Quote from: jeannea on November 01, 2014, 09:23:34 AMSo many of our regular commenters have gone missing. Did they get better and move on? Did they die? Did we bore them or were we mean to them? I guess I've become so tired of the meanness on the Facebook version of this board. I worry we have driven members away.Along similar lines of (regards this new Topic here) thoughts, was:http://ihatedialysis.com/forum/index.php?topic=18315.msg488079#msg488079While I'm a relative newbie here, have really spent time reading the many posts here. Now that the door to further thoughts has been opened, and the risk of being pilloried for the saying, here goes:Had noticed a number of trends taking place here.While 'some' response comments here, are not intended to 'hurt', many do just that. No, not just 'the thin' skinned, sensitive, folks.Have detected sarcasms and what appears as downright cliquishness , in some instances.I may be the only one with this perception.Granted, it may not be by design that these things happen, yet over the long haul certain 'perceptions' did come to the fore.Realized if I didn't like it, I should just move on. Now, don't misconstrue what is being said here.There are vast amounts of valuable dialysis and other experience's listed.Great.BUT...........Yes, I've noticed, that I've throttled down my normal enthusiasm, and expectations doing any posts here. Why! Well, had to dig down deep, and as stated above, certain 'little' things, kept causing me to reword what was going to be posted. Spontaneity was gone.So I went more toward the 'games', with very little responding to posed Topic questions.Did read, way back in this forums time, that religious / spiritual type posts, caused some problems. Did do a few posts here with my usual style, but soon dropped back to highly rewording the way my words came out. The joy of responding with positive hopes, and posting my way was missing. Yes, do realize it was self imposed.Bares repeating: Now, don't misconstrue what is being said here. There are vast amounts of valuable dialysis and other experience's listed.So here I am. Yes, is a fine line between fact, fiction, fantasy, myth, and engineered deception.What might be part of the solution!Well, I endeavor to NOT rain on anyone's parade by my choice of words. One can be gentle, as opposed to harsh, when voicing an opposing view point.Do like to toss in a higher Source at work, even in the face of not fully understanding the 'why' of it all.Regardless, will not enter into any of the usual 'my pa can whip your pa', endless back and forth battles, that happen under these kind of forum circumstances.What next! Not sure at this point.
So many of our regular commenters have gone missing. Did they get better and move on? Did they die? Did we bore them or were we mean to them? I guess I've become so tired of the meanness on the Facebook version of this board. I worry we have driven members away.
I check in almost daily, too. Carl is 3 1/2 years out with his kidney. I'm think I may be out of the woods with Lyme disease. I'll know more when I see my Lyme doctor in December. I'm almost retired now, too. Carl retired in July. We pan on doing some serious traveling. We'll go to Newfoundland in July to visit with Del and Walter. We are also planning a trip to New Zealand to visit with Hanify's husband and daughter. They visited us before she died. Life is good. Aleta
I still miss the chats with hanify I can't wait for July when willowtreewren and Carl come to visit. It will be so good to meet in person. They will be treated to some of the Newfoundland culture. I will be sure to post pictures!!!
I dunno. Maybe we should send Darthvader to "Alert all commands and calculate every possible destination along their last known trajectory..."
i have been looking on here for about 2 months and have noticed there is not alot of people posting questionsor talking about problems they may be having or just saying how everything is going...me personally i dont have a big supportgroup besides my husband so i am on here alot...plus i have so many questions about dialysis....i am one of those people that likes to know just exactly what i am getting myself into....i am at the fence (so my neph says) and i will have to start dialysisnot looking forward to it...but the old kidneys just cant do it no more...i feel very isolated sometimes and thats another reason icome here...so i remember that i am not alone....it helps me alot to know so many people get dialysis and its not the end of the road!!!!
I am ten years on in my dialysis career ... and I do think sometimes it's hard to see a way out of the gloom. But this site has helped me a lot, in being able to share myexperiences, both good and bad.
Just to close the loop with everyone, I had my 1 year post transplant clinic on the 10th and everything came out fine. All my numbers were where they should be and the transplant team released me to my local Neph. It will be nice not to have to drive down to Denver every other month for clinic. And I don't have to see them for a year. It was a great day! On that Saturday, we took my donor out for a special dinner to celebrate both of our year anniversaries. It made it a great week.
I Hate Dialysis Message Board
I Hate Dialysis Message Board
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