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Author Topic: My article for RSNhope.org  (Read 1943 times)
kitkatz
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« on: February 22, 2019, 11:00:39 AM »
I pitched RSNhope.org an article idea for their blog on Thriving on Dialysis for twenty years. 
It made it to their blog today.
https://www.rsnhope.org/rsn-blog/thriving-on-dialysis/
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
iolaire
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« Reply #1 on: February 22, 2019, 01:29:43 PM »
Good writeup and good job. iolaire
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #2 on: February 22, 2019, 02:24:09 PM »
"Welcome To Dialysis".  Those words caught me.

Your and your husband's Halloween costumes are brilliant.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Kathymac2
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« Reply #3 on: February 22, 2019, 02:50:25 PM »
Well done Kit Katz. You are an inspiration.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: February 23, 2019, 04:59:29 AM »
Great story Kitkatz!!! Thanx for sharing


   :cuddle;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
UkrainianTracksuit
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« Reply #5 on: February 23, 2019, 08:46:36 AM »
Super article, kitkatz! It will show those feeling down in the dumps that it is possible to thrive. The Halloween contest photo is PRICELESS.  :laugh: :laugh: :laugh:
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PrimeTimer
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« Reply #6 on: February 23, 2019, 08:56:22 PM »
Best thing I've read in a while. You have an impressive bio. Your word of wisdom actually offer a little something to everyone and can be applied to many aspects of life. Thanks.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
SooMK
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« Reply #7 on: February 24, 2019, 08:59:02 AM »
Great information in there. Well done.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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