I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 21, 2024, 01:47:03 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Ending it
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] 2 Go Down Print
Author Topic: Ending it  (Read 10880 times)
BattleScars
Full Member
***
Offline Offline

Posts: 154

« on: February 04, 2014, 03:03:21 PM »

I have read that places like Davita blackball patients all the time and discharge them for no cause at all and this is a death sentence because no other clinic will take them. I am being discharged for making a complaint. Now I have a death sentence. I'm not going to sit out the next few weeks and suffer. I am ending my life tonight. This is what happens when you complain. We are screwed as dialsyis patients. They got their wish. I am done. This has been a cruel life. Goodbye.
Logged
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: February 04, 2014, 04:58:57 PM »

I honestly believe there is a solution for you and pray that you rethink this. Please PM me - I would love to speak with you. Please.
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #2 on: February 04, 2014, 05:03:26 PM »

Well, if you have already ended your life, I guess you won't be reading this. However, if you are still around, may I suggest that you need some help immediately! I don't know how things work where you are ( I presume you're in the USA), but there must be some helpful organisation you can call. Do so immediately. A fight with a Dialysis company is not worth killing your self for. Pick up that phone NOW!
Logged

Galvo
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #3 on: February 04, 2014, 05:05:39 PM »

YES. PM Carol quick smart. She is so kind and wise.
Logged

Galvo
UkrainianTracksuit
Sr. Member
****
Offline Offline

Gender: Female
Posts: 799

« Reply #4 on: February 04, 2014, 05:11:38 PM »

There are some knowledgeable people here who can help you brainstorm a solution.  Like Galvo said, there must be a helpful organization out there to help.  I wish I understood or knew USA procedures but I don't.  Right now, it looks like it may be the end of the road but there has to be a way.  There always is a way!  Best wishes...
Logged
Michael Murphy
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2109


« Reply #5 on: February 04, 2014, 06:15:32 PM »

Look. Ending it is letting the creations win.  Find a good malpractice lawyer and sue them for a ton of money.  They win if you roll over and die.  Find the meanest lawyer you can get and sic him or her on them if they are black listing you with other clinics a good lawyer can make a slander or libel case against the corporation and the individuals who are participating in this.
Logged
Shaks24
Sr. Member
****
Offline Offline

Gender: Male
Posts: 923


« Reply #6 on: February 04, 2014, 06:24:18 PM »

BattleScars, you are a staple on this board and many of us know you and care for you from our relationship and common issues here. I hope you can reconsider and reach out for some ideas to better deal with the situation. We all support you and care for you and you will hurt more than yourself by doing something bad to yourself. I am sure many will help resolve your problem with the clinic if you just reach out. Please talk to okarol or call someone close to you. It is a solveable problem. Please reconsider and reach out to someone. God Bless you.
Logged

Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Michael Murphy
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2109


« Reply #7 on: February 04, 2014, 06:33:25 PM »

If they have contacted other clinics without your permission they have violated the federal hipa law don't give in contact a lawyer if you can't afford one call legal aid.  What is being done to you is both vile and petty.  Stand up to them for yourself and for the next patient.. 
Logged
Shaks24
Sr. Member
****
Offline Offline

Gender: Male
Posts: 923


« Reply #8 on: February 04, 2014, 06:42:56 PM »

Here is a link to an organization that specifically intervenes in situations like yours. Give them a call asap:  http://dialysisadvocates.com/
Logged

Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: February 04, 2014, 11:22:42 PM »

Thanks for calling Battlescars. Please keep in touch. There are a lot of people here with knowledge and who will support you - don't give up.

How do I file a complaint about my dialysis or kidney transplant care?
End-Stage Renal Disease (ESRD) Networks and State Survey Agencies work together to deal with complaints about dialysis or kidney transplant care.
More info here: http://www.medicare.gov/claims-and-appeals/file-a-complaint/kidney-care/complaints-about-kidney-care.html
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #10 on: February 04, 2014, 11:28:09 PM »

You're a champion, Carol! Battlescars, best wishes to you!
Logged

Galvo
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #11 on: February 05, 2014, 12:28:31 AM »

Battlescars, please don't give up, follow Okarols advice, whatever it is and please just don't do this to yourself.
Logged

One day at a time, thats all I can do.
obsidianom
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1271

« Reply #12 on: February 05, 2014, 02:08:01 AM »

Your nephrologist is also responsible to you. As a doctor I have been drilled for many years about NOT ABANDONING A PATIENT. It is not allowed . A doctor can lose their license and be sued successfully for abandonment.  You can call your state medical board of licensure immediatly to report the nephrologist . Also they can help you find another . You can also sue on grounds of abandonment if the doctor has not gone through all the proper steps to drop you as a patient AND make sure you have a doctor to take over care. Doctors have a legal responsibility to their patients to care for them and transfer care when they no longer can or want to.    Dont allow them to win.
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Darthvadar
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2815


« Reply #13 on: February 05, 2014, 03:00:47 AM »

Battlescars...

Thank God you're still with us... ALWAYS reach out to us... That's what we're here for.....

Hope you find a centre to meet your needs...

Thanks Karol.... You're a gem!....

Stay with us, Battlescars... We can't survive without each other!....

God bless...

Darth...
Logged

Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kristina
Member for Life
******
Offline Offline

Posts: 5530


« Reply #14 on: February 05, 2014, 04:40:00 AM »

Dear BattleScars,
I can understand you situation very well because I have been completely discharged myself,
not from dialysis (I am fighting every day to keep my kidneys functioning to avoid dialysis for as long as possible)
but for other non-compliant/non-obliging reasons towards sadistic doctors... and I dared to complain as well...

If, in my despair and trauma I would have committed suicide, these medical sadists would perhaps have had a party ...
...but I am not ready to give them such a pleasure...

Please do the same... please hold on and find a lawyer and get some urgent practical assistance ...

Our life is much too short as it is and we don’t know what the future holds for us ...

... and fortunately you are still living in a system where lawyers have a chance to stop such horrible sadistic manoeuvres
to keep dialysis patients humble, obedient and grateful, even if they are being abused...

... You have dared to complain and as a result you have been excluded from a life-important survival
because Davita and your nephrologist want to “show you the score” and “put you in your place”
and your heartless nephrologist even assisted Davita in their inhumanitarian manoeuvre...
... please find a lawyer and please, please succeed ... !
Kristina.
« Last Edit: February 05, 2014, 04:56:41 AM by kristina » Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #15 on: February 05, 2014, 05:57:39 AM »

I think that along with the other suggestions it would be a good idea to find a therapist to talk to. Many charge on a sliding scale. I think you need someone to talk to who puts their attention on you.

Are you willing to tell us what you complained about? You don't have to.
Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #16 on: February 05, 2014, 06:01:00 AM »

Sorry. Just saw your other post about the complaint.
Logged
Bungarian
Jr. Member
**
Offline Offline

Posts: 74

« Reply #17 on: February 05, 2014, 06:52:12 AM »

You should contact a local news place and tell them your story. See if they will do a report on it. Draw attention to the problem.

Also we all should contact our Senators and Congress. There should be a law that centers cannot deny treatment.
Logged
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #18 on: February 05, 2014, 07:52:09 AM »

I'm sorry you're going through all of this. You are a strong person - you wouldn't have filed the complaint if you weren't. I know you feel beaten, buy as long as you keep fighting, you're a winner. I hope you've decided to stick around a while longer. It's one thing to choose death when you're so ill that you really have no life anymore. I accept that. But I think choosing death out of anger or due to the loss of a single battle is regretable. You might think you'd be telling your center "look what you drove me to," but the message they'd get from your death would be "See, we were right." They aren't right. You deserve good care.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
obsidianom
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1271

« Reply #19 on: February 05, 2014, 08:35:04 AM »

If you are willing to go to a newspaper , I have a contact at the Boston Globe. I remember you said you were in Mass.
She is a healthbeat reporter and writes on these type issues.   Email her at Lizbeth.Kowalczyk@Globe.com
Liz Kowalczyk does some good work with medical stories. She just did a big piece on Liver transplants at Lahey clinic in Mass. 
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Big E
Full Member
***
Offline Offline

Gender: Female
Posts: 176


« Reply #20 on: February 05, 2014, 09:08:14 AM »

Hang in there, Battlescars. We don't want to lose you. Please know that we all care about you.
Logged

PKD diagnosed June 1996
Started in-center hemodialysis May 2010
cdwbrooklyn
Full Member
***
Offline Offline

Gender: Female
Posts: 388


Positive Thoughts equal Positive Energy

« Reply #21 on: February 05, 2014, 02:59:09 PM »

Sorry you are going through this BattleScar; however, you can choose a new kidney doctor in Boston and he or she will direct you to a new dialysis center. Going forward, put everything in writing when you are going through this because you can take them to court put you must have proof. Things will turn around for you, keep your head up.
Logged

Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #22 on: February 05, 2014, 07:15:27 PM »

Bungarian, I do not agree that centers should never be allowed to deny treatment. I believe there should be procedures and documentation before discharge. There should be more protections for patients. But no one should have to treat or be treated next to a truly violent patient. It is also not right to keep a chair open for someone who only comes when they feel like it. We have to find a way to balance clinic and patient needs. I think that before a patient is discharged we should have another neutral party involved to mediate or else someone assigned to be the patient advocate that the centers are required to listen to.

I think that someone to represent BattleScars could have helped. They could not have hidden behind letters.
Logged
JaeCie
Newbie
*
Offline Offline

Posts: 27

« Reply #23 on: February 05, 2014, 07:47:20 PM »

I have read that places like Davita blackball patients all the time and discharge them for no cause at all and this is a death sentence because no other clinic will take them. I am being discharged for making a complaint. Now I have a death sentence. I'm not going to sit out the next few weeks and suffer. I am ending my life tonight. This is what happens when you complain. We are screwed as dialsyis patients. They got their wish. I am done. This has been a cruel life. Goodbye.
Battlescars,
I have a Foundation that helps with just this type of thing. You can private message me and I can find out how best to help you right NOW with the situation you are facing. Be Bold and Stay Strong.
Logged
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #24 on: February 06, 2014, 06:52:35 AM »

You can do this!  Expose the bastards!  Plugger can also help with this. 

           :grouphug; 
Logged

Pages: [1] 2 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!