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Author Topic: missing HD days at hospital  (Read 2509 times)
charmed
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« on: July 17, 2013, 08:21:50 AM »

So i know this is not good but have had enough so wanted to know if anyone has tried missing days and how you feel and what you do. I go sauna and shift the fluid and try to keep to the diet as much as possible. So its Wednesday and my HD day but I am not going. Feeling great.
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Deanne
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« Reply #1 on: July 17, 2013, 08:35:34 AM »

Why aren't you going?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
monsterman
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Impossible Is Nothing

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« Reply #2 on: July 17, 2013, 09:45:24 AM »

So i know this is not good but have had enough so wanted to know if anyone has tried missing days and how you feel and what you do. I go sauna and shift the fluid and try to keep to the diet as much as possible. So its Wednesday and my HD day but I am not going. Feeling great.

First off I hope you are feeling ok, not sure why you aren't going in but IMO everyone is different our bodies are different. Some people could go days, some cant. I know there are a few patients at my Unit who only come twice a week and seem to be ok. Then there is a guy who puts on 4+ kilos almost every day by the time he comes in he has 6 kilos or more on and they try their best to get as much of it off as they can. Its not a great idea but I guess there are circumstances where you could miss a day or so but I am sure in the long run you are doing some sort of damage.. I've gotten infiltrated on Monday, opted not to try and get hooked up the same day, also decided not to go in the following day so by Wednesday I wasn't feeling all that great. You could feel crappy due to fluid overload or given enough time or depending on the person your blood could be full of toxins which would also have you feeling like crap. I remember how awful I felt prior to going on Dialysis and it sucked. I could not catch my breath, felt so tired and lousy I don't ever want to feel that way again..
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Chris
jeannea
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« Reply #3 on: July 19, 2013, 10:17:24 AM »

Going to a sauna is in no way equivalent to going to dialysis. Personally I wouldn't want to risk skipping.
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amanda100wilson
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« Reply #4 on: July 19, 2013, 10:19:33 AM »

Sauna may remove sodium and water, but it dies not remove other toxins.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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