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Author Topic: Twitching  (Read 2833 times)
AaishaDar
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« on: August 08, 2017, 09:47:15 PM »

Hi all,
I wanted to ask if anyone has been experiencing twitching. Now i know most of you will ask about mu calcium, dont worry it has been in a normal range for several months now so I have ruled it out. I will experience twitching in my shoulder, eye, and legs. It may not seem like a problem but it does get bothersome when it keeps happening repeatedly.
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kickingandscreaming
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« Reply #1 on: August 09, 2017, 03:49:06 AM »

Are you sure you are getting adequate dialysis?  Maybe you are uremic.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
AaishaDar
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« Reply #2 on: August 09, 2017, 07:43:04 PM »

My kt/v is 2 so Im guessing im getting adequate dialysis
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cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: August 10, 2017, 01:08:15 PM »

Hi AaishaDar when I have twitching repeatedly it usually means I'm getting too dry.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
dialysisuser82
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« Reply #4 on: August 11, 2017, 11:10:30 PM »


   I am not sure of your problem, but I can only speak from the stand point of being a long term dialysis personally and of what I have seen.
 

   I have seen serious case of fidgeting when the patient could not even sit!  I mean he would kick his hands, legs, jerking heads... It was quite traumatizing to see him

 suffer so much.  Not all, in general there is Peripheral neuropathy problem that surface with kidney patient some more than others whose knows why.  Some can be

 control with Clonazepam, again every patient needs trial and error on different type of medications until ones find the right type and dosage. 

   It is so important to have a Nephrologist doctor who is willing to listen and work with each patient accordingly. 

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AaishaDar
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« Reply #5 on: August 12, 2017, 09:20:21 AM »

Thanks for the responses. I do think I am getting too dry. Ive noticed my eyes are sunken in and I am extra tired. Litwrally took two naps and was still tired after my treatment that never happens. But anyways im not complaining i love sleep lol.
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GA_DAWG
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« Reply #6 on: August 13, 2017, 09:31:16 AM »

I know that when I get too dry, it affects everything. I have no appetite, do not go to the bathroom as often, and definitely feel more tired regardless of how much sleep I get. I also sometimes notice the muscles, particularly my calf muscles, seem to twitch or jitter about kind of like they are about to cramp then relax.
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