raidym
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« on: June 12, 2013, 07:27:16 PM » |
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I got the call at 1.30am Irish time. Have had some tests done just letting you all know cause won't be able in a few hours really don't know how to feel. Talk soon hopefully I'll post as soon as i can.
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"Laugh or you might cry"
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boswife
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« Reply #1 on: June 12, 2013, 07:30:52 PM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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MaryJoe
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« Reply #2 on: June 12, 2013, 07:49:26 PM » |
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 Oh my gosh! This is wonderful news! Hope all the test results show that this is your kidney. Will be thinking about you and sending positive vibes your way. 
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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Rerun
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« Reply #3 on: June 12, 2013, 10:23:42 PM » |
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Yippee! I just pray everyting goes well and it starts working for you right away. Blessings to you and your new kidney. Prayers for the donor's family.... that is a hard one. Take care and drink a glass of milk for me!!!  |
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cdwbrooklyn
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Positive Thoughts equal Positive Energy
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« Reply #6 on: June 13, 2013, 11:46:36 AM » |
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Great News!!!! Praying that everything goes as planned. Keep us posted as soon as you are feeling good.
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Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.
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Poppylicious
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« Reply #7 on: June 14, 2013, 05:54:13 AM » |
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I got the call at 1.30am Irish time. Have had some tests done just letting you all know cause won't be able in a few hours really don't know how to feel. Talk soon hopefully I'll post as soon as i can.
*huggles* |
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raidym
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« Reply #8 on: June 14, 2013, 09:28:51 AM » |
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Hey guys I've resurfaced and everthing went. Great perfect is th wordbthe doctor used. I'm feeling a bit dore but othrrwise can't believe how good I'm feelin. Had a wash a little while ago got rid of the horrible gowm and just had some toast and tea it was heaven. Thank you for your nice messages.x
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"Laugh or you might cry"
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boswife
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« Reply #9 on: June 14, 2013, 09:32:40 AM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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Darthvadar
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« Reply #10 on: June 14, 2013, 11:51:14 AM » |
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Congratulations!...
I'm in Ireland, too....
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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Angiepkd
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« Reply #11 on: June 14, 2013, 06:43:56 PM » |
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Congratulations! Glad you are doing well and feeling so good! Keep us posted!  |
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol! So far we are doing great!
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raidym
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« Reply #12 on: June 15, 2013, 12:15:12 AM » |
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I've been trying to explain to my sisters how I'm feeling and its the hardest thing ever to express it. Firstly I can't believe how instantly you start to feel better. Then all of a sudden your head begins to clear and you didn't realise it was foggy in the first place I mentioned this to the doc too and presumed dialysis just took it out of you.but she explained thats the way kidney diseaseake you feel. It still feels a little bit like a dream. And definately feels tome like a lotto win..Thank you all for your kind messages  |
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"Laugh or you might cry"
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MaryJoe
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« Reply #13 on: June 15, 2013, 04:37:29 AM » |
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Wow! It sounds like a Lotto win too! I'm so happy everything is going well for you. I relate to your comment about getting a wash, it's amazing how much better you feel after surgery when you get clean and have something to eat. Tea and toast is my primary comfort food, it's what my Mom always gave me when I was ill as a child. Some things stick with us forever. Have they got you doing laps around the hallway yet? Keep us posted on your progress. Have a big chunk of cheese for me when you're able - it doesn't matter what kind!  |
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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lainiepop
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« Reply #14 on: June 15, 2013, 10:29:23 AM » |
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Yay! Congrats on your new Kidney, So glad its all going well  |
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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kit78
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« Reply #15 on: June 15, 2013, 11:33:25 AM » |
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December - Back on Transplant list
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jeannea
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« Reply #16 on: June 15, 2013, 12:05:09 PM » |
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Glad to hear everything is going well! You really do feel better right away even with the surgery pain. Keep healing.
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raidym
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« Reply #17 on: June 17, 2013, 11:40:57 AM » |
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Hey everyone up and about the past few days. Feeling tired and cranky today didn't get much sleep last night the mind wouldn't. switch off. My creatnin is 47 today on the better side. There trying to get the potassium and phosphate up they crashed. Did you ever hear the like I was always in trouble for them being high. There doing all the right things to get them up.I noticed my fistula was quiet and the doctor checked it out its gone. So lets hope I never need another one..Thats all for now..
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"Laugh or you might cry"
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jeannea
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« Reply #18 on: June 17, 2013, 01:23:29 PM » |
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The hardest part is switching your mind. Now you have to drink enough, you need to eat potassium and phosphorus. It feels really weird at first.
I also hope you never need another fistula.
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Sax-O-Trix
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« Reply #19 on: June 17, 2013, 05:22:45 PM » |
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Congratulations!!! I hope you feel soooooo much better and are able to resume a "normal" life.
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Preemptive transplant recipient, living donor (brother)- March 2011
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MooseMom
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« Reply #20 on: June 17, 2013, 06:25:22 PM » |
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Raidym, I am very happy for you and hope your recovery is swift. There will be a few really bizarre things that will come your way, but it's all part of it. Congratulations!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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pagandialysis
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« Reply #21 on: June 18, 2013, 07:30:20 PM » |
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WHOOOT! |
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Dining on Dialysis - www.diningondialysis.com------------------------------------------------------------- Kidney Transplant (December 31, 2014), Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014), AV Fistula #2 (This one is a Basilic Transposition), CKD (IgA Nephropathy) Stage 5, Hypertension (Under Control) |
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raidym
Jr. Member
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« Reply #22 on: July 14, 2013, 02:06:33 PM » |
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Well its a month out and I have to say the past few days I'm feeling really good. The deep down soreness has gone the wound and muscles are still a little tender but happy the majority of pain has eased. All my visit and bloods have been good have to go back tomorrow. Blood pressure's still a little high and Haemoglobin seems to be dropping hopefully it will pick up. Getting back to eating foods I wasn't allowed before treated myself for the first while but starting to behave a bit now want to stay as healthy as I possibly can. Thank you everybody for the kind messages and sorry for the spelling mistakes in my previous messages I was on my phone and the morphine probably had something to do with it  I just have to say everyone keep up your spirits because you never know when the call comes and even thought it's always on your mind when it comes it feels like its out of the blue. Keeping my fingers crossed for you all still waiting and hope your time comes sending you all hugs |
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"Laugh or you might cry"
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boswife
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« Reply #24 on: July 14, 2013, 05:06:01 PM » |
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so good to hear  Keep up the healing. So super happy for you. What a blessing  |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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