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kitkatz
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« on: November 02, 2017, 04:02:42 PM » |
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Celebrate with me!!!   As of today it is 19 years on hemodialysis. That is 19 years straight, no breaks from it. Dialysis three days a week for 19 years. That is three treatments, 52 weeks a year. 156 treatments a year. 19 years times 156= 2964 dialysis treatments. 2 16 gauge needles every treatment =5928 needles Several hospital stays. Several surgeries and redos for graft and fistula Major abdominal surgery for an intestinal perforation Had two near death experiences. It has not been easy. I am astounded I am still here.
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Michelle2016
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« Reply #1 on: November 02, 2017, 04:27:23 PM » |
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Awesome! Thank you for sharing your experiences.
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Simon Dog
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« Reply #2 on: November 02, 2017, 05:28:18 PM » |
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Congratulations on making it so long. I hope other aspects of live have made the journey worthwhile.
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Jean
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« Reply #3 on: November 02, 2017, 05:57:59 PM » |
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You are the "model" for the perfect patient Catherine and I am your chief admirer. Hope I can do as well as you!!!
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One day at a time, thats all I can do.
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PrimeTimer
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« Reply #4 on: November 02, 2017, 06:24:28 PM » |
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Happy B-Day, Miss kitkatz! As in "BIG DAY" for U! Here's a little poem for you.. I made it this far but where am I going? What is my life to be? I went so far but when I look back my life is just where it should be.  Live life, have no regrets, make no excuses and definitely no apologies! |
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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Michael Murphy
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« Reply #5 on: November 02, 2017, 08:11:46 PM » |
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I know how tough 5 years is, I can’t imagine the perseverance required to deal with this for 17 years. I am in awe of you and how well you have dealt with this .
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iolaire
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« Reply #6 on: November 02, 2017, 08:30:38 PM » |
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Congratulations and good job.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017. Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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smartcookie
Full Member
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Gender: 
Posts: 484
LMSW
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« Reply #7 on: November 03, 2017, 07:26:58 AM » |
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Congrats!! Thanks for helping so many other dialysis patients along your journey, as well! You are an amazing person!
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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cassandra
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« Reply #8 on: November 03, 2017, 08:01:03 AM » |
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Keep going strong girl!!! And congrats!!! Lots of love, Cas.  |
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I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
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justagirl2325
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« Reply #9 on: November 03, 2017, 09:58:16 AM » |
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You are to be seriously commended for your perseverance.
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kickingandscreaming
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« Reply #10 on: November 03, 2017, 02:19:18 PM » |
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19 years of poking and drudgery. That takes a strong will to live. Just the thought of 19 years makes me want to lie down. Congratulations Kitkatz. Here's to another 19 years.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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Xplantdad
Full Member
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Gender: 
Posts: 304
Health is not valued till sickness comes. T.Fuller
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« Reply #11 on: November 03, 2017, 03:15:13 PM » |
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Here's hoping only the best for you KK...You are to be commended!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016  Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney! |
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kristina
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« Reply #12 on: November 03, 2017, 03:44:43 PM » |
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Dear kitkatz you are a true inspiration! Many thanks for your kind encouragement over the years and best wishes from Kristina.  |
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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gellybean
Newbie
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Gender:
Posts: 10
be good be happy
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« Reply #13 on: December 08, 2017, 10:19:49 AM » |
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I’m on my 17th year, 18th by April next year. And so ii thought I’ve been doing this forever. It’s truly aspiring, making me want to live longer. Because to ne honest there are days when I feel like just sleeping it off and not go to treattment anymore.
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Treat me right. Only my kidneys are nonfunctional, not my mind.
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Michelle2016
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« Reply #14 on: December 08, 2017, 05:34:56 PM » |
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Thanks for sharing your amazing experiences.
Yeah, I agree with you. We have kidney disease. However we are tough and strong mentally.
Wish you the best.
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Garrett
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« Reply #15 on: January 19, 2018, 11:57:17 PM » |
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That's amazing, good on you for being so tough
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Charlie B53
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« Reply #16 on: January 20, 2018, 05:10:49 AM » |
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4 1/2 years here with only the last year on Hemo. Recently went to services for an older Lady we lost from my clinic. Her Husband tells me that her Dr had recently commended her for being her for being his first patient out of thousands to live over 10 years on hemo. She ws just over 11 when she passed on.
Made me wonder about my mortality. Then to learn there are a number of you that are still surviving after many many more years. You give us new guys Hope. As long as we stay vigilant, keep tight control over our diet and fluids, we have a reasonable chance of hanging on for quite a while yet.
Thank Kit Katz!
Keep taking good Care,
Charlie B53
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Michael Murphy
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« Reply #17 on: October 07, 2018, 06:55:14 PM » |
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KitKats because of this post I know 11/2/2018 will be 20myears on hemo for you. I still am in awe of your sticktoivness
Have a good anniversary may you have 20 more.
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PrimeTimer
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« Reply #18 on: October 12, 2018, 11:40:38 PM » |
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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