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Author Topic: DRINKING WATER FOR KIDNEY PATIENTS--YES IT MATTERS  (Read 19765 times)
obsidianom
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« Reply #25 on: September 07, 2014, 06:00:11 AM »

I dont know how this thread eneded up here with politics.  I try to avoid that whole area .  I am here to discuss dialysis and realated issues only.
I am quite happy with my zero water system. I used an electonic tester and it did indeed come back with 0 parts per million of anything.  It astes great too.
WE are tseting aluminum this week and will be interested to see if it drops. That is the only thing we changed.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Hemodoc
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« Reply #26 on: September 07, 2014, 11:34:23 AM »

I changed only one thing as well. I went from PureFLow to Bags the first part of July after my Levels came back at 17 from 14 during the recalled products. It dropped to 13 in August and I just got this months lab back at 8.  We are heading the right direction away from the PureFlow.
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
kristina
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« Reply #27 on: September 07, 2014, 12:35:07 PM »

I dont know how this thread eneded up here with politics.  I try to avoid that whole area .  I am here to discuss dialysis and realated issues only.
I am quite happy with my zero water system. I used an electonic tester and it did indeed come back with 0 parts per million of anything.  It astes great too.
WE are tseting aluminum this week and will be interested to see if it drops. That is the only thing we changed.

Sorry obsidianom, but unfortunately politics cannot be avoided as often as we all would like to avoid it...
... not even on a dialysis forum like IHD... because - over the years - we have come into contact with some unfortunate dialysis users
who - for political reasons - were unable to receive the adequate dialysis treatment they so desperately needed ...
and therefore ... in an effort to receive adequate dialysis treatment, they needed to settle in another country...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
PrimeTimer
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« Reply #28 on: September 07, 2014, 02:37:21 PM »

I don't know if they carry it in the store but I saw that Walmart also sells the Zero Water System. Looks like they have a 10-cup filter for around $35. Also comes with a "TDS Meter", so that appeals to us, too. Might be able to convince my husband (the dialysis patient) to get one at least for his own drinking water. I thought I read in reviews that it can take 20 minutes to create a picture of water (that doesn't sound long to me but I guess it could be for others) but what the heck, a person could set it up each nite just before bedtime and it'll be ready by morning. Aarg! Budget, budget, budget...but I really think we ought to fit this in.
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
noahvale
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« Reply #29 on: September 07, 2014, 03:23:31 PM »

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« Last Edit: September 18, 2015, 08:09:26 PM by noahvale » Logged
noahvale
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« Reply #30 on: September 07, 2014, 03:26:50 PM »

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« Last Edit: September 18, 2015, 08:10:24 PM by noahvale » Logged
kristina
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« Reply #31 on: September 08, 2014, 02:15:56 AM »



I think you have misread my message, Mr. Noahvale... because I am not a mind-reader...
... but it appears that governments take instructions on a periodic basis...
...Meanwhile in the interim they are left to their own devices to answer questions put to them by the public and the media...
... which they often appear to answer in a very confused way, because they are not thinking individuals
... but appear to be merely puppets awaiting furter instrucitons...
... But, there again, as I have mentioned above,
I am not a mind-reader and I certainly don't know what it is really all about...


Huh???   

As I responded to Sugarlump, this is my last post on this off topic side bar.  If you wish to continue the conversion, please start a new thread on the Off Topic-Politics board. ~ NoahVale


Hello noahvale,

I don't think there is any urgent need for me to start a conversation about this matter on the Off Topic - Politics Board...
because I have already mentioned what I wanted to say about the matter...

Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
obsidianom
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« Reply #32 on: September 08, 2014, 04:29:06 AM »

I don't know if they carry it in the store but I saw that Walmart also sells the Zero Water System. Looks like they have a 10-cup filter for around $35. Also comes with a "TDS Meter", so that appeals to us, too. Might be able to convince my husband (the dialysis patient) to get one at least for his own drinking water. I thought I read in reviews that it can take 20 minutes to create a picture of water (that doesn't sound long to me but I guess it could be for others) but what the heck, a person could set it up each nite just before bedtime and it'll be ready by morning. Aarg! Budget, budget, budget...but I really think we ought to fit this in.
The one I got from Amazon for $44 is 23 cup which is about a gallon and a half so it holds a LOT of water. It fits in my refridgerater so we both have cold CLEAN water all the time now. IT TASTES GREAT.   Yes it takes a few minutes to filter it but I just keep it constantly filled as we use it so I dont even notice the time .
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
PrimeTimer
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« Reply #33 on: September 08, 2014, 07:36:47 AM »

I don't know if they carry it in the store but I saw that Walmart also sells the Zero Water System. Looks like they have a 10-cup filter for around $35. Also comes with a "TDS Meter", so that appeals to us, too. Might be able to convince my husband (the dialysis patient) to get one at least for his own drinking water. I thought I read in reviews that it can take 20 minutes to create a picture of water (that doesn't sound long to me but I guess it could be for others) but what the heck, a person could set it up each nite just before bedtime and it'll be ready by morning. Aarg! Budget, budget, budget...but I really think we ought to fit this in.
The one I got from Amazon for $44 is 23 cup which is about a gallon and a half so it holds a LOT of water. It fits in my refridgerater so we both have cold CLEAN water all the time now. IT TASTES GREAT.   Yes it takes a few minutes to filter it but I just keep it constantly filled as we use it so I dont even notice the time .

Price-wise, the larger gallon and a half size actually sounds like the better deal. Years back my husband used Brita. Glad he doesn't anymore! Tap water is sure nasty but what some people don't know, is that some of the most clearest freshest water from the great outdoors can also make you sick. When I was young my friends and I would go camping together every summer. Sometimes we'd go to a campground at a lake. There was a time when we ran out of drinking water and eyed an upright post-type spigot on the lake's edge simply labeled "water". So, we filled our container and drank from that the rest of the day. Couple weeks later I ended up at the doctor's office with stomach cramps, etc...When the test results came back, he asked me if I had been hiking or camping recently. I said, "Yes, how did you know?". He said the test results revealed a parasitic bacteria in my lower intestine that usually comes from drinking from a natural water source, like springs, rivers or..a lake. He figured that the water we drank from that spigot was directly pumped from the lake (and not filtered). He said altho water from a river or waterfall may look tempting because it looks so crystal clear and tastes good, there are natural forms of bacteria in it that can make us sick. I had to do a round of anti-biotics. After that, I never drank from the outdoors again! 
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Sugarlump
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10 years on and off dialysis

« Reply #34 on: September 10, 2014, 10:47:41 AM »

They have today published a report in the UK about the connection between high levels of aluminium in tap water and Alzheimer's.
Maybe the rapid increase in Alzheimers patients is a reflection on deteriorating water quality...
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #35 on: September 10, 2014, 12:07:02 PM »

Thank you sugarlump,  for mentioning this point about high levels of aluminium in tap water and the connection to Alzheimer's !
I remember hearing rumours about that a few years ago and an independent (forgot who it was) investigation also noticed
many traces of hormones in our drinking/tap-water water and that really made me take action...!
I have filtered my drinking/cooking water ever since and it hopefully assists me in preserving my health as well as is possible...?
I am also wondering whether the deterioration of our tap-water is in any way connected to the privatization of our UK-water?
« Last Edit: September 10, 2014, 12:08:44 PM by kristina » Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis

« Reply #36 on: September 11, 2014, 09:42:44 AM »

Could well be ( geared up to profit ) and not enough re-investment in pipework. Some of our main water pipes are lead being Victorian!!!
That's not good.
Yes I too saw that report on hormone levels in water (Estrogen supposedly can cause fertility problems in men and even make fish change sex!!!)

Evian water assure me their aluminium levels are negligible... so I think I will carry on with my bottled water. I might even upgrade my water filter kettle.
Pity you can't get a home testing kit for your water... Using bottled water for cooking as well means a whole heap of bottles and then there is the issue of plastic
bottles contaminating the water after awhile in storage....
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
obsidianom
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Posts: 1271

« Reply #37 on: September 11, 2014, 12:10:07 PM »

Could well be ( geared up to profit ) and not enough re-investment in pipework. Some of our main water pipes are lead being Victorian!!!
That's not good.
Yes I too saw that report on hormone levels in water (Estrogen supposedly can cause fertility problems in men and even make fish change sex!!!)

Evian water assure me their aluminium levels are negligible... so I think I will carry on with my bottled water. I might even upgrade my water filter kettle.
Pity you can't get a home testing kit for your water... Using bottled water for cooking as well means a whole heap of bottles and then there is the issue of plastic
bottles contaminating the water after awhile in storage....
Zero water comes with an electronoic water tester . When I filter water using it I get ZERO parts per million of all matter.  I then put it in my own bottles to use it. Its much cheaper in the long run then buying bottled water and I know its aluminum and all other matter free.
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #38 on: September 13, 2014, 09:26:44 AM »

Could well be ( geared up to profit ) and not enough re-investment in pipework. Some of our main water pipes are lead being Victorian!!!
That's not good.
Yes I too saw that report on hormone levels in water (Estrogen supposedly can cause fertility problems in men and even make fish change sex!!!)

Evian water assure me their aluminium levels are negligible... so I think I will carry on with my bottled water. I might even upgrade my water filter kettle.
Pity you can't get a home testing kit for your water... Using bottled water for cooking as well means a whole heap of bottles and then there is the issue of plastic
bottles contaminating the water after awhile in storage....
Zero water comes with an electronoic water tester . When I filter water using it I get ZERO parts per million of all matter.  I then put it in my own bottles to use it. Its much cheaper in the long run then buying bottled water and I know its aluminum and all other matter free.
Do you store it in glass or plastic bottles?
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
obsidianom
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Gender: Male
Posts: 1271

« Reply #39 on: September 13, 2014, 11:57:38 AM »

I use both but prefer glass. I have a large glass pitcher and some empty glass bottles from ice tea that I reuse for water. I make my own ice tea from this water also.
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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