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JaeCie
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« on: January 23, 2014, 06:15:15 PM »
I am Jae Cie diagnosed in 2009 with ESRD and currently starting a Foundation for dialysis patients. If I can help you with something let me know. I will probably create a poll to get some insight from other patients and would first like to know what you hate MOST about dialysis. I look forward to discussions.
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Poppylicious
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« Reply #1 on: January 24, 2014, 04:04:15 AM »
Hi JaeCie, and  :welcomesign;!

 ;D

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
ToddB0130
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« Reply #2 on: January 24, 2014, 04:38:58 PM »
Welcome to the board
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No day but today
Rerun
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Going through life tied to a chair!
« Reply #3 on: February 06, 2014, 08:31:56 AM »
Hi Jae Cie and welcome to IHD.  Hope we can help.  Also, spread our board to dialysis people.

Rerun, Admin      :welcomesign;
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Elvis
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« Reply #4 on: February 07, 2014, 09:43:17 PM »
Hello Jae Cie and welcome to the board. I did not like Dialysis either. I learned to live with it until I received the Gift of Life from an 18 year old. I thank my Lord in Heaven for that wonderful day in my life. If I can help you just ask and you shall receive.
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kristina
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« Reply #5 on: February 08, 2014, 08:26:22 AM »
Hello Jae Cie and welcome.

Please tell me, where  and in which country do you wish to set up your foundation ?

Is your foundation going to be registered with the Charity Board or is it going to be a Foundation on the Internet ?

Thanks from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
JaeCie
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« Reply #6 on: February 15, 2014, 06:13:56 PM »
Quote from: kristina on February 08, 2014, 08:26:22 AM
Hello Jae Cie and welcome.

Please tell me, where  and in which country do you wish to set up your foundation ?

Is your foundation going to be registered with the Charity Board or is it going to be a Foundation on the Internet ?

Thanks from Kristina.

Hi Kristina, My Foundation is based in the USA and has 501c(3) status. You can visit our facebook page by going here https://www.facebook.com/pages/Carlisle-Williams-Foundation/310701685735807. It is a regular boots-on-the-ground Foundation going to hospitals and dialysis centers to support patients. We also have online support/telephone options.
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Darthvadar
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« Reply #7 on: February 15, 2014, 06:42:31 PM »
Hello JayCie....

Welcome to IHD.... I hope you'll enjoy being here... Please visit, and post often...

You'll find lots of great information, and I suspect, make some great new friends here...

Again, welcome....

Darth, Moderator.
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kristina
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« Reply #8 on: February 22, 2014, 10:11:58 AM »
Quote from: JaeCie on February 15, 2014, 06:13:56 PM
Quote from: kristina on February 08, 2014, 08:26:22 AM
Hello Jae Cie and welcome.

Please tell me, where  and in which country do you wish to set up your foundation ?

Is your foundation going to be registered with the Charity Board or is it going to be a Foundation on the Internet ?

Thanks from Kristina.

Hi Kristina, My Foundation is based in the USA and has 501c(3) status. You can visit our facebook page by going here https://www.facebook.com/pages/Carlisle-Williams-Foundation/310701685735807. It is a regular boots-on-the-ground Foundation going to hospitals and dialysis centers to support patients. We also have online support/telephone options.


Hello JaeCie,
 
many thanks for the information.
Your foundation sounds very interesting and the support you offer in hospitals and dialysis centres is very much needed...
Whenever I was in hospital with „my“ kidney trouble (chronic proliferative glomerulonephritis and hypertension,
drug-intolerance to antihypertensive medicines, allergies etc.), I met  so many other kidney patients
... and they were often just left alone by their families... or  even their friends...

Many of these patients were sometimes in urgent need to talk to another human being...
 
I do wish you very good luck with your foundation and all the best...

Kind regards, good luck and take care, Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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