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| | |-+  I need to have a rant about fluid restriction, renal diet and Nurses!
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Author Topic: I need to have a rant about fluid restriction, renal diet and Nurses!  (Read 9719 times)
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #25 on: July 06, 2014, 09:09:38 AM »

Suffolk is behind the rest of The World in Medical issues... but Cassie that's not a bad idea. I am going to Cambridge next Tuesday to meet a wedding photographer, wonder if
I can talk to someone there about NX Stage. They may have some already and would willingly travel to Cambridge to train....
I have now had an all clear result from angio so pushing hard to get back on transplant list too...  :cuddle;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Arcticat2000
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What. Me worry?

« Reply #26 on: July 06, 2014, 09:27:38 AM »

On the subject of renal diet, which afte r 11 years for me , it is a PAIN keeping track of what and when. But there are a couple of options if you can afford it. One is www.magickitchen.com another is www.momsmeals.com. Both offer home delivert pre made meals for renal patients. Good luck! :beer1;
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ESRD diagnosed June 2003
Dialysis begins July 2003
Nocturnal Dialysis since Aug.2005-present
3 nights per week @ 7hrs per session
Heart bypass surgery Nov.2007 w artificial valve
Sugarlump
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10 years on and off dialysis

« Reply #27 on: July 06, 2014, 10:44:43 AM »

On the subject of renal diet, which afte r 11 years for me , it is a PAIN keeping track of what and when. But there are a couple of options if you can afford it. One is www.magickitchen.com another is www.momsmeals.com. Both offer home delivert pre made meals for renal patients. Good luck! :beer1;

Wow what a wicked idea? I take it they are both American?
we have a company called Cook over here which does really good meals, and has diet food and gluten free food. Never heard of one for renal patients  ;D
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #28 on: July 06, 2014, 01:49:01 PM »

Me neither. Good idea.

Sugar I would definitely first call to check (remember your energy spoons     ;D        ,and I'm mighty pleased to hear about your all clear angio!!!
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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