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Author Topic: 18 years and counting  (Read 5479 times)
kitkatz
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« on: November 03, 2016, 08:54:32 PM »
As of Wednesday, November 2, 2016, I have been on hemodialysis for 18 years.  I must be nuts or something.
I celebrated with my usual Costco cake brought in to share with patients and staff.  They are amazed I am still plugging away each and every dialysis day.
 These years just chug along.

This year has been good.  Time spent with family has been good.  A grand daughter in February had added a lot of joy to life.

I swear if one more person asks me if I have had a transplant or am on the transplant list, I am going to lose my mind! 
It is like dialysis cannot be enough and it is going to have to be enough for me. 

So here is to 18 years of life and dialysis.  :wine; :wine;  :bandance; :bandance;

(My dialysis is old enough to vote, so I am taking it with me to vote next week. LOL)
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
iolaire
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« Reply #1 on: November 04, 2016, 05:03:13 AM »
Congratulations!  People like you are one of the best things about the forum allowing us to see that dialysis can be a long term solution. (Even if we still choose the transplant route.)
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kristina
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« Reply #2 on: November 04, 2016, 05:48:59 AM »
Congratulations kitkatz and well done! You are a great inspiration to all of us and I remember thinking of you when I started with my own dialysis-treatment
because of your great example and the way you deal with it as a matter of fact!
Thanks again for the inspiration and all the best from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
skinnacat
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« Reply #3 on: November 04, 2016, 05:50:50 AM »
That is so wonderful to hear..gives me hope since  I have only been on for 2 years.
I hope you go for many more to come...and yes i am way sick of people asking me about transplant.
It's not an option for me either and I am ok with that.
Just have to make the best of it and live your life the best you can.
Great news about your grand daughter :)   
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Charlie B53
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« Reply #4 on: November 04, 2016, 06:43:51 AM »

A true Gentleman never asks a Lady's age.   I don't expect many Ladies would tell, or would admit to their actual age anyway.  It doesn't matter.

What matters is the length of time that you have successfully completed your treatments.   Wow!    You deserve recognition for your determination to succeed, to not let your illness hold you back.

You go Girl, you earn it.   Keep on keeping on.
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LorinnPKD
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« Reply #5 on: November 04, 2016, 07:57:31 AM »
I just started dialysis four months ago.  You are an inspiration!
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Michelle2016
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« Reply #6 on: November 23, 2016, 05:59:19 PM »
You are amazing. Thank you for sharing your experience with us.

Best wishes and take care.
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Simon Dog
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« Reply #7 on: November 23, 2016, 08:08:33 PM »
Quote
A true Gentleman never asks a Lady's age.
or weight.  Been married 20 years, and I am still a required to turn my back when my wife steps on the scale.
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PrimeTimer
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« Reply #8 on: November 23, 2016, 11:17:06 PM »
Quote from: Simon Dog on November 23, 2016, 08:08:33 PM
Quote
A true Gentleman never asks a Lady's age.
or weight.  Been married 20 years, and I am still a required to turn my back when my wife steps on the scale.

Simon Dog: Wise choice. You're alive, aren't you?


kitkatz: 18 years and counting?!  Well Merry Christmas to YOU!!!   :christmastree;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Michael Murphy
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« Reply #9 on: November 24, 2016, 08:30:11 PM »
As a gentleman all I can say is it must have been tough to start at 3.  But seriously when I started dialysis 4 years ago I found looking at a life time of 3 times a week sessions difficult to deal,with.  Then on this site I read posts from people like your self who obviously found a way to deal with the stress and I began to read and look and I found it was doable.  But it not for the examples of people like yourself. I never would have thought the life I now lead was possible.  So a big thank you for all you do on this site .
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kitkatz
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« Reply #10 on: November 24, 2016, 10:11:46 PM »
It is just taking it one treatment or problem at a time and just keep chugging.
Some days I find the bravest thing I can do it put my feet on the floor and get up every morning.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Charlie B53
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« Reply #11 on: November 25, 2016, 08:41:39 AM »
Quote from: kitkatz on November 24, 2016, 10:11:46 PM
It is just taking it one treatment or problem at a time and just keep chugging.
Some days I find the bravest thing I can do it put my feet on the floor and get up every morning.

LOL   For too long I couldn't even put my foot on the floor, much less stand on it.   Dr's found this one inch bone spur under my heal.   Let's just say I've felt better.  And Dr wouldn't cut it off, says for the majority of patients it doesn't relieve the pain.  Sent me to get a special pair of shoes and incerts.  I was VERY skeptical.  And was AMAZED that it has worked.   I CAN stand up and walk again.    That's HUGE!

Now if I could just do something about this achy back!

LOL      That that doesn't kill us today makes us stronger?    Maybe, but it sure wears on the body.

If I drank anything other than water I would suggest a toast.  To all of us that manage to keep on keeping on!    Cheers!
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Michelle2016
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« Reply #12 on: December 01, 2016, 10:17:05 AM »
It's so nice to read such a  amazing message. You are my inspiration.  Hope you have many many years ahead.
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BobN
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WWW
« Reply #13 on: December 01, 2016, 12:11:25 PM »
Keep on kickin' kitkatz. 
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Wat76
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This Too Shall Pass
« Reply #14 on: December 02, 2016, 04:23:07 PM »
Awesome, you are my inspiration.  So happy for you. Transplant is not for everyone. Enjoy each day you are given.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
Michelle2016
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« Reply #15 on: March 16, 2017, 06:51:11 PM »
You are amazing!
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