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Author Topic: Hi  (Read 2502 times)
cdwbrooklyn
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Positive Thoughts equal Positive Energy
Hi
« on: April 26, 2015, 06:01:20 AM »
Hello everyone,

I'm still here doing my thing.  I just been busy lately and kind of fell off the site.  I now have a new fistula in my left arm.  It looks really good.  I've taken the catheter out last week.  I had it for almost a year.  I'm so glad to use my arm it feels so good.  Like many say, "you don't know what your have until its gone."  Thank God that I have my arm back and it's working very well.  I just wanted to stop by and say hello and I'm always thinking about this site if I'm not telling other patients about it.  Hope everyone is doing well.

Have a blessed one!

 8) 
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Rerun
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Going through life tied to a chair!
« Reply #1 on: April 26, 2015, 08:09:50 AM »
Hey Brook, Thanks for dropping by.  I'm so glad you are doing well.  Thank you so much for telling others to check out our site.

Stay in touch when you can.   :flower;
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Sugarlump
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10 years on and off dialysis
« Reply #2 on: April 26, 2015, 10:52:03 AM »
Hi glad to hear you got your arm back  ::) (Understand that feeling too)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
SooMK
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« Reply #3 on: April 26, 2015, 12:46:40 PM »
Nice to see you back even for a quick visit. Be well!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: April 26, 2015, 01:44:43 PM »
Lovely to hear from you girl!!!

      :cheer:

Great to hear about your arm.      :cuddle;


Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #5 on: April 26, 2015, 03:26:56 PM »
Glad to see you here, cdwbrooklyn and to know you never went away...  Much like your yourself maintaining a career, a working fistula is VERY good news! Thanks for sharing! 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
jeannea
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« Reply #6 on: April 26, 2015, 04:17:02 PM »
Hi! Glad to know you're doing well!
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skinnacat
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« Reply #7 on: April 26, 2015, 07:06:01 PM »
so glad u are doin well. i have not seen u for a while...u give out lots of good advice.
hope to see u again soon!!! :2thumbsup;
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kristina
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« Reply #8 on: April 27, 2015, 02:16:44 AM »
Hello again cdwbrooklyn 
... and I hope you continue to do well  ...
Best wishes from Kristina  :grouphug;

P.S. In mid-December last year I also joined the "Dialysis-Club" ...
 
 
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #9 on: April 29, 2015, 01:30:29 AM »
Good to hear from you. Nice to know you have not completely forgotten about us. Haahhahahahahaha
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One day at a time, thats all I can do.
MooseMom
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« Reply #10 on: April 30, 2015, 08:14:40 AM »
Oh!  Hellooooooooooooooo!  So nice to see you!  I'm glad to hear that you're still "doing your thing" because you have always been so good at it!   :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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