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Author Topic: Transplant Industry Hypocrisy  (Read 34650 times)
NDXUFan
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« on: July 11, 2013, 10:38:02 PM »

I am curious, should donors be paid?  In a nutshell, in a kidney transplant, donors assume the biggest risk of anyone in the transplant process.  Yet, the donor is not compensated for taking that large risk.  Morever, everyone else in the transplant chain is very well compensated, to say the least.  Is it hypocrisy for the transplant industry to act as a financial commodity, while forbidding the donor who is taking a major risk to do the same? 
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Whamo
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« Reply #1 on: July 12, 2013, 11:28:39 AM »

Sure it is.  They feed the greed.
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jeannea
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« Reply #2 on: July 12, 2013, 03:10:33 PM »

No. Just because society wants us to pander to our most base instincts and reward everyone's greed doesn't mean we have to.
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MooseMom
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« Reply #3 on: July 12, 2013, 03:26:19 PM »

NDXUFan, how do you define "the transplant industry"?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jeannea
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« Reply #4 on: July 12, 2013, 06:51:14 PM »

Another thought. The majority of donors are not assuming any risk. They're already dead. MooseMom has a good question about who is the transplant industry. I think that well trained experienced doctors deserve a decent income. Most of them are not rich just better off than some of us. The good ones end up putting in a lot of hours for that income. The nurses are paid according to how that hospital pays nurses with their level of education and experience. Social workers and nutritionists are almost never well paid. The Gift of Life associations are non-profit with only a few employees.

Most living donors do it because they really want to. They don't expect compensation.
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Zach
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« Reply #5 on: July 12, 2013, 08:04:47 PM »

While the organizations which coordinate the cadaver organ donation, also known as Organ Procurement Organizations (OPO) are usually not-for-profit, public charities, their leadership receives pretty good salaries.

In Los Angeles, it's OneLegacy.

Annual salaries:
Thomas Mone, CEO & EVP:  $631,964.
Chowdary Garimella, COO & VP Operations:  $487,087.
Davis Grafty, CFO & VP Finance: $290,498.

The organization has a fund balance (profit over time) of over $30,000,000.
Investment income:  $363,682.

http://www.guidestar.org/FinDocuments/2011/953/138/2011-953138799-08aab7de-9.pdf
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jeannea
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« Reply #6 on: July 13, 2013, 04:42:23 PM »

I'm not sure where the hypocrisy is. The officers are being paid market value for their work. I can't tell how long it took to have that much of a fund balance. Do you want them to give some cash to everyone on dialysis in the greater Los Angeles area? There must be thousands of patients.
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ChrisEtc
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« Reply #7 on: July 14, 2013, 12:11:39 AM »

I've heard Iran pays for kidney donation.  It's a lot cheaper than paying for years of dialysis.
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okarol
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« Reply #8 on: July 14, 2013, 12:17:12 AM »

Thanks for that info Zach, i had not seen it before.

NDXUFan - you may want to search a little here on the forum - paying for kidneys has been discussed quite a bit in other threads.  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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KarenInWA
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« Reply #9 on: July 14, 2013, 08:40:27 PM »

I'm not sure where the hypocrisy is. The officers are being paid market value for their work. I can't tell how long it took to have that much of a fund balance. Do you want them to give some cash to everyone on dialysis in the greater Los Angeles area? There must be thousands of patients.

I don't think giving cash to dialysis patients is going to help increase the pool of donors - living or deceased. I'm not sure what point you were trying to make there. However, I see nothing wrong with compensating a donor for their time - like Australia's health system is now doing. I also don't see a problem with some of that UNOS money going to pay for deceased donor's funeral services. To me, that is not greed, but a fair compensation for a major gift/event. I would only support it if Medicare and/or private insurance covered that payment. I do not think it should be up to the individual organ transplant recipient.

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Simon Dog
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« Reply #10 on: July 14, 2013, 11:36:16 PM »

The hipocrisy is claiming that paying donors would be "unfair" since not everyone could afford to pay a donor, however, the wallet biopsy is the most critical component of the workup process.
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BattleScars
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« Reply #11 on: July 15, 2013, 12:53:47 PM »

There's a real easy solution to solve this problem. Donors should be compensated, especially when they have to take time off work to heal and the pain they go through, not to mention the risks of surgery. The ethical issue is only kidney patients that have money would have an unfair advantage. How you get around that is have our government pay donors. Set a flat fee for their kidney, say $50,000. Keep patients on a list and when a donor clears all the medical hurdles and donates his/her kidney they will receive the check. Everyone wins because that list is going to be a lot shorter and the government will save millions in the long run because dialysis is much more costly than kidney transplantation. Buying and selling organs privately will still be illegal. I mean if we can sell our plasma and blood then why can't a person sell his or her kidney?? Thousands of lives will be saved.
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Zach
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« Reply #12 on: July 29, 2013, 11:50:01 AM »

.
« Last Edit: July 29, 2013, 11:54:43 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Zach
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"Still crazy after all these years."

« Reply #13 on: July 29, 2013, 11:51:18 AM »

While the organizations which coordinate the cadaver organ donation, also known as Organ Procurement Organizations (OPO) are usually not-for-profit, public charities, their leadership receives pretty good salaries.

In Los Angeles, it's OneLegacy.

Annual salaries:
Thomas Mone, CEO & EVP:  $631,964.
Chowdary Garimella, COO & VP Operations:  $487,087.
Davis Grafty, CFO & VP Finance: $290,498.

The organization has a fund balance (profit over time) of over $30,000,000.
Investment income:  $363,682.

http://www.guidestar.org/FinDocuments/2011/953/138/2011-953138799-08aab7de-9.pdf

I'm not sure where the hypocrisy is. The officers are being paid market value for their work. I can't tell how long it took to have that much of a fund balance. Do you want them to give some cash to everyone on dialysis in the greater Los Angeles area? There must be thousands of patients.


Think of all the research related to organ transplant 30 million dollars can go in to?
How about a better public education program to increase donations?

And this is just one of 58 OPOs throughout the U.S. and its territories.
How much money are they hoarding?

I'm not sure this is a perfect example of "regulatory capture" but it is wrong in any case.

 8)
« Last Edit: July 29, 2013, 04:02:47 PM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Simon Dog
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« Reply #14 on: August 07, 2013, 08:00:37 AM »

Quote
I don't think giving cash to dialysis patients is going to help increase the pool of donors - living or deceased.

Assuming you meant "paying cash to donors, living or dead", your statement denies the realities of supply and demand.
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Rerun
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« Reply #15 on: August 07, 2013, 02:50:07 PM »

Yes!  Donors should be paid.

 My  :twocents; for the hundredth time.

      :waving;
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Simon Dog
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« Reply #16 on: September 18, 2013, 08:02:22 AM »

There are really two separate questions that are getting mexed together:

1. Should donors be paid?

2. Should payment be "market based", allowing those who can pay preferential access to organs, or should we continue with a variety of "to each according to his need, from each according to his ability".
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Dman73
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« Reply #17 on: September 18, 2013, 08:34:27 AM »

First and foremost we need to start to provide lifelong coverage for immunosuppressive therapy after kidney transplant because it is a waste loosing a kidney after the 3 year cutoff date creating additional expense for medicare and is dangerous for the patient. 
« Last Edit: September 18, 2013, 08:36:16 AM by Dman73 » Logged

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MooseMom
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« Reply #18 on: September 18, 2013, 08:35:25 AM »

I wonder just how many kidney patients would be able to pay for a new kidney.  ESRD can ruin you financially.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #19 on: September 18, 2013, 08:36:30 AM »

We need to start to provide lifelong coverage for immunosuppressive therapy after kidney transplant because it is a waste loosing a kidney after the 3 year cutoff date creating additional expense for medicare and is dangerous for the patient.

As you probably know, several congresspeople are working on that bill.  I don't know where it stands at the moment, though.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
KarenInWA
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« Reply #20 on: September 18, 2013, 09:37:05 AM »

I wonder just how many kidney patients would be able to pay for a new kidney.  ESRD can ruin you financially.

I still say have it be a line item on the bill that insurance and/or medicare pays. As for the amount, that needs to be negotiated, but once it's set, it's set. The same, across the board, no matter who/what is paying - as long as it's a 3rd party.

KarenInWA
Logged

1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
NDXUFan
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« Reply #21 on: September 20, 2013, 09:12:12 PM »

NDXUFan, how do you define "the transplant industry"?

Individuals in the medical field who derive a financial gain from transplants.
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NDXUFan
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« Reply #22 on: September 20, 2013, 09:14:08 PM »

I'm not sure where the hypocrisy is. The officers are being paid market value for their work. I can't tell how long it took to have that much of a fund balance. Do you want them to give some cash to everyone on dialysis in the greater Los Angeles area? There must be thousands of patients.

Market value means is what the market thinks they are worth to the group or organization.
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NDXUFan
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« Reply #23 on: September 20, 2013, 09:16:10 PM »

I'm not sure where the hypocrisy is. The officers are being paid market value for their work. I can't tell how long it took to have that much of a fund balance. Do you want them to give some cash to everyone on dialysis in the greater Los Angeles area? There must be thousands of patients.

I don't think giving cash to dialysis patients is going to help increase the pool of donors - living or deceased. I'm not sure what point you were trying to make there. However, I see nothing wrong with compensating a donor for their time - like Australia's health system is now doing. I also don't see a problem with some of that UNOS money going to pay for deceased donor's funeral services. To me, that is not greed, but a fair compensation for a major gift/event. I would only support it if Medicare and/or private insurance covered that payment. I do not think it should be up to the individual organ transplant recipient.


So, you are asserting that third party decision makers should be making decisions that will not effective their basic existence in life?
KarenInWA
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NDXUFan
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« Reply #24 on: September 20, 2013, 09:16:59 PM »

The hipocrisy is claiming that paying donors would be "unfair" since not everyone could afford to pay a donor, however, the wallet biopsy is the most critical component of the workup process.

Exactly.
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