people here. There was no internet the first time around for me and this is a great spot to retreat to.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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oleboy
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« Reply #23 on: May 08, 2008, 08:44:55 AM » |
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When my doctor told me I would be looking at dialysis within 6-8 months, and having to be off work because of those nasty symptoms we are so familiar with I started surfing and using every search engines I could looking for answers to my questions and I found IHD.
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'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
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rose1999
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« Reply #24 on: May 08, 2008, 09:45:02 AM » |
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I've genuinely no recollection - just a random search for something about dialysis for Dad I suppose - and serendipity took over |
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I Hate Dialysis Message Board
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