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| | |-+  "You want me to do what??"
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Author Topic: "You want me to do what??"  (Read 2665 times)
BobN
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« on: April 29, 2013, 09:27:14 AM »

http://www.bobnortham.com/whats-new.html
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Angiepkd
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« Reply #1 on: April 29, 2013, 10:35:00 AM »

I am with you, Bob!  Once you start doing your own needles, it really becomes no big deal.  I can't believe I would ever say those words!  Congratulations on doing it yourself!   :clap;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
BobN
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« Reply #2 on: April 29, 2013, 12:00:03 PM »

Thanks Angie.  Likewise for you.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Riki
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« Reply #3 on: April 30, 2013, 11:26:34 AM »

If I had the eyesight, or if my fistula was further down my arm, I might have learned how to put in my own needles.  It certainly would  be easier for travel, to not worry about the skill of the person putting in the needles.

At one time, my friend Kelly was thinking about training as a dialysis tech.  I would have loved that, since then I'd have someone I trusted putting in my needles when I was in NY. *G*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
ianch
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« Reply #4 on: May 14, 2013, 01:13:28 AM »

I seem to be very fortunate as my wife needles for me.  she is very good, alot better than nurses.  Any way I am worried that she will start feeling trapped as her family is overseas.   The supplier sends Xylocaine each month but we are not using it - i put up with the pain.  I might need to start using it and learn to do myself so my wife can have a break.   
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Ian Chitty
ESRD suffer, IT specialist, and business owner
(<2yrs) 1Y in-center, 9 months HomeD, 4 weeks tourism dialysis (Philippines/Singapore)

https://kiwimedtec.com
The aim of KiwiMedTec is to develop online solutions and partnered networks for dialysis patients, to make coping with kidney disease a little bit easier.
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