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Author Topic: Here It Goes  (Read 17330 times)
Shaks24
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« Reply #25 on: September 12, 2013, 02:38:03 PM »

New fistula is buzzing away.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
cassandra
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When all else fails run in circles, shout loudly

« Reply #26 on: September 12, 2013, 04:59:03 PM »

Glad to hear all went well,

Love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Bambino_Bear
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« Reply #27 on: September 12, 2013, 09:32:41 PM »

Shaks how is the pain today?  Hope you are doing well.
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
galvo
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« Reply #28 on: September 12, 2013, 11:22:49 PM »

Best wishes to your new fistula!
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Galvo
Shaks24
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« Reply #29 on: September 13, 2013, 04:38:41 AM »

Still mild soreness. Broke down and took another pain pill last night. The pd nurse oked my home yesterday. I go to the clinic monday to have the bandages replaced and possibly the catheter flushed. So far fistula has good thrill. I can feel it when I  put my finger near it.
« Last Edit: September 13, 2013, 05:19:53 AM by Shaks24 » Logged

Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
obsidianom
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« Reply #30 on: September 13, 2013, 08:15:05 AM »

Still mild soreness. Broke down and took another pain pill last night. The pd nurse oked my home yesterday. I go to the clinic monday to have the bandages replaced and possibly the catheter flushed. So far fistula has good thrill. I can feel it when I  put my finger near it.
A truly "THRILLING Experience".
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Shaks24
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« Reply #31 on: September 13, 2013, 02:54:56 PM »

You bet Doc. I can't imagine going through the surgery only to have it DOA. I have read it happens quite frequently. I will plan to exercise this baby regularly and hopefully it will develop into a large functioning fistula for a back up on my PD.
« Last Edit: September 13, 2013, 03:08:10 PM by Shaks24 » Logged

Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
MooseMom
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« Reply #32 on: September 13, 2013, 03:58:11 PM »

Wait 'til it starts buzzing in your neck.  God, I hate that.  So creepy.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Shaks24
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« Reply #33 on: September 13, 2013, 04:41:48 PM »

That does sound creepy. I wonder how long it will take for that to happen.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
cassandra
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When all else fails run in circles, shout loudly

« Reply #34 on: September 14, 2013, 03:38:20 PM »

Don't worry, that's a good sign  ;D , it's also funny when reading a newspaper and a whole drumband sound comes out of it
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Shaks24
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« Reply #35 on: September 14, 2013, 05:15:40 PM »

Too funny. I actually went into the surgery consultation thinking I was just getting a PD catheter. The surgeon told me it was a good idea to get a fistula too as the PD catheter could have issues with infection and what not. He sounded convincing so I went with getting both done at the same time. Now that I have both, I think it may save me being put under general anesthesia for a while. I hope! Or was he just selling? 
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
cassandra
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When all else fails run in circles, shout loudly

« Reply #36 on: September 14, 2013, 11:09:44 PM »

Couldn't answer that, I had my first peritonitis after a year or so, but did PD for 5 years in total. There's quite some people here who PD'ed for an awfull lot longer than that.
I started PD cos the 2nd fistula didn't work, but yours sounds booming.   ;D
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Shaks24
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« Reply #37 on: September 15, 2013, 06:17:49 AM »

Thanks Cas. I really apreciate all your thoughfullness and your experience. I go to the clinic tomorrow to have the surgery bandages replaced. If all goes well they plan to start me on the 30th. I can't wait to take a hot shower.
« Last Edit: September 15, 2013, 08:23:04 AM by Shaks24 » Logged

Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Grumpy-1
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Make me the person my dog thinks I am

« Reply #38 on: September 18, 2013, 04:15:33 AM »

I had both initially too. Switched to PD and about a year later the fistula closed up.  Didn't worry too much about it until now.  PD is now out the picture for me because of infections and now having to go to Hemo.  New fistula will be in by the end of the year.  Grumpy
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Make me the person my dog thinks I am
Shaks24
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« Reply #39 on: September 23, 2013, 10:29:33 AM »

Got catheter flushed today. The nurse basically did off and on partial fills and drains out of a 2 liter bag of solution. Everything went well but I was told to hold off on showering for a few more days as there was a bit of redness at the exit site of the catheter. This coming Friday I start training and will do my first complete manual exchange.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Bambino_Bear
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« Reply #40 on: September 24, 2013, 12:45:32 AM »

Shaks I am glad everything went well.  Did the fill and drain feel strange?
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Shaks24
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« Reply #41 on: September 24, 2013, 03:47:12 AM »

It was not bad at all. I did feel kind of bloated after I left the clinic even though everything was drained out. She never had the entire bag in me at once though. It was just repeated partial fills and then drains. I am ready to kill for a hot shower. Tomorrow makes almost 2 weeks.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Jean
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« Reply #42 on: September 24, 2013, 01:52:16 PM »

Sounds like it is going well for you stinky. Hate the thought of not showering. Egads, my hair!!! Good luck and I hope things continue to go well for you.
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One day at a time, thats all I can do.
Shaks24
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« Reply #43 on: September 24, 2013, 02:59:14 PM »

Stinky indeed Jean! Even my two dogs want no part of me. Spounge baths at the sink and hair shampooing at the kitchen sink is getting old.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Shaks24
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« Reply #44 on: September 27, 2013, 02:10:16 PM »

Did first manual exchange today as today is my official start date. It went well. I also got cleared to shower. yipeee. Stinky no more after tonight. I was so nervous this morning I forgot to take my BP meds. Better late than never I guess.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
willowtreewren
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My two beautifull granddaughters

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« Reply #45 on: September 27, 2013, 05:32:04 PM »

Good to hear things are going well.  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Shaks24
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« Reply #46 on: September 28, 2013, 11:34:33 AM »

Thank you Aleta. I hope you and yours are doing well. 
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Jean
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« Reply #47 on: September 29, 2013, 01:42:08 AM »

Shaks, I think I told you before I am right behind you and am seriously scared to death. I really don't want the PD mess in my house, but at the same time, I hate needles and don't want to do that either. My neph is no help at all, he says it is too early for me to be thinking about dialysis, but at least he did send me to " dialysis school".I am more grateful than I can say to all the helpful people here at IHD> Please, keep us closely posted on what goes on with you.
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One day at a time, thats all I can do.
Shaks24
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« Reply #48 on: September 29, 2013, 07:24:34 AM »

I will Jean. I understand your feelings too. I am starting with mixed feelings as my eGFR was not that low but symptoms were getting pretty bad. I have a full week of training this coming week and my first delivery of supplies on the 1st of October. I hope that your kidney function holds up and that you do not experience bad symptoms so that maybe you never have to deal with it. As to avoiding needles, I agree with you all the way on that not to mention the side effects you read about on in center HD.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Bambino_Bear
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« Reply #49 on: September 30, 2013, 02:49:57 AM »

Shaks I am so glad that all is going well.  My husband has his PD cath placed on Thursday.  I am pretty anxious but following along on your journey so far has helped me, so thank you for posting.  I am planning on becoming a donor for him or in paired program if we are not a match so I am trying to look at this as just a bridge to get us where we need to go.  Please keep posting.  Thank you.

Nikki

 :flower;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
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