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Author Topic: Home after surgery, but pain meds causing some trouble with #2? Sorry for TMI!  (Read 4046 times)
Angiepkd
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« on: July 05, 2013, 10:26:51 AM »
Hi all!  I am home recovering from my nephrectomy, liver cyst removal and hernia repair.  I am feeling pretty good, but haven't been able to use the bathroom since the surgery last Friday.  I know this is probably more than you wanted to know lol!  They gave me senna to take twice a day, but so far....nothing.  Is there anything else I can take that is safe for someone on dialysis?  I am getting really worried about the situation, and desperate to "get things moving".  Any advice would be greatly appreciated!  Thanks!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
boswife
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us and fam easter 2013
« Reply #1 on: July 05, 2013, 10:41:07 AM »
Great to hear from you and glad your recovering well.  whew!! what a good thing to get 'behind' you!!  Glad its over for sure.  Now, as for the other matter... do you know if you personally can do an enema? or supposotory type thing?  Every now and again, when bo's taking vicodin type med, we end up doing an enema and it works like a charm.  Besides lack of sleep, and this 'issue' are two things you guys (well any of us) can surly do without! hope you get your answer :) and good to hear from you!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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« Reply #2 on: July 05, 2013, 10:48:58 AM »
I think someone should invent a new pill = 1/2 vicodin with 1/2 stool softener!
The best thing to do is take stool softener, drink lots of water and drink prune juice.
Of course, on dialysis, it's not that easy.
I hope it all works out soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
noahvale
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« Reply #3 on: July 05, 2013, 11:10:50 AM »
^
« Last Edit: September 19, 2015, 11:55:40 PM by noahvale » Logged
Joe
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« Reply #4 on: July 05, 2013, 11:39:56 AM »
A mineral oil enema is ok for us, you also could take Mira lax, it's the laxative I take doing PD to keep things moving. Getting constipated taking pain meds isn't unusual. Good luck!
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monsterman
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« Reply #5 on: July 05, 2013, 11:48:14 AM »
PRUNES "pitted" from your local grocery store, don't ask me how I now  :o
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Chris
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« Reply #6 on: July 05, 2013, 04:27:55 PM »
Quote from: Joe on July 05, 2013, 11:39:56 AM
A mineral oil enema is ok for us, you also could take Mira lax, it's the laxative I take doing PD to keep things moving. Getting constipated taking pain meds isn't unusual. Good luck!


Drugs.com warns that you should not take mineral oil if already taking Colace unless your doctor tells you to.
As someone above stated, please contact your nephrologist before going off and trying any of the suggestions offered here.

Glad you're healing quickly.  That was a big time surgery.
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
PatDowns
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Celebrating 60th B'Day. 12/26/15
« Reply #7 on: July 05, 2013, 04:48:06 PM »
Quote from: monsterman on July 05, 2013, 11:48:14 AM
PRUNES "pitted" from your local grocery store, don't ask me how I now  :o

I hope you are on peritoneal dialysis or daily NxStage because prunes are one of the highest potassium (and magnesium, also on our watch list) content fruits around.  Definitely NOT recommended for those on conventional hemo, especially without any residual kidney function.  The original poster just had a double nephrectomy!

1 cup pitted prunes: Potassium 1274mg / Magnesium 71.3mg

6 oz. glass prune juice: Potassium 528 mg.


http://nutritiondata.self.com/facts/fruits-and-fruit-juices/2043/2
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
adairpete
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Me and Karl
« Reply #8 on: July 05, 2013, 08:41:29 PM »
When I had my PD catheter surgery my PD nurse told me to get a bottle of stool softeners (Dulcolax) and to take those for as long as I was taking pain killers.  Anasthesia and pain killers sedate your bowels as well as everything else, so it's important to keep things moving.  I would be nervous with stronger laxatives like Miralax as those can really throw off your hydration as they cause your bowels to not absorb fluid normally and while they're effective, they may cause dehydration and electrolyte imbalances. 
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
Angiepkd
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« Reply #9 on: July 06, 2013, 07:15:31 AM »
Thank you all for the responses!  I tried several of the methods deemed safe for me, but no luck.  I guess I will call the surgeon on Monday.  I am hoping they didn't damage my bowels while removing my giant kidneys.  It would be just my luck, lately lol!  I am also not going to take any more pain meds, if I can manage it.  We will see how that works.  Thanks again for taking the time to help!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
AnnieB
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« Reply #10 on: July 06, 2013, 08:52:02 AM »
You have my sympathy! I ran into that same problem right after my fistula surgery last month, and boy was I miserable. I tried Dulcolax and Metamucil, with no results. Finally I asked the pharmacist and he suggested I take Miralax, and that got things working again. I don't know about taking that while on PD, but couldn't you ask your nurse if that would be safe for you to take?   :flower;

Anne
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Wildrose
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« Reply #11 on: July 06, 2013, 07:35:18 PM »
PRUNES prunes and more prunes!!! Prune juice should work too.
I have had this issue with all my hospital stays and surgeries (I think the count is up to five, or maybe its six in the last 15 months). Matter of fact I came home from the hospital one time not realizing I hadn't had a bowel movement in 3 days, went a few more days and ended up getting so sick I was throwing up. Ate three prunes, yes... just three, and it took quick work of the problem!
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
lmunchkin
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"There Is No Place Like Home!"
« Reply #12 on: July 07, 2013, 03:39:45 PM »
So glad you got through this major surgery Angie.  You are one tough ombrey!   I would definately ask Doc about what is recommended for constipation.  Better to be safe than sorry!

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
kit78
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« Reply #13 on: July 14, 2013, 09:41:53 AM »
NEVER do prune juice!  Big no no...   MIRALAX with Apple juice is ok per Kidney doc.  I just had that issue last week which in itself, was also causing my potassium to stay elevated. I was in the hosp. on pain meds and it always happens.  There really is no other alternative allowed while on Dialysis.  After transplant, Papaya is wonderful for that. 

Feel better soon...
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
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