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Author Topic: What has dialysis taken from you?  (Read 13814 times)
CalamityEC
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« Reply #50 on: October 11, 2013, 04:43:35 PM »
Well, I'm living at home with my parents.  I'm sure my boyfriend would wash my hair, but my mom is pretty good at it. She cuts my dad's hair, so we have one of those salon clothes protector things.  I used that, and wore a shirt.  We also have a removable hose for my shower.

I am hoping that I can eventually get back to swimming, but am currently unsure.
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
ilovesoda
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« Reply #51 on: October 22, 2013, 03:49:28 PM »
ESRD took away from me my greatest joy -- drinking lots of water, juices and smoothies...  :'(

It took away my job (since having a heart attack and being bedridden because of hyperparathyroid bone disease), my social life and my simple leisures such as going to the movies... I'm even very hesitant to attend reunions or gatherings because I'm scared that I will overdrink. And I get envious seeing other people drink without a care in the world. Something that is so normal for them but not for me.   :'(
« Last Edit: October 22, 2013, 03:54:19 PM by ilovesoda » Logged
Grumpy-1
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Make me the person my dog thinks I am
« Reply #52 on: October 30, 2013, 08:09:25 AM »
obsidianom  mentioned sex in his comments.  I hadn't thought much about that, but since having kidney failure and dialysis.  I have no sex drive and my johnson doesn't work any more.  - IE no erection, no ejaculation, no nothing.  This has affected my relationship with my wife as you ca   )n guess.  A side note - my wife has been sleeping in our spare room, because 1) the noise the cycller made and 2) my tossing and turning was kicking her all night long.    Grumpy  (and you ask why I'm grumpy)   :rofl;
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Make me the person my dog thinks I am
obsidianom
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« Reply #53 on: October 30, 2013, 08:31:23 AM »
Quote from: Grumpy-1 on October 30, 2013, 08:09:25 AM
obsidianom  mentioned sex in his comments.  I hadn't thought much about that, but since having kidney failure and dialysis.  I have no sex drive and my johnson doesn't work any more.  - IE no erection, no ejaculation, no nothing.  This has affected my relationship with my wife as you ca   )n guess.  A side note - my wife has been sleeping in our spare room, because 1) the noise the cycller made and 2) my tossing and turning was kicking her all night long.    Grumpy  (and you ask why I'm grumpy)   :rofl;
I would suggest an endocrine censult to check your hormones. Kidney disease can effect the hormones a lot. That is fixable at least.
In addition there are meds for the issues you mentioned that work. there is no reason to give up sex. Most things can be fixed.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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