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Author Topic: Transplant Industry Hypocrisy  (Read 34646 times)
Rerun
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Going through life tied to a chair!

« Reply #100 on: October 21, 2013, 02:07:20 PM »

Rerun, I always wonder about people who do that. How would he know how much of the root to take? And does he actually eat root or get some kind of pill for it? I never know if those kind of pills actually have in them what they say. I really wonder about people who drink those weird teas to get their supplements. They look so disgusting.

So many drugs are from plants, roots, funguses. I'd rather skip the "natural" route and take the pharmaceutical.

I don't know.  He really knows a lot about Chinese Medicine and he got on that subject one day and he goes on and on and on so I must have tuned him out. Maybe it was red yeast rice and not a root? If you go to Mother's Cupboard or any of those natural supplement stores they have something for what ails you.  He finally got rid of my wart on my finger that had been there for 2 years.  Tee Tree oil, lemon oil and something else.....

I only take Olive Leaf (liquid) just a sip everyother day.  I work with first graders and it is an anti-fungus antiviral supplement.  Otherwise, I don't mess with supplements because they may build up and become toxic.  Run it by your Nephrologist first.

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Dman73
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« Reply #101 on: October 21, 2013, 08:02:57 PM »

I take Natures Way standardized green tea capsules (2, 3 X day) giving me the equivalent of 9 cups of green tea. Add that to the one cup of normal green tea and I get a total of 10 cups/ day.

I have been doing this for about 4 years for the benefits of antioxidant properties and the ability to untangle amyloid placque buildup in the tissue of DRA (dialysis related amyloidosis) involved in creating carpal tunnel in long term dialysis patients.

There is also the benefit of lowering the bad cholesterol and reversing the damage of left ventricular hypertrophy in D patients
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Hemodoc
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« Reply #102 on: October 21, 2013, 09:00:46 PM »

Rerun, I always wonder about people who do that. How would he know how much of the root to take? And does he actually eat root or get some kind of pill for it? I never know if those kind of pills actually have in them what they say. I really wonder about people who drink those weird teas to get their supplements. They look so disgusting.

So many drugs are from plants, roots, funguses. I'd rather skip the "natural" route and take the pharmaceutical.

I don't know.  He really knows a lot about Chinese Medicine and he got on that subject one day and he goes on and on and on so I must have tuned him out. Maybe it was red yeast rice and not a root? If you go to Mother's Cupboard or any of those natural supplement stores they have something for what ails you.  He finally got rid of my wart on my finger that had been there for 2 years.  Tee Tree oil, lemon oil and something else.....

I only take Olive Leaf (liquid) just a sip everyother day.  I work with first graders and it is an anti-fungus antiviral supplement.  Otherwise, I don't mess with supplements because they may build up and become toxic.  Run it by your Nephrologist first.

Rerun is correct, the supplement industry is NOT regulated by the FDA so there is little effort to actually give people what they say is in their supplements. In addition, many "herbal" remedies can have severe toxic reactions. Better to avoid the supplements with rare exceptions.
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
Zach
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« Reply #103 on: October 22, 2013, 02:52:33 AM »

http://triblive.com/news/allegheny/4756502-74/organ-nonprofit-float#axzz2iOObgYXS

Taxpayers help pay for organ donor groups' parties, Rose Parade expenses

Saturday, October 19, 2013 10:30 p.m.

Executives at one nonprofit organ procurement organization charter a plane to travel fewer than 150 miles for a training session on leadership.
Another nonprofit pays out thousands of dollars a year for a Rose Bowl parade float, though auditors determine it's not a proper expense.
Yet another nonprofit honors its CEO with a $19,000 retirement party.

Each time, the organ procurement organizations bill part of the cost to taxpayers through Medicare.

If not for that, the public might never know how groups that make millions from recovering organs and tissues for transplantation sometimes operate behind the scenes. Federal law prohibits donors and their surviving families from receiving a penny.

Clearly, Medicare money cannot go for Rose Bowl tickets, lavish parties or golf tournaments, said Lloyd Jordan Jr., CEO of Carolina Donor Services in Greenville, N.C.
“For a cost to be allowable, it should be reasonable,” said Jordan, a certified public accountant and former Medicare auditor. “The provider should ... make sure that the cost doesn't exceed what a prudent and cost-conscious buyer would do.”

The Tribune-Review found multiple incidents of improper and undocumented spending by some of the nation's 58 organ procurement organizations. The newspaper reviewed 2011 federal tax filings and audits by the Department of Health and Human Services' Office of Inspector General since 2010.

“It's every taxpayers' dollar,” said Kent Holloway, president-elect of the Association of Organ Procurement Organizations, a national trade group. “The litmus test is to sort of look back in and say, ‘Would this feel right to me if I were looking in from the outside?' ”

The Trib found:
• The California Transplant Donor Network in Oakland, Calif., spent more than $167,000 that was improper or poorly documented as taxpayers' expenses, according to federal auditors. In 2007, the nonprofit threw a retirement party with 300 guests for former CEO Phyllis Weber. The organization billed $9,600, or about half of the cost, to taxpayers.

Weber's successor, CEO Cindy Siljestrom, said that seemed reasonable “based on the length of service and the role this executive played in founding this organization.”
Separately, the group spent $12,000 on banquet charges for a staff meeting in a Berkeley, Calif., hotel and $10,500 to sponsor a minor league baseball team. It paid $5,000 to sponsor a jazz show gala with gourmet food and exotic drinks.

Taxpayers shouldn't have paid for alcohol, Siljestrom said, and her group could have better documented expenses. But she defended spending on community outreach.
• When five board members of Life Connection of Ohio needed to get from their headquarters in suburban Toledo to Dayton, 146 miles away, the group paid $3,900 for a private plane and billed $2,100 to taxpayers.

The officials made the trip to meet with a lawyer about board responsibilities and training, spokeswoman Kara Steele told the Trib.
Having offices and board members in both cities makes “logistics for meetings challenging,” she said.

Life Connection employed family members of its executives, 2011 tax records show. The daughter of CEO Michael Phillips made $91,654, and the daughter-in-law of paid board Chairman Kenneth Kropp received $47,000 — slightly less than he did.

Life Connection does not allow nepotism, Steele said. One relative cannot directly supervise another, and anyone hired must be the best candidate for the position, she said. Phillips' daughter no longer works for the nonprofit.

• OneLegacy, the organ procurer in Los Angeles, spent more than $500,000 on unallowable or poorly documented items, a federal audit found.
Even after the inspector general faulted the nonprofit for spending money on Rose Bowl festivities, the group continued to submit a portion of its $75,000 per year float-sponsorship expenses to Medicare, CEO Thomas Mone said.

OneLegacy in 2006 spent $327,000 on the bowl game and parade, including float design and framework, football tickets, hotel rooms, limousines and flowers. Of that, $150,000 was improper, auditors said in a 2010 report, leading to a Medicare overpayment of $85,000.

Mone said the Rose Parade float generates TV, radio and newspaper stories worth more than $500,000, resulting in increased donations and donor registration rates.
After the audit, OneLegacy established a foundation so it could use private donations to pay for most of the float-related costs. Other procurers contribute to the float costs but use private money.

The Center for Organ Recovery & Education, the O'Hara-based organ procurer for Western Pennsylvania, most of West Virginia and a part of New York, paid about $5,000 to include an organ donor's face on the Rose Bowl float — but it used donations, CEO Susan Stuart said.

“We stand by our belief that the (float) is a highly effective donation education program and that it is an allowable cost,” Mone said.
The inspector general disagreed about the Rose Bowl costs, saying they exceeded what a “cost-conscious buyer would pay for public education.”

The Centers for Medicare & Medicaid Services refused to count subsequent sponsorships as an allowable expense for three years. The nonprofit has appealed.
• OneLegacy spent $32,000 on a three-day, beachfront retreat and $150,000 in credit card bills, including $8,400 at a New Orleans hotel. The nonprofit could not say where $26,000 went.

Mone recalled that the 2006 retreat was held at Montage, a five-star resort in Laguna Beach, Calif., where every room has an ocean view. It was “probably the only hotel large enough, in that southern part of our region,” he told the Trib, adding that OneLegacy claimed only allowable expenses as Medicare costs.
Auditors, however, said the nonprofit did not document the need for a retreat or demonstrate that the costs were reasonable.

“Conducting these retreats at locations that are conducive to uninterrupted education and discourse has helped to make these gatherings productive,” Mone said.
Mone said OneLegacy produced receipts for the credit card bills and the New Orleans tab paid to host officials from a dozen Southern California hospitals at a National Learning Congress.

Sponsorships for dinners and golf outings, he added, go through the foundation unless they are directly related to donor education.
Officials at the agency that oversees Medicare spending are tight-lipped about their oversight of organ procurement nonprofits. An agency spokesman initially declined to answer questions, then was unavailable because of the government shutdown.

Nonprofit administrators said the agency traditionally has paid little attention to them because they represent a small part of overall Medicare spending.
Organ donation can be a tough message to sell to the public, said Dr. Mark Fox, who serves on the ethics committee of the United Network for Organ Sharing, a national nonprofit that oversees organ allocation. A heavily watched event such as the Rose Parade, could generate awareness about donation and prompt people to become donors.

“Trying to find creative ways to bring message to an audience is challenging,” Fox said. “If you get three organ donors from watching the Rose Parade, that's a win all the way around. What on the surface might look like lavish spending could be creative genius.”
At the same time, the cost of losing donors because of spending missteps is high, said Stuart, CORE's CEO and president of the Association of Organ Procurement Organizations.

“If we lose the trust,” she said, “more people will die.”
Andrew Conte and Luis Fábregas are Trib Total Media staff writers. Reach Conte at 412-320-7835 or andrewconte@tribweb.com. Reach Fábregas at 412-320-7998 or lfabregas@tribweb.com.
#  #  #
« Last Edit: October 22, 2013, 02:54:02 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!

« Reply #104 on: October 22, 2013, 08:32:32 AM »

Sickening!

              :puke;

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Joe
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« Reply #105 on: October 22, 2013, 10:08:37 AM »

It appears that we are on the wrong side of the food chain,
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NDXUFan
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« Reply #106 on: October 23, 2013, 08:54:55 AM »

http://triblive.com/news/allegheny/4756502-74/organ-nonprofit-float#axzz2iOObgYXS

Taxpayers help pay for organ donor groups' parties, Rose Parade expenses

Saturday, October 19, 2013 10:30 p.m.

Executives at one nonprofit organ procurement organization charter a plane to travel fewer than 150 miles for a training session on leadership.
Another nonprofit pays out thousands of dollars a year for a Rose Bowl parade float, though auditors determine it's not a proper expense.
Yet another nonprofit honors its CEO with a $19,000 retirement party.

Each time, the organ procurement organizations bill part of the cost to taxpayers through Medicare.

If not for that, the public might never know how groups that make millions from recovering organs and tissues for transplantation sometimes operate behind the scenes. Federal law prohibits donors and their surviving families from receiving a penny.

Clearly, Medicare money cannot go for Rose Bowl tickets, lavish parties or golf tournaments, said Lloyd Jordan Jr., CEO of Carolina Donor Services in Greenville, N.C.
“For a cost to be allowable, it should be reasonable,” said Jordan, a certified public accountant and former Medicare auditor. “The provider should ... make sure that the cost doesn't exceed what a prudent and cost-conscious buyer would do.”

The Tribune-Review found multiple incidents of improper and undocumented spending by some of the nation's 58 organ procurement organizations. The newspaper reviewed 2011 federal tax filings and audits by the Department of Health and Human Services' Office of Inspector General since 2010.

“It's every taxpayers' dollar,” said Kent Holloway, president-elect of the Association of Organ Procurement Organizations, a national trade group. “The litmus test is to sort of look back in and say, ‘Would this feel right to me if I were looking in from the outside?' ”

The Trib found:
• The California Transplant Donor Network in Oakland, Calif., spent more than $167,000 that was improper or poorly documented as taxpayers' expenses, according to federal auditors. In 2007, the nonprofit threw a retirement party with 300 guests for former CEO Phyllis Weber. The organization billed $9,600, or about half of the cost, to taxpayers.

Weber's successor, CEO Cindy Siljestrom, said that seemed reasonable “based on the length of service and the role this executive played in founding this organization.”
Separately, the group spent $12,000 on banquet charges for a staff meeting in a Berkeley, Calif., hotel and $10,500 to sponsor a minor league baseball team. It paid $5,000 to sponsor a jazz show gala with gourmet food and exotic drinks.

Taxpayers shouldn't have paid for alcohol, Siljestrom said, and her group could have better documented expenses. But she defended spending on community outreach.
• When five board members of Life Connection of Ohio needed to get from their headquarters in suburban Toledo to Dayton, 146 miles away, the group paid $3,900 for a private plane and billed $2,100 to taxpayers.

The officials made the trip to meet with a lawyer about board responsibilities and training, spokeswoman Kara Steele told the Trib.
Having offices and board members in both cities makes “logistics for meetings challenging,” she said.

Life Connection employed family members of its executives, 2011 tax records show. The daughter of CEO Michael Phillips made $91,654, and the daughter-in-law of paid board Chairman Kenneth Kropp received $47,000 — slightly less than he did.

Life Connection does not allow nepotism, Steele said. One relative cannot directly supervise another, and anyone hired must be the best candidate for the position, she said. Phillips' daughter no longer works for the nonprofit.

• OneLegacy, the organ procurer in Los Angeles, spent more than $500,000 on unallowable or poorly documented items, a federal audit found.
Even after the inspector general faulted the nonprofit for spending money on Rose Bowl festivities, the group continued to submit a portion of its $75,000 per year float-sponsorship expenses to Medicare, CEO Thomas Mone said.

OneLegacy in 2006 spent $327,000 on the bowl game and parade, including float design and framework, football tickets, hotel rooms, limousines and flowers. Of that, $150,000 was improper, auditors said in a 2010 report, leading to a Medicare overpayment of $85,000.

Mone said the Rose Parade float generates TV, radio and newspaper stories worth more than $500,000, resulting in increased donations and donor registration rates.
After the audit, OneLegacy established a foundation so it could use private donations to pay for most of the float-related costs. Other procurers contribute to the float costs but use private money.

The Center for Organ Recovery & Education, the O'Hara-based organ procurer for Western Pennsylvania, most of West Virginia and a part of New York, paid about $5,000 to include an organ donor's face on the Rose Bowl float — but it used donations, CEO Susan Stuart said.

“We stand by our belief that the (float) is a highly effective donation education program and that it is an allowable cost,” Mone said.
The inspector general disagreed about the Rose Bowl costs, saying they exceeded what a “cost-conscious buyer would pay for public education.”

The Centers for Medicare & Medicaid Services refused to count subsequent sponsorships as an allowable expense for three years. The nonprofit has appealed.
• OneLegacy spent $32,000 on a three-day, beachfront retreat and $150,000 in credit card bills, including $8,400 at a New Orleans hotel. The nonprofit could not say where $26,000 went.

Mone recalled that the 2006 retreat was held at Montage, a five-star resort in Laguna Beach, Calif., where every room has an ocean view. It was “probably the only hotel large enough, in that southern part of our region,” he told the Trib, adding that OneLegacy claimed only allowable expenses as Medicare costs.
Auditors, however, said the nonprofit did not document the need for a retreat or demonstrate that the costs were reasonable.

“Conducting these retreats at locations that are conducive to uninterrupted education and discourse has helped to make these gatherings productive,” Mone said.
Mone said OneLegacy produced receipts for the credit card bills and the New Orleans tab paid to host officials from a dozen Southern California hospitals at a National Learning Congress.

Sponsorships for dinners and golf outings, he added, go through the foundation unless they are directly related to donor education.
Officials at the agency that oversees Medicare spending are tight-lipped about their oversight of organ procurement nonprofits. An agency spokesman initially declined to answer questions, then was unavailable because of the government shutdown.

Nonprofit administrators said the agency traditionally has paid little attention to them because they represent a small part of overall Medicare spending.
Organ donation can be a tough message to sell to the public, said Dr. Mark Fox, who serves on the ethics committee of the United Network for Organ Sharing, a national nonprofit that oversees organ allocation. A heavily watched event such as the Rose Parade, could generate awareness about donation and prompt people to become donors.

“Trying to find creative ways to bring message to an audience is challenging,” Fox said. “If you get three organ donors from watching the Rose Parade, that's a win all the way around. What on the surface might look like lavish spending could be creative genius.”
At the same time, the cost of losing donors because of spending missteps is high, said Stuart, CORE's CEO and president of the Association of Organ Procurement Organizations.

“If we lose the trust,” she said, “more people will die.”
Andrew Conte and Luis Fábregas are Trib Total Media staff writers. Reach Conte at 412-320-7835 or andrewconte@tribweb.com. Reach Fábregas at 412-320-7998 or lfabregas@tribweb.com.
#  #  #

ND:

This from the very same people who claim donors should not be paid, what a joke, LOLOLOL!
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