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Author Topic: My quality of life sucks  (Read 7581 times)
cassandra
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When all else fails run in circles, shout loudly

« Reply #25 on: August 28, 2017, 11:10:24 AM »

What happened with your pacemaker checkup? Or is it this Thursday?

Love, Cas

     :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kickingandscreaming
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« Reply #26 on: August 28, 2017, 04:23:05 PM »

It was last week, Cas.  Everything checked out well so that is not the answer to my low energy.  Unfortunately.  Part of the problem I have (and it's only part) is that my back was so injured when I had a series of falls several months ago (syncope from low blood pressure and heart block) that it hurts to do most things.  When I stand or walk my back tightens up something wicked and I don't want to move around or be on my feet.  Today, I took a small walk with my dog and it was very difficult.  But I did feel somewhat better after resting.  So it's something I'm going to have to force myself to do because it's good for me.  Thanks for caring.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Charlie B53
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« Reply #27 on: August 28, 2017, 06:00:26 PM »


I'd be willing to bet a very small amount (I'm Cheap) that the sunlight making a lil Vit D helped just a wee bit!
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smartcookie
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LMSW

« Reply #28 on: August 29, 2017, 08:28:30 AM »

I am glad you are able to get up and move around a bit.  Back pain sucks.  When I have problems with my back, heat, ice and muscle relaxers are my best friend!  You can get through this!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
cassandra
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When all else fails run in circles, shout loudly

« Reply #29 on: August 29, 2017, 10:45:13 AM »

I'm glad to read you felt a bit better after walking a bit, keep that up girl! Don't over do it (of course)
And I agree with Charlie that outside light (doesn't even have to be sun) does a person good.
It's difficult to make vit D without functioning kidneys, but the exersice still produces serotonine which makes you feel better.

Love, Cas

   :flower;
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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