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Author Topic: Steal Syndrome  (Read 2023 times)
Cowdog
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« on: April 03, 2019, 12:52:36 PM »
My hand had been getting progressively worse over the last year or so with numbness in fingers eventually progressing to numbness of my whole hand and sometimes at night extreme pain. I self diagnosed as Steal Syndrome some time ago but about a month ago I finally went to get a real diagnosis from my Interventionalist. He agreed it was Steal and we decided on a course of action.
A week ago Monday he went in for a look using contrast to verify what he had seen on ultrasound. Found to be as suspected with an almost fistula flow going around through my palm and dumping the blood into my fistula so the fingers/hand were blood starved. During this look he measured the guilty artery so he could order coils the correct size to occlude it.
Monday of this week he went back in and placed a coil in the artery just before it reaches my fistula. Feeling came back into most of my hand almost immediately, today there is still some numbness in my fingertips but it is so much better than before.
I went in this morning for follow up and stitch removal. Dr believes the feeling will come back to the finger tips over time. They were blood starved the longest so have the most damage.
I am so blessed to have my team of Drs in my life!!!
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Hemo in Center since 11/2008
Self Cannulate since 2011
In Center Self Care since 2012
iolaire
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« Reply #1 on: April 03, 2019, 01:35:34 PM »
Glad you were able to get it fixed.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #2 on: April 03, 2019, 01:44:24 PM »
I'll be VERY interested to know when you've regained full feeling in your fingertips!  I am so happy that you've had this problem properly diagnosed and dealt with.  A good team of doctors makes all the difference in the world!  So, good for you!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #3 on: April 03, 2019, 03:25:31 PM »
I'm starting to feel tingling in my hand.  Good to know something can be done.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: April 04, 2019, 12:44:01 PM »
Great to hear of your healing




Love, luck, strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #5 on: April 04, 2019, 06:13:41 PM »
Sorry you went thru that but good thing you were proactive about it. Glad to know about the coils, thanks for sharing. My husband has had a little trouble from time to time and was afraid it might be Steal but fortunately not. I will tell him about the coils. And I agree, it is imperative to have a good vascular interventionalist. They're the ones who have kept my husband's fistula alive.

Is that a Belgian Shepherd (or Black Lacy) and Blue Heeler? Working dogs are the smartest creatures on earth! And they take full advantage in knowing that they are.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Cowdog
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« Reply #6 on: April 05, 2019, 06:42:28 AM »
Hanging Tree Cattle dogs. Composite breed.
Smartest dogs I've ever had!! Hard core working dogs.
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Hemo in Center since 11/2008
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PrimeTimer
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« Reply #7 on: April 05, 2019, 01:39:08 PM »
Quote from: Cowdog on April 05, 2019, 06:42:28 AM
Hanging Tree Cattle dogs. Composite breed.
Smartest dogs I've ever had!! Hard core working dogs.

Next time your social worker or clinic asks you can tell them that yes, you definitely have a great support network at home!  :rofl; The purpose of a dog..
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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