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Author Topic: New Member Charlesc  (Read 3368 times)
charlesc
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« on: January 11, 2015, 04:48:02 PM »
I have been monitoring the list for a while and gaining very good information on several topics that are of, vital, interest to me.
By way of intro. I lost a kidney when I was 6 and am now 71. My one kidney started failing 11 years ago. Under the care of a nephrologist since then and with meds and closely following the prescribed low pot. diet and such have staved off dialysis. My eGFR is now down to 12ml/pm but I am really doing fine physically----considering!

A number of friends and relatives have been tested for transplant but no match. I am on a transplant list and we all know how that is!

When dialysis is mandatory I hope to be able to use PD at home.
OH, I live in south Louisiana and am a male.

Charlesc
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SooMK
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« Reply #1 on: January 11, 2015, 05:10:57 PM »
Welcome Charlesc!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
iolaire
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« Reply #2 on: January 11, 2015, 05:41:17 PM »
Welcome, although you are planning on PD have you thought about getting a fistula or other access put in just incase?  I felt moving to dialysis was fairly easy, especially with a well developed three year old fistula.  Best wishes for as long as possible in your pre dialysis phase.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Rerun
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Going through life tied to a chair!
« Reply #3 on: January 11, 2015, 05:56:27 PM »
Hi Charles and welcome to IHD.  I hope you get a transplant soon.  That would be awesome for you.

I'm glad you joined us. 

Rerun, Admin   :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #4 on: January 11, 2015, 07:32:01 PM »
Welcome to our community, charlesc!
 :beer1; :beer1;

Regards,
--Zach
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #5 on: January 12, 2015, 12:11:15 AM »
 :welcomesign;  to IHD charles. This is a great group to belong to.
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One day at a time, thats all I can do.
charlesc
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« Reply #6 on: January 12, 2015, 07:39:43 PM »
Yes, I have had the fistula "installed" I guess that is more of a fabrication but yes it is there, was done at Ochsner Hospital in New Orleans.

Charlesc
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iolaire
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« Reply #7 on: January 13, 2015, 05:40:54 AM »
Quote from: charlesc on January 12, 2015, 07:39:43 PM
Yes, I have had the fistula "installed" I guess that is more of a fabrication but yes it is there, was done at Ochsner Hospital in New Orleans.

Charlesc
Yes, its not an object installed but rather some blood plumbing moved around... Best of luck.  Also Kristina has written a good bit about her efforts to stay off of dialysis for 30 years by eating right (just recently she started dialysis).  If you are looking for pointers or ideas of how you might eat better for your kidney to prolong its life you might search for some of her posts.
« Last Edit: January 13, 2015, 05:43:26 AM by iolaire » Logged
Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: January 13, 2015, 12:20:21 PM »
Welcome to the site charles

     :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Darthvadar
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« Reply #9 on: January 26, 2015, 12:27:57 PM »
 :welcomesign; to IHD....

Good to see you here....

Visit and post often... Let's get to know you better....

God bless...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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