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Author Topic: Transplant drugs  (Read 3792 times)
Bluebutterfly
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« on: August 06, 2016, 12:30:32 PM »
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!
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sahern
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« Reply #1 on: August 06, 2016, 06:59:30 PM »
I had my transplant over twenty one years ago and now that I need another one I was told that only one of the rejection drugs would be different.
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DialysisGoneFOREVER
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« Reply #2 on: August 06, 2016, 09:07:32 PM »
Quote from: sahern on August 06, 2016, 06:59:30 PM
I had my transplant over twenty one years ago and now that I need another one I was told that only one of the rejection drugs would be different.

What drugs are you on now and which one will be different?
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Chris
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« Reply #3 on: August 06, 2016, 11:50:38 PM »
Quote from: Bluebutterfly on August 06, 2016, 12:30:32 PM
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!
I do not know what medications you were on, but were they the new non steroidal type? There are other drugs that help with anti rejection also that are meant for other things. I had my tx 15 years ago and things have changed at my center, but each center is different in their drug protocol.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
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Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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No two day's are the same, are they?
SooMK
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« Reply #4 on: August 07, 2016, 04:55:23 AM »
I don't know how doctors determine what transplant meds each patient gets. My transplant was a little over two years ago. I'm on Myfortic and tacrolimus, no steroids. For me, the side effects are only a few and not serious, short term. There is of course, all the usual impaired immune system side effects or risks long term.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
coravh
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« Reply #5 on: August 07, 2016, 05:06:13 AM »
Quote from: Bluebutterfly on August 06, 2016, 12:30:32 PM
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!


I got my kidney in '02. Over the years I've been on a variety of meds (changes for different reasons). I've been on Cellcept, rapamune, Imuran, Prograf, Myfortic but never prednisone. The only time I've gotten into trouble with infection was when I had CMV and was hospitalized for quite a while. Otherwise, I've gotten through everything that's been thrown at me, including pneumonia, a massive post op infection (due to other issues, and not the drugs), and a bunch of surgeries that went quite well but were scary.

Part of what can happenn is sometimes just bad luck.
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