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Author Topic: What can I do to reduce calcium deposits in my fistula?  (Read 4804 times)
cassandra
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When all else fails run in circles, shout loudly

« on: January 09, 2015, 04:07:18 AM »

Hi all, I hope you're all a bit okay. Just a question about the calcification in my fistula. So apparently it's 'normal' to happen with longterm use, the radiologist has been saying that for the last 10 years  ;D ) Has anyone any remedies, or experience with this?

Thanx already, and love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
noahvale
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« Reply #1 on: January 10, 2015, 05:16:04 AM »

^
« Last Edit: September 19, 2015, 09:10:59 AM by noahvale » Logged
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: January 10, 2015, 01:47:21 PM »

Thanx for the info noahvale. And you assumed correctly that calcium, and phos, and cholesterol are within limits. If I read the articles correctly its more to do with stenosis somewhere in the fistula which I have as I've no more 'straight forward' veins left. And apparently the calcification is more prevalent in upper arm fistula's anyway.
Surprising about the lack of studies about it.

I'll see if increasing my fishoil dose will reduce the increase.

Thanx again, and keep well, love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
obsidianom
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« Reply #3 on: January 11, 2015, 05:37:03 AM »

Thanx for the info noahvale. And you assumed correctly that calcium, and phos, and cholesterol are within limits. If I read the articles correctly its more to do with stenosis somewhere in the fistula which I have as I've no more 'straight forward' veins left. And apparently the calcification is more prevalent in upper arm fistula's anyway.
Surprising about the lack of studies about it.

I'll see if increasing my fishoil dose will reduce the increase.

Thanx again, and keep well, love, Cas
Calcifications and other thickening and scarring of the lining of vessels is a multi factorial process. It can be from chronic inflammation which dialysis patients are prone to, or any type of blood flow blockage or stenosis that causes the blood to run in an irregular pattern  causing it to pool and stagnate or turbulence against the vessel walls. It rarely has to do with blood levels of calcium.
I see calcifications on xrays I look at every day on leg and ankle films as the leg arteries are often occluded with calcifications . It is quite common .
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: January 11, 2015, 12:00:15 PM »

Thanx Obsi, but won't it cause problems with needling at some point? Or a blockage?
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
obsidianom
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« Reply #5 on: January 12, 2015, 02:45:58 AM »

Thanx Obsi, but won't it cause problems with needling at some point? Or a blockage?
Yes that is possible. My wife just had that type issue. her fistula was barely running due to outflow blockage from scar tissue. I took her out of state to a really good vascular surgeon who cleaned out the clot and scar tissue and patched open the outflow vein with a piece of vein from her leg. It has worked beautifully the last 2 days since with nice flow and low pressures. So bottom line, it can be dealt with if needed. You just need to get the right surgeon. The local surgeon we saw first didn't want to touch it and was useless. So we went to a big teaching hospital where the best surgeon is located.
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #6 on: January 12, 2015, 03:37:43 AM »

Thanx Obsi, and Noah I feel a bit better, and definitely more informed now

       ;D


Love y'all, and have a bit of a good day, Cas

Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cdwbrooklyn
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« Reply #7 on: January 12, 2015, 09:33:01 AM »

Thanx Obsi, but won't it cause problems with needling at some point? Or a blockage?
Yes that is possible. My wife just had that type issue. her fistula was barely running due to outflow blockage from scar tissue. I took her out of state to a really good vascular surgeon who cleaned out the clot and scar tissue and patched open the outflow vein with a piece of vein from her leg. It has worked beautifully the last 2 days since with nice flow and low pressures. So bottom line, it can be dealt with if needed. You just need to get the right surgeon. The local surgeon we saw first didn't want to touch it and was useless. So we went to a big teaching hospital where the best surgeon is located.

Hi Doc, 

Can you inbox me the vascular surgeon's name and telephone number that worked on your wife?  I believe I have the same issue.

Thanks.
CDW   
Logged

Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
obsidianom
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*****
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Gender: Male
Posts: 1271

« Reply #8 on: January 12, 2015, 12:58:59 PM »

Thanx Obsi, but won't it cause problems with needling at some point? Or a blockage?
Yes that is possible. My wife just had that type issue. her fistula was barely running due to outflow blockage from scar tissue. I took her out of state to a really good vascular surgeon who cleaned out the clot and scar tissue and patched open the outflow vein with a piece of vein from her leg. It has worked beautifully the last 2 days since with nice flow and low pressures. So bottom line, it can be dealt with if needed. You just need to get the right surgeon. The local surgeon we saw first didn't want to touch it and was useless. So we went to a big teaching hospital where the best surgeon is located.

Hi Doc, 

Can you inbox me the vascular surgeon's name and telephone number that worked on yHe is the BEST>our wife?  I believe I have the same issue.

Thanks.
CDW
I sent you a message CDW with all the info. It is worth the time to go there. He is the BEST!
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cdwbrooklyn
Full Member
***
Offline Offline

Gender: Female
Posts: 388


Positive Thoughts equal Positive Energy

« Reply #9 on: January 13, 2015, 07:18:24 AM »

Thanx Obsi, but won't it cause problems with needling at some point? Or a blockage?
Yes that is possible. My wife just had that type issue. her fistula was barely running due to outflow blockage from scar tissue. I took her out of state to a really good vascular surgeon who cleaned out the clot and scar tissue and patched open the outflow vein with a piece of vein from her leg. It has worked beautifully the last 2 days since with nice flow and low pressures. So bottom line, it can be dealt with if needed. You just need to get the right surgeon. The local surgeon we saw first didn't want to touch it and was useless. So we went to a big teaching hospital where the best surgeon is located.

Hi Doc, 

Can you inbox me the vascular surgeon's name and telephone number that worked on yHe is the BEST>our wife?  I believe I have the same issue.

Thanks.
CDW
I sent you a message CDW with all the info. It is worth the time to go there. He is the BEST!

Thanks so much!!!!
Logged

Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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