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Author Topic: Newcomer says hi  (Read 2546 times)
w00dmann
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« on: November 22, 2014, 08:41:55 AM »
Hi everybody, I am a mid 40's yo guy with IGA nephropathy, have been managing & living with it for 15 years and have approx. 15 - 18% kidney function remaining at this point.  As such I am pre-dialysis and I really hope everybody is okay with me visiting and participating in this forum!  There is a wealth of knowledge and experience I'm hoping to connect with.  Thinking forward to dialysis, I almost certainly will choose peritoneal dialysis with the "overnight glug-glug machine" option.  Keen to touch base with other folks who have gone and are going through dialysis and can offer any tips / knowledge / advice, particularly as regards dietary advice.  Thanks!
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Darthvadar
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« Reply #1 on: November 22, 2014, 12:04:00 PM »
Hello Woodman, and  :welcomesign; to IHD...

Of course you're very welcome to be here... Anyone with any interest in the whole 'kidney world' is...

Visit often... Post lots... You'll make lots of friends here... People who really understand where you're coming from... People who 'get it'...

God bless....

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
SooMK
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« Reply #2 on: November 22, 2014, 02:56:06 PM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
MatheaFord
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« Reply #3 on: November 22, 2014, 06:23:22 PM »
Welcome!  Glad to hear you are already informed about your options for dialysis and what you want to do to continue to live your life on your terms.  PD is a great option, allows a lot of flexibility in your diet, and no blood (hopefully!)
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Joe
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« Reply #4 on: November 22, 2014, 06:37:59 PM »
Hi there w00dman, and welcome!  I did PD with the overnight cycler as I thought it was the best option for me and the lifestyle I wanted to live. Best of luck with your journey and do ask away, there are some very knowledgeable folks on these boards.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Zero
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« Reply #5 on: November 24, 2014, 03:56:18 PM »
Hi and welcome.  I at first choice chose pd  because it seemed easier. After having 2 minor infections and learning about home hemo that's what I choose. I  must say I've only been doing this for 1 month and never actually did pd just had the cath,  though I am feeling better than I have in years.  I have young kids and love swimming and getting dirty.  I'm still training should be done next week.
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Zach
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"Still crazy after all these years."
« Reply #6 on: November 28, 2014, 07:42:44 AM »
Welcome to our community!
 :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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