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Author Topic: Fistula Maturation  (Read 2520 times)
lnardac1
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« on: February 19, 2018, 11:31:13 AM »

Hello, I am a graduate student in bioengineering at Stanford University. I am working on a team with other students in engineering, medicine, and business to design a medical device for dialysis patients. We are currently exploring the issue of fistula maturation in HD patients.  If you could share your experience with this problem, we would greatly appreciate it. Here are some more specific questions we have revolving this issue:
- How was the fistula placement chosen?
- How did you or providers notice that the fistula did not mature?
- What happened once the fistula failed? Did you have to go on to a catheter for dialysis?
- Did you undergo any interventions to recover your fistula?
- Did you do anything to try to improve your fistula maturation?
-How did you feel about the general process of getting and using a fistula?
Thank you in advance!
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: February 19, 2018, 12:19:27 PM »

Hi Inardac1 please introduce yourself in the Introduce yourself section.


Mod Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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« Reply #2 on: February 19, 2018, 12:37:16 PM »

How was the fistula placement chosen?  - By ultrasound in both arms, left arm radiocephallic

How did you or providers notice that the fistula did not mature? - Physical examination.

What happened once the fistula failed? Did you have to go on to a catheter for dialysis? - Never failed, going on 6 years now

Did you undergo any interventions to recover your fistula? - One intervention before use to tie off a couple of tributaries to increase fistula pressure.   

Did you do anything to try to improve your fistula maturation? - Squeezing exercises

How did you feel about the general process of getting and using a fistula? - It sucks, but I was lucky - painless and not that bad looking

Thank you in advance! you mean "advthankyouance"  :o
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lulu836
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« Reply #3 on: February 19, 2018, 02:02:18 PM »

How was the fistula placement chosen?  My choice

How did you or providers notice that the fistula did not mature?  Sight and Doppler

What happened once the fistula failed? Did you have to go on to a catheter for dialysis?  6 more unsuccessful surgeries all in one 24 hour period.  Put me to sleep.  Slice my arm(s) up. Close.  Wake me up.  Repeat.  Then place a graft.  Same routine, same outcome.  Then place a catheter.  Start dialysis.  Start 6 weeks of physical rehab.

Did you undergo any interventions to recover your fistula? No.  Body too beatup

Did you do anything to try to improve your fistula maturation? No

How did you feel about the general process of getting and using a fistula?  Horrified that my kidneys failed.  Thankful for dialysis.
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Of all the things I've lost, I miss my kidneys the most.
GA_DAWG
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« Reply #4 on: February 20, 2018, 09:08:37 AM »

The placement was chosen by the doctor. After it failed to develop, vein mapping was done and it showed it was very unlikely a fisula would mature, so I received a graft instead. They determined it was a failure because it did not "grow" in size and using a stethoscope they determined it did not mature. I did squeezing exercises with a ball, but it still did not develop. In fact, I still use a squeezeball in hopes that increasing the flow temporarily will dislodge any clots that may be beginning to form. Don't know if it helps, but it makes me feel like I have some ability to improve things. The fistula, and the graft, were done under a block. I thin k I really would have preferred a general anesthesia because of how my arm felt the rest of the day. It had to be supported by a sling and just felt like nothing more than a heavy dead weight. I kept the catheter I had placed upon diagnosis until the grat had been used successfully. At present, I go about every four months where they go in and scope the graft to try to prevent clots, but it still seems I get about one per year.
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