Very sick after treatment

[Dragonfly]

I always get very sick, diarrhea, sick to my stomach, headache, loss of appetite, always after treatment. When I come home I have to go to sleep and put on my oxygen and when I get up I feel a little better. I end up sleeping all day for the rest of that day and off and on the next day. By the time I feel better it is back to dialysis and here we go again. Does this happen to anyone else. Oh and I also wake up drenched from head to toe. Any thoughts?

Dragonfly

[cattlekid]

I assume you are on in center dialysis? If so it sounds like you may be having way too much fluid removed each treatment. There really is no reason for such terrible side effects after a treatment. You may want to talk to you neph about raising your dry weight. Do your monitor your weight at home?

[Dragonfly]

Thanks for the response. My dr just raised my dry weight yesterday from. No I do not weigh myself at home, I just keep in check with my swelling and how I feel, however I don't really swell even when I am weigh over my dry weight.

[cattlekid]

I don't swell either, the fluid tends to stay in my chest cavity. How much do you normally take off during each treatment?

[Riki]

I think fluid accumulates in different places on different people. They tend to check hands and ankles when you go into the centre, but I've noticed that it is my upper legs that swell up, long before anything happens to my hands or my feet

I'm big on watching weight too.  I try not to gain more than 3kgs between treatments.  That way, I don't go home heavy, since I won't take off more than 3kgs per treatment either.

[Speedy1wrc]

Random question...Do you have diabetes?

[Dragonfly]

I don't swell either, the fluid tends to stay in my chest cavity. How much do you normally take off during each treatment?

I take off 2.5 to 3.5, I can't do more than 3.5 because I crash.

[Dragonfly]

I think fluid accumulates in different places on different people. They tend to check hands and ankles when you go into the centre, but I've noticed that it is my upper legs that swell up, long before anything happens to my hands or my feet

I'm big on watching weight too.  I try not to gain more than 3kgs between treatments.  That way, I don't go home heavy, since I won't take off more than 3kgs per treatment either.

I haven't really noticed fluid accumulation anywhere. I will have to pay closer attention to that.

[Dragonfly]

Random question...Do you have diabetes?

I get asked that all the time, that is one illness I actually don't have.

[kit78]

I've been told to eat a bowl of Chicken noodle soup.  If I don't have that then I just eat a ham sandwich.  Point being...getting some salt back into my system seems to help me.  If more than 1.5 liters of fluid is removed, it wipes me out.  But some salt helps. 
You might want to ask your Neph. doc about it. It may help you.

[Riki]

I've been told to eat a bowl of Chicken noodle soup.  If I don't have that then I just eat a ham sandwich.  Point being...getting some salt back into my system seems to help me.  If more than 1.5 liters of fluid is removed, it wipes me out.  But some salt helps. 
You might want to ask your Neph. doc about it. It may help you.

That's good for low bp too.  When I eat Mr. Noodles (yeah, I know it's a nono. *L*) I never use the whole flavor packet.  I put what's left over in a jar, and when my bp drops, I'll put a spoonful of that in a cup of hot water and drink it.  It's like salty tea

[ianch]

I can sympathize.  In centre was anal about reaching that weight target and with evening treatment there were no doctors around as it was a satellite unit.  A significant number of complications were experienced.  Now on HomeD so can control it a lot more.

I recall when I was traveling in the Philippines on the first day they took out too much (bad instructions from NZ) and i couldn't even form verbal sentences afterwards.  .   

For me I discovered quite quick that I needed to control fluid.  Prior to Dialysis I drank 4 litres per day to keep my kidneys working and then had to drop to 1, so it was a huge and difficult shift.  So far in 2 years I've had 1 overloading event which was nasty. 

I know everyone is different however I do think weight control is key to how one feels before, during, and post treatment.  I weight myself every morning, after work and before bed. That way I know what leavers might need pulling.  Having dinner just before treatment can be a big problem if its not accounted for.

I use 4 primary leavers for reducing weight
1 - Diet.  Western food is packed full of salt, and salt is like a drug on your brain demanding that drink over and over.  I found that reducing salt was a must if I was to be successful at reducing fluid intake.

2 - Restraint.  I work 40 hours per week in a high stress ICT role so its not easy, but tipping half that tea out is a good way to reduce.

3 - Medicine.  NZ provides meds that force the kidney follicles to open.  The value varies greatly between patients and I personally only use as a balancer.

4 - Treatment.  My goal for April/May was 2.0 liters per session.  I think I'm averaging 2.05 so far (according to my DiaMon app).   

I find weight management that most stressful part of SKD as it does affect me 24/7 and I can't escape from it.  BUT, I have put the effort in and I'm enjoying life more because of it.

I guess i"m encouraged by my hospital support team that provide feedback about how impressed they are with my SKD management.  I'm hoping I can pass some info to others.  Since on Dialysis I've been to Philippines, Singapore, Malaysia, and Brunei.   
 



 

[Wildrose]

I know this is an older post but I was just curious if you noticed a change in how you felt after your Dr raised your dry weight?
Someone responded to your post by saying that you shouldn't feel that way after dialysis, and although I haven't suffered all your symptoms after dialysis I do suffer many of them after every session. For me it is 'normal' to feel like crud after dialysis and sleep all day, I've just accepted the fact. And for me this is even without any fluid gain inbetween sessions. Dialysis is just hard on my body and I think it affects everyone differently.

[Dragonfly]

I know this is an older post but I was just curious if you noticed a change in how you felt after your Dr raised your dry weight?
Someone responded to your post by saying that you shouldn't feel that way after dialysis, and although I haven't suffered all your symptoms after dialysis I do suffer many of them after every session. For me it is 'normal' to feel like crud after dialysis and sleep all day, I've just accepted the fact. And for me this is even without any fluid gain inbetween sessions. Dialysis is just hard on my body and I think it affects everyone differently.

No I don't think it has anything to do with an increase or decrease in dry weight. I have been doing a little better lately, I think that the dialysis treatment aggravates my lupus. because my last half an hour I get aches and pains, I need oxygen and I get extremely cold, so cold I shake. After they take the first needle out I start to feel better.

[ianch]

I think everyone experiences different side effects or none, but side side effects to appear to become more evident at short sessions with faster pump speeds.  Not all Dr's want to go into it because its a bit of a touchy subject due to funding limitations.

From my experience the longer I go on and the lower the fluid removal = the better i feel the next day.  I'm now up to 10hrs, sleeping for at least 8 of those.  Usually wake up by the machine alarm telling me its finished.

On the fluid front I try to aim for 2.2 or less per session which requires effort.  Anything over 2.5 and I will start to get mild symptoms. above 2.8 and things will start to get wobbly.  I can use profiles to pull 1l per hour for 2 hours and the the remaining 1l over 8 hours, which helps.     

However, before during in-center I probably experience the same as everyone here.  The temp change and sweating is believed to be a internal reaction to the fluid moment, and normally occurs in the last hour.  Basically your body has had enough and is telling you.