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Author Topic: Well off to kaiser land  (Read 11008 times)
kitkatz
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« on: April 27, 2013, 04:47:55 PM »
Yes, off to get the tune up on the fistula.  It is not working right now. Going into Kaiser to get it checked out.  Damn!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MooseMom
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« Reply #1 on: April 27, 2013, 05:13:40 PM »
Good luck!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #2 on: April 27, 2013, 05:27:43 PM »
Sorry to hear that. I hope this fix lasts a good long time....

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Riki
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« Reply #3 on: April 27, 2013, 08:04:21 PM »
i thought you were going to Germany.... what is kaiser?
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
kitkatz
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« Reply #4 on: April 27, 2013, 09:49:24 PM »
Kaiser is the hospital in Fontana.  I am back home until tomorrow morning when they will declot the fistula.  I get to sleep in my own bed and not in the hospital overnight.  Back into Kaiser 9am for procedure at 10 am  will update afterwards.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
geoffcamp
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« Reply #5 on: April 27, 2013, 10:15:44 PM »
Good luck, hope everything turns out well!!   :grouphug;
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
Darthvadar
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« Reply #6 on: April 28, 2013, 04:41:04 AM »
Oh no!... Poor Kitz....

Thinking of you...

May God bless and protect you....

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
jbeany
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« Reply #7 on: April 28, 2013, 07:10:07 AM »
 :cuddle;
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boswife
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us and fam easter 2013
« Reply #8 on: April 28, 2013, 07:47:10 AM »
 :cuddle;  Get back with us soon as able... wishen all good for you today...
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #9 on: April 28, 2013, 10:03:26 AM »
Oh, like Riki I thought you were off to Germany!

Hope it all goes okay kitkatz.

*huggles*
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
cassandra
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When all else fails run in circles, shout loudly
« Reply #10 on: April 28, 2013, 12:39:52 PM »


        :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
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« Reply #11 on: April 28, 2013, 02:54:53 PM »
 :cuddle; :cuddle; :cuddle; Hi Kit, hope you're up and running again soon!  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Big E
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« Reply #12 on: April 28, 2013, 03:22:03 PM »
Good luck, Kitkatz, and let us know how you're doing (as soon as you feel up to it, of course).
 :cuddle;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
kitkatz
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« Reply #13 on: April 28, 2013, 05:26:11 PM »
I am having a catheter later tonight surgery on fistula tomorrow. The declot failed fistula is acting weird. Good news my vascular surgeon is on call tonight
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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« Reply #14 on: April 28, 2013, 07:57:15 PM »
Quote from: kitkatz on April 28, 2013, 05:26:11 PM
I am having a catheter later tonight surgery on fistula tomorrow. The declot failed fistula is acting weird. Good news my vascular surgeon is on call tonight

Good to hear your vascular surgeon is available!
All the best.
 :bow;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Darthvadar
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« Reply #15 on: April 29, 2013, 01:09:58 AM »
Keep fighting the good fight, Kitz....

Best of luck with the surgery.....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
frankswife
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« Reply #16 on: April 29, 2013, 04:47:25 AM »
My first thought was Germany too! lol Good luck with the fistula with prayers for a good fix.
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willowtreewren
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« Reply #17 on: April 29, 2013, 07:32:15 AM »
Oh, dear...

 :grouphug; :grouphug;

I'm also glad the vascular surgeon is on call. Thinking of you....
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #18 on: April 29, 2013, 08:07:52 AM »


   Bugger, lots of love, and strength Kitz.  :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Darthvadar
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« Reply #19 on: April 29, 2013, 12:41:57 PM »
I've just been chatting on FB with Kitz's daughter, Danielle... Poor Kitz is having it tough.... Danielle's waiting to be approved for membership of IHD, so she has asked me to post on her behalf...  This is the message from Danielle which she asked me to pass on...

"As far as we know right now, her fistula reclotted after they tried de-clotting it yesterday. So they put the chest catheters in late last night so she can do dialysis. The artery where it attaches at the bottom of the fistula is collapsing...so its loosing its strength. So they are thinking of repostioning it sometime this week...."

I asked if it appears that Kitz will remain in hosp. for a few days, and this was her reply...

"Yeah as far as we know. She's being taken to dialysis now. Dad and I are going to go to the hospital and she says they may do surgery tonight."

So Folks, let's remember our Kitz in our prayers....

Will keep everyone updated as I hear from Danielle...

Love to all...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
dublin
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« Reply #20 on: April 29, 2013, 12:46:40 PM »
Quote from: kitkatz on April 27, 2013, 09:49:24 PM
Kaiser is the hospital in Fontana.  I am back home until tomorrow morning when they will declot the fistula.  I get to sleep in my own bed and not in the hospital overnight.  Back into Kaiser 9am for procedure at 10 am  will update afterwards.
Good luck come back safe :thumbup; :cheer: :grouphug;
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MaryJoe
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« Reply #21 on: April 29, 2013, 01:04:53 PM »
Aw, kitz, a trip to Germany would have been so much more fun!   ;D    I hope your surgery went well and that you're back with us soon.  Sending lots of healing thoughts your way.   :cuddle;

Thanks for keeping us updated, Danielle.
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cariad
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« Reply #22 on: April 29, 2013, 01:49:27 PM »
Thinking of you, Kit, wishing that this would get easier for you.
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Darthvadar
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« Reply #23 on: April 29, 2013, 03:01:03 PM »
Update...

They dialysed Kitz through the PermaCath, and took her off early....

She's now having a stent put into her fistula.... Fingers crossed this will work, and she'll be up and running again very soon...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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« Reply #24 on: April 30, 2013, 01:26:40 AM »
 :thx; :thx; :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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