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Author Topic: Bill Peckham - on dialysis for more than 25 years - speaks at Breakfast of Hope  (Read 3757 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 10, 2016, 03:43:52 PM »
VIDEO: Bill Peckham - on dialysis for more than 25 years - speaks at Breakfast of Hope in Seattle, WA on May 5, 2016 in Seattle.
https://youtu.be/aM6MwQ7mJHQ
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
SooMK
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« Reply #1 on: May 11, 2016, 06:23:31 AM »
Thank you for posting this link. It is so wonderful seeing and hearing Bill Peckham whose name I have read many times in different places. A inspiring, uplifting message. A great speaker.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Zach
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"Still crazy after all these years."
« Reply #2 on: May 11, 2016, 09:12:21 AM »
A great speech, Bill.
Thanks for all you've done and will do.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!
« Reply #3 on: May 11, 2016, 04:06:13 PM »
Good speech Bill.  I had a dog named Banjo too.  She lived 16 years.

Thanks for sharing Karol.

 :flower;
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Michael Murphy
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« Reply #4 on: May 11, 2016, 04:57:48 PM »
I am beginning to believe that Superman wears Bill Peckham pajamas.
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Blake nighsonger
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« Reply #5 on: May 11, 2016, 09:36:18 PM »
Fantastic, like taking a trip with.!  Really enjoyed listening to your travels!!! 

Thank you also  Karol
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SutureSelf
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Hey there!
« Reply #6 on: May 12, 2016, 08:15:29 AM »
Quote from: Michael Murphy on May 11, 2016, 04:57:48 PM
I am beginning to believe that Superman wears Bill Peckham pajamas.

I don't think Bill sees himself as a Superman.  Just a regular, every day person like the rest of us whose life unfortunately became afflicted with kidney failure.  However, Bill has shown that being on hemodialysis does not been ones ability to reach his or her dreams or goals in life has to come to an end.  Yes, more work and planning, but with fortitude, a positive attitude and a supportive hand here and there from others, we can lead normal lives even depending on a machine.  This is especially true for those of us who have no co-morbidities other than maybe controllable hypertension.

For Bill, that meant running the Colorado River (heck, non ill folks don't even want to do that). Yet, to my young friend, Cat, who started hemodialysis the summer after graduating high school, it was still leaving home for the college experience (which she completed in 3.5 years even with time off getting a transplant during her junior year).  And for IHD member, Zach, it is following his dream of being of film producer. 

To me, Bill's message is with the right attitude we can be just as "normal" or "great" as the guy next door, especially if getting good dialysis treatment.
« Last Edit: May 12, 2016, 09:24:10 AM by SutureSelf » Logged
I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
3.0 calcium/2.0 potassium bath
Charlie B53
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« Reply #7 on: May 12, 2016, 09:55:42 AM »


Inspiring.  Should be seen by everyone that thinks they are disabled, and not only those of us on Dialysis, but all those stuck with negative attitudes.

Thanks Bill!
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Bill Peckham
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« Reply #8 on: May 12, 2016, 10:01:14 AM »
Thanks for posting Karol.


That's about right Frank. It isn't that I've been able to live this specific life rather it is that I've been able to live a life that feels like the one I was meant to live but for kidney disease.


That said the parts of my life that I think of as being remarkable are due to needing dialysis. It's has been a strange journey, I kinda feel like I"ve peaked.
« Last Edit: May 12, 2016, 10:07:00 AM by Bill Peckham » Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Michael Murphy
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« Reply #9 on: May 12, 2016, 01:36:49 PM »
I don't see him as a superman just as a extraordinary individual that lives life as it should be, overcomes and preserves.  The joke is not that he is superman but that the way he lives his life inspires others to achieve more.
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Simon Dog
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« Reply #10 on: May 12, 2016, 03:54:30 PM »
Bill - did you ever get down to Antartica?
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Charlie B53
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« Reply #11 on: May 12, 2016, 05:12:08 PM »

Bill,  I don't think you are anywhere near your 'peak' just yet.   Rather,  I think you are just getting started, warming up for the next round of adventures.   If you have a big enough box, I'd climb in it just so I could tag along!   Just be sure to poke a couple of holes in it for air.

Keep on having fun and taking adventures!

Charlie B53
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