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Author Topic: PRAYERS ARE NEEDED  (Read 7735 times)
babycake
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« on: January 11, 2014, 05:56:52 PM »
my son who is a special needs child hes 26yrs olld
my pride njoy6yrs ago we almost lost him
he had severe case of pneumonia and went into cardiac arreat
he was in the hospitol for 3weeks

well its a repeat pattern

he hadnt been feeling good
he had a sinus infection
and then the next day
he was in the hospitol
with a small batch of pneumonia
he was admited over nite
he went to dialyis
and on thrusday he was back
in the hospitol
he has double pneumonia
and has the flu (in fluemeaz a)
and they have him
on oxygen for  its hard on him to breath
 he on the critical list
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MaryJoe
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« Reply #1 on: January 11, 2014, 06:02:29 PM »
Prayers are on the way. I hope this crisis passes quickly, I know you are worried sick, so prayers are also on the way for comfort and peace of mind for you.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Wildrose
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« Reply #2 on: January 11, 2014, 10:53:03 PM »
I will be praying for a quick recovery for him and for peace for you and the rest of the family.
Best wishes to you!


Rose
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
Rerun
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Going through life tied to a chair!
« Reply #3 on: January 12, 2014, 04:44:31 AM »
I'm praying for a full recovery.  I'm praying for you too.  You must be so worried.

             :pray; 
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babycake
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« Reply #4 on: January 12, 2014, 07:38:09 AM »
i went up there yesterday
and it was hard to see him this way
its like a repeat pattern from
6yrs ago

i did ask the doc about his heart
for he ha heart attck
6yrs ago when he pneumonia
but they said his heart was fine

thinking of asking
for a 2nd opinion
on that

of course what mother
wouldnt be paniking
about there child
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MooseMom
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« Reply #5 on: January 12, 2014, 08:51:59 AM »
I have a special needs child myself, and I don't want to even imagine the worry I'd feel if he was in your son's situation.  I am so sorry that he is unwell, and I am hoping for a speedy recovery. :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #6 on: January 13, 2014, 12:42:49 AM »
Sure will pray for him and for you too. You are in a hard situation.   :grouphug;
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okarol
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« Reply #7 on: January 13, 2014, 01:00:25 AM »
 :pray; I hope things improve soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: January 13, 2014, 02:49:35 AM »
 

       :grouphug;         :grouphug;




Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Bambino_Bear
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« Reply #9 on: January 13, 2014, 04:30:19 AM »
 :bestwishes; :cuddle;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Wat76
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This Too Shall Pass
« Reply #10 on: January 13, 2014, 07:56:46 AM »
Sending prayers for both of you. Hang in there.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #11 on: January 13, 2014, 10:57:58 AM »
Praised and it's now in God's hands.   :pray;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
BobN
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« Reply #12 on: January 14, 2014, 06:26:50 AM »
Thoughts and prayers headed your way.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
babycake
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« Reply #13 on: January 14, 2014, 09:10:35 AM »
got some news
my older sister went up to
see him yesterday
 and he was semi awake
she ask him
if he wanted her to massage
his feet.. he wiggled them
which ment yes for the massage
my mom and my sister went up
there later on last nite
they took him
off the ventilator
and there going to try
 and see if they can feed
him withouot the feeding tube
( see if he can swallow)
and he was watching tv last nite
thats a good sign
when i called this morn
they said if everything
goes well
they may transfer
him out of icu today
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cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #14 on: January 14, 2014, 09:23:45 AM »
Great!  Hang in there!!!
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Joe
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« Reply #15 on: January 14, 2014, 09:48:53 AM »
Thatis good news Babycake!
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
babycake
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« Reply #16 on: January 14, 2014, 04:47:25 PM »
he in a differnt floor
 and hes eating puree food
 it was funny
my mom and i went up there
we wernt sure what room
he was in and my mom went up
to the nurse.. to ask
Forrest heard her
and he YELLED OUT GRANDMA

IT WAS BEAUTIFFUL
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MaryJoe
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« Reply #17 on: January 14, 2014, 05:14:33 PM »
Happy to hear he's doing so much better!
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
cassandra
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When all else fails run in circles, shout loudly
« Reply #18 on: January 27, 2014, 03:38:20 AM »
How is he doing?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
babycake
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« Reply #19 on: February 04, 2014, 08:50:39 PM »
Quote from: cassandra on January 27, 2014, 03:38:20 AM
How is he doing?



hes doing great
he saw the throat doc the
other day just for
a routine check up
and reg doc is wanting
to see him this month
again with a follow up
on chest x rays
to make sure
everything is clear
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Big E
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« Reply #20 on: February 05, 2014, 08:58:33 AM »
I'm so glad to hear the good news, baby cake. :2thumbsup;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Angelicfury
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« Reply #21 on: February 05, 2014, 02:35:51 PM »
It's good to hear things are slowly getting better. I have a special needs child also and I've come to the conclusion no one will fight harder for him than you. Prayers are on the way.
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Has thou felt the fury of an Angel . . . .

In-center 7/7/08
4.5 hrs 3x wk
Formerly 161.8 Kg
Currently 129 Kg (dry)
babycake
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« Reply #22 on: February 25, 2014, 10:51:12 PM »
my mom took him
to  see the doc for a follow up
yesterday
and everything is fine
his lungs are clear

but  forrest has a problem he will
gain weight and then loose it
his dad was the same way

when they weigh him
at the doc
he was 97 lbs
the doc said Forrest
your to skinny

the most he has ever weigh
if he was lucky
was 105lbs
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MooseMom
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« Reply #23 on: February 26, 2014, 12:08:35 PM »
I'm glad to hear that his lungs are clear!  You must be so relieved. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #24 on: March 02, 2014, 02:04:28 AM »
So good to hear about the improvements, his weight loss might very well be caused by....being pretty ill in hospital for a bit?  ::)

Wishing you, and your family lots of strength, and love
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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