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| | |-+  Is it kidney related or am I just getting stupid??
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Author Topic: Is it kidney related or am I just getting stupid??  (Read 10909 times)
MooseMom
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« Reply #50 on: May 24, 2018, 04:01:42 PM »

Oh naynay, I do hope that I have not inadvertently said anything that has made you feel bad!  You are SO right in saying that online posts can easily be misconstrued or misinterpreted.  And it IS true that we all of us are dealing with a particular set of burdens that can make us "sensitive".

By all means we can play the kidney card to get out of all manner of things.  I always figure that my presence or absence will go unnoticed in a crowd.  But there were certainly one or two occasions that I can remember when I felt so hideously depressed that my absence from some celebratory event would actually be welcomed!  I didn't want to be a wet weekend!

I didn't travel any further away than 2 hours from my tx center when I was newly listed, so I get ya there!  If you feel more comfortable staying close to home while on the list, then that's what you do.  That's what most people do.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Naynay99
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« Reply #51 on: May 24, 2018, 05:44:01 PM »

MM- No don’t worry u didn’t say anything.  It doesn’t take much to make me cry these days anyway. 
II’m embarrassed to say I cry in my car sometimes so that by the time I arrive at my destination and enter my outside life I can appear fine.  I don’t let other people see the crazy.   Especially around those people who desperately need me to be okay. 

In regard to forum comments, I look at online forums and support groups like I do religion- take what is useful and helpful and relevant to you and leave the rest.  Or at least that is what I strive to do, even if I fail most of the time and take it all to heart. 

Part of me feels guilty that my parents are planning a vacation this summer up by me instead of down by my brothers lake house bc I don’t want to travel that far.  But then I think how ridiculous it is that I feel guilty that my kidney failure is inconveniencing others leisure plans.  Idk. 
The staying close to home thing is hard but I know I would fret the whole time away.  But the best thing that my transplant gave me was total freedom to travel the world and see lots of cool shit.  I am twitching and feeling claustrophobic at the prospect of not being able to leave the country any time soon.  Ah well. I will just have to find closer adventures for now.

Take care and  have a good Night.


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kristina
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« Reply #52 on: May 25, 2018, 01:01:58 AM »


And what Kristina has pointed out is true...it is not easy for people on dialysis to travel, but in LV, there are dialysis facilities close to the hotel where the gatherings are often held.

Many thanks MooseMom for your kind understanding, it is very much appreciated!
End stage kidney failure and dialysis can be very challenging at times and it is so heartwarming to know of you and your kind understanding.
Thanks again and kind regards from Kristina. :grouphug;
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