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Topic: Hello (Read 3425 times)
stickman
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Hello
«
on:
March 28, 2014, 08:47:31 AM »
As you may have guessed, I am new here. I'm 43 year old PD patient since November 2013. I'm currently trying to be double listed for a kidney tx. Still undergoing evaluation. Not really sure what to add here.
Please feel free to ask me any questions.
Thanks.
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SooMK
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Re: Hello
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Reply #1 on:
March 28, 2014, 09:58:32 AM »
Hi and welcome Stickman!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
MooseMom
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Re: Hello
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Reply #2 on:
March 28, 2014, 10:34:41 AM »
Let us know how your pre-tx testing goes! Welcome to the site.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Darthvadar
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Re: Hello
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Reply #3 on:
March 28, 2014, 01:20:23 PM »
Welcome Stickman...
to IHD....
Please post often, and let us know how your testing goes....
Darth, Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Bambino_Bear
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Re: Hello
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Reply #4 on:
March 28, 2014, 08:07:36 PM »
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I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
Jean
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Re: Hello
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Reply #5 on:
March 28, 2014, 11:17:45 PM »
to IHD, glad to have you here.
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One day at a time, thats all I can do.
Charlie B53
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Re: Hello
«
Reply #6 on:
March 29, 2014, 12:22:20 PM »
Hi Stickman
I'm also on PD for almost a year now. So far keeping it clean and no infection.
Not really glad to hear you've had to do this, but it is reassuring to see that I am not the Lone Ranger.
Just sad this has to be, that medicine hasn't figured out a better way to prevent such a need for dialysis.
Take Care,
Charlie B
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